posted
Has anyone here had a Pipida scan,or CCK Disida, scan...in Nuclear medicine. Anyone have an abdominal ultrasound appear normal and then have this function test? if so what did it show and did you get your gallbladder out? Having been in stomach pain for 3 years and nausea every day with no relief, the docs think I might have gallbladder dysfunction. Joy.
posted
I got gallstones after being on Rocephin for 2.5 mos. Had the terrible pain that would come on when I least expected it. The ultrasound indicated multiple gallstones and sludge. The surgeon recommended immediate removal before having a emergency op. My PCP and LLMD didn't see that way and ordered a HIDA scan that shows how the gallbladder is functioning. It was functioning fine. After a month, had another ultrasound, and the stones were gone! An answer to my prayers! Kept my gallbladder and have had no more pain. Check out all your possibilities before having anything removed! Good luck.
Posts: 54 | Registered: Nov 2003
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liz28
Unregistered
posted
I've had gallstones from rocephin and also acid reflux for over ten years.
First, did your doctor put you on Actigall? That can slowly whittle down gallstones. Also, have you tried a prescription antacid? I take prevacid, the old standby, but there are probably many more drugs of its kind on the market. If there is a a good otolaryngologist (sp?) in your area, it couldn't hurt to get yourself checked. By the time a doctor caught my acid reflux, I had all the symptoms you list, plus headaches, fever, sinusitis, etc. It's one of the reasons Lyme hit me so hard--my immune system had already taken a beating from the acid.
I've also gotten great benefit from some of Zhang's liver herbs--the Lyme abx made my liver enzymes go up, which created the kind of pain you described.
Although my doctor's young firebrand assistant urged me to get the gallbladder removed, I held back, because it plays a key role in processing stress. Doctors are quick to perform surgery, and once that sucker's gone, it's gone.
posted
"Gallbladder people".. has a nice ring to it, eh!? I guess it beats "Lymeheads"!
Here's my story...and I'm stickin' to it! Had gallbladder attacks last Oct and Nov. Was told I needed to have it out after an ultrasound showed "numerous stones" and sludge.
Well, I waited till after Christmas....then got cold feet about having it removed. I took Actigall for 3 months and it really helped the pain. I would imagine it cleared out a few things.
So here I am and it's August...still have my GB. I have pain off and on, and watch my diet. No fatty foods, nothing fried [usually!], and I take digestive enzymes.
I've considered having another ultrsound and/or Hida scan. I'd like to know whether or not my GB is functioning or if I'm just kidding myself!
I am so confused about this. I started having gall bladder pain after 8 weeks of Iv Rocephin. The attacks continued for two more months and were terrible but I have not had an attack since the beginning of June. Of course I have cut out fats and I am supporting my liver etc....
I have had three ultrasounds all showing stones and "sludgeballs". The surgeon says I have to have it out and I am booked for two weeks today. My doctor is not so sure.
I really do not want to have surgery unless I have to and now I feel like there is a chance this might go away.
What to do??? More of your experiences would help.
Thanks.
Posts: 93 | From Canada | Registered: Dec 2003
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posted
WildCondor, isnt it enough that you have LD, now this? I hope it resolves quickly.
Kara, I am reading into your post that you had peritonitis, is that right? From your sentence, " I had the gallbladder removed as emergency surgery. I wouldnt recomend doing that." gave me the impression that you new the horror or peritonitis. A surgeon burned holes in my colon and intestines which threw me into that horror. None the less, any surgery to the stomach and surrounding areas leaves a person with issues afterwards no matter what a surgeon says.
Mandy, it clearly shows that medicine is business as norm these days..i.e. your surgeon was in the business of surgery. Thank goodness there was someone who was interested more in your wellness.
I've only been on rocephin for a month, but I'm beginning to think my LLMD is on top of it by putting me on actigal at the same time. I hope newbies read the experiences that you have gone through to get the best treatment they can. Laney
Posts: 44 | From San Antonio, TX USA | Registered: May 2004
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
lymielu,
No. I didnt have peritonitis (which is an infection that can result from your gall bladder bursting).
My gallbladder burst and I had it removed by emergency. But not enough time went by for me to have developed peritonitis (thank goodnesss...that would have been horrible).
I never had prior symptoms. I just apparently had gall bladder disease. No gallstones. The gall bladder just died.
This was about 10 years before I had Lyme disease.
quote:Originally posted by tabbytamer: Kara (and others):
Which digestive enzymes would you recommend?
I take Solaray brand "Super Digestaway" $10.59 for 90 capsules. I take one with each meal.
Actigall works very well, and I think anyone on IV should be taking it....but then I'm not a dr!
I'm not too excited about surgery, since the last time I had surgery, my Lyme flared to the extent that I was never able to go back to teaching. Of course, I wasn't being treated for Lyme then because I didn't know I had it.
posted
I was on IV Rocephin for approx. 1 year. My LLMD made me promise to ingest Apple Cider vinegar and olive oil every day. He said it would keep me from needing my gall bladder removed. My naturopath also recommed the same protocol to keep my gall bladder. It muat have worked because my gall bladder is sludge free.
I dislike apple cider terribly but I choked it down every day! The first day was the worst!
Karen
Posts: 75 | From Cincinnati, OH, USA | Registered: Mar 2001
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Monica
Frequent Contributor (1K+ posts)
Member # 224
posted
I was on IV Rocephin for 2 1/2 months when I had a gallbladder attack. Scan showed it had a stone. I opted to have it removed because I did not want to experience another event. As it turned out, it was diseased and not functioning. (My grandmother had terrible gallbladder attacks.) I am very glad I had it removed.
Posts: 1757 | From Somerset County, NJ | Registered: Oct 2000
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
I recieved 4 months of rocephin, within 2 or 3 months after that I started having stomach pain. I had the function test where they inject die into the gallbladder to see if it was working correctly. Well, it wasn't. So, I had it taken out. At the time I didn't know the risks of using rocephin. I really think it messed my gallbladder up. The surgery is simple. Nothing to be worried about. Good luck! Posts: 21 | From Panama City FL USA | Registered: Jun 2002
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
WC, how are you feeling today? Did you have the scans today? I hope you feel better.
posted
I had a gall bladder "attack" Saturday night, and thought I was dying...it lasted about 1 1/2 hours and sent me to the ER.
I had been having unexplained queasiness, etc. the last few months but didn't really think a whole lot about it...also, I took a sudden dislike to certain foods...especially Mexican.
Had an ultrasound that showed multiple stones...saw GP today and he ordered a HIDA scan for tomorrow morning and then see the surgeon tomorrow afternoon. I've never been on IV antibiotics, just Zithromax and Flagyl orally.
Guess I'll know more tomorrow...but it's looking like surgery for me, according to my GP.
posted
Gallbladder trouble must be in the air at the moment. I ended up at my Dr today. I go monday for an ultrasound and a functioning test. At this point I'll rip it out myself if it'll make me feel better.
Posts: 53 | From Nct. Ohio | Registered: Jun 2004
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posted
I had my gallbladder out New Years Day of 03 after 6 months of Rocephin. My doctor told me it was not necessary to do it immediately after seeing my ultrasound results. I wound up back in the hospital for tremendous pain my stomach, and they decided to go ahead and take it out. The surgeon told my doctor after the surgery that if I hadn't had it out then it would have exploded. When it comes to the sludge that Rocephin can cause, I don't think they can always see the extent of the problem.
The surgery is not very painful. I recovered very quickly from it.
Posts: 415 | From Canton, GA United States | Registered: May 2004
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Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
My opinion is that dont wait too late. Having emergency gallbladder surgery is very differant than elective. I was in the hospital for over a week. And recovery was painful.
I hope that you have found the answer to your pain. I did not know that you could get scans to see gall bladder function. Just shows what you learn on Lymenet!
Thank you all for your replies and for sharing your experiences. Both my surgeon and my doctor are away on holiday and I am unable to contact them. My surgery is scheduled for the day he gets back so I guess I won't chicken out and I will go ahead with this.
I am sure that I have a diseased gall bladder and some of you have reassured me that the whole procedure is not too traumatic
I think trying2bsunny is right, gall bladder trouble must be in the air. Wishing all fellow gall bladder people painfree days ahead.
Carryon
Posts: 93 | From Canada | Registered: Dec 2003
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WildCondor
Unregistered
posted
Thanks everyone...
I did the ultrasound and I am awaiting the results before scheduling the Pipida scan. I dont have any pain, just constant nausea, reflux bloating etc. I have been treated for h.pylori multiple times and always fail the treatment because I have already been on all the antibiotics used to kill it many times. Initialy I had a good response to Biaxin but after I stopped it my belly pain came back. This summer it got so bad that it took over my every day life and I was so sick to my stomach I had no existence. Its the nausea...its a dull gnawing ache in my upper stomach (right side) area too, but sometimes its all over nasty and any normal activity is really hard to grin and bear it. I have had all the GI tests except this one. I have reflux, gastritis, etc. My LLMD says I still have h.pylori positive in my blood work, although that would mean I have a really nasty treatment resistent case sice I have tried triple and quadruple therapy for it twice with various combos of meds, Prevacid, Aciphex, pepto, zantac, tetracycline +flagyl, and prev pack at double doses three times now. My GI docs both say its not h.pylori and the + blood test shows only antibodies. The thing is its an IGM result, and doesnt that mean active infection? Help! Maybe its bartonella in there since I am + for that and I am scheduled for Rifampin + Levaquin to start in 2 weeks. Ahhhh!
I have tried all the nutritional stuff too(mastic, ginger, enzymes etc.) and have gone through extensive candida killers. My Lyme and overall condition would be doing SO well if not for the nausea and toxic belly feeling that make smy whole body feel like an exhausted nauseated blob. I kind of want it to be my gallbladder causeing this hell so I can get it out and hopefully have some nausea free days. This gallbladder stuff is not Rocephin related...although I did do the IM shots of it for a short time months ago. When any of you go on IV Rocephin you are supposed to go on Actigall with it. Also, if you have sludge or stones after or during Rocephin, you can stop the Rocephin, switch to Claforan or IV Zithromax and do a Liver/gallbladder cleanse. The sludging/stones are treatable without surgery and you migh be better off waiting to get your GB out because the slude can go away... My problem seems to be hereditary and this stomach hell has been going on for almost 3 years back and forth. Thank you all for your help. I'll let you know what happens. :-)
I think I may have mentioned this before but I wonder if you knew about York Laboratories and their test for food sensitivities that you can do in your own home and send to them for analysis.
They test for IgG mediated food sensitivites which are delayed response sensitivities. Their website for USA is http://www.yorkallergyusa.com/
Also I found that I was gluten sensitive from Enterolab. This is another test that can be done at home and they send the results to you by e-mail. Website is http://www.enterolab.com/
posted
Ten years of complaining about nausea etc...........all tests normal...........fianlly a doc realized I wasn't kidding..........had inflamed gallbladder removed...........ahhhhhhhhh. Have still had H. Pylori and ? GERD.....and hiatal hernia..........I blame it all on lyme so...........be prepared.........it doesn't seem to end. Best of luck and don't give up.
Posts: 575 | From Houston, TX | Registered: Oct 2000
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Wild
I never had "the normal gallbladder attack". I too, like you, suffered for years with horrible stomach symptoms. My stomach burnt literally and I swore I had an ulcer (newp), along with pain,f ullness after eating, nausea, you name it.
It only took my PCP Three whole years to figure out it was my Gallbladder I didnt have either scans you mention though. He did a regular xray and found seven HUGE stones sitting in my gallbladder.
The stomach problems ceased ( along with some other uh connective problems I was having) but some severe pain ended up staying, only to go away years later with this darn lyme treatment.
Good luck to you! Email me weeniehead Jodie
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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WildCondor
Unregistered
posted
Thanks..Carryon, I have had that testing, and I am doing really well in regards to food allergies, the only thing I cant have is red snapper and I dont eat that anyway. i did have leaky gut years ago and did a total gut repair for it with glutamone, digestive enzymes, probiotics etc and it improved so much. Anyone else with treatment resistent h.pylori or nausea that wont go away???? Thank you thank you for the replies.
posted
Hello! I had to write because your symptoms sound exactly like mine this winter-in Jan. I started with tingling in my arms and upper chest and back and horrible, excruciating abdominal pain at night and it would last for hours-I felt like I was going to die!
Finally had an ultrasound, they said the gallbladder was full of stones and had to be removed. I too had to wait about 2 weeks and it was the longest 2 weeks of my life! I tried sticking to non greasy foods and avoiding caffeine but I was miserable! I did have the surgery and it wasn't bad at all-recovery did take a little longer than I had hoped-just don't push yourself the first couple of days and be prepared to get some rest (you'll need it after all those sleepless nights!)
Anyway, to make a long story short, I was taking Leviquin prior to surgery and had a horrible reaction to it, so be sure to watch for that! I had my gallbladder removed and the abdominal pain was gone, but I still have these crazy symptom that have lead me back to lyme time and time again.
After reading all the responses that you've received it makes you wonder if the lyme can cause all these problems with the gallbladder???
I wish you all the best with your surgery and I feel for you-I remember those long nights and I'm glad you're going to have some relief soon!
All my best-drop me a line if you have any ??? or want to chat.
KLS
Posts: 90 | From NJ USA | Registered: Jul 2004
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