posted
Anybody have it or can tell me what exactly it is? Can lyme cause it? What about paletal myoclonus? What are the symptoms of that? Thanks guys!
Posts: 68 | From COATESVILLE, PA! | Registered: Mar 2004
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posted
aditionally, I would like any information anyone might have on myokemia. Is it a true chorea? Is it just a type of fasiculation? Is it seen in lyme? Sorry for all the questions!
Posts: 68 | From COATESVILLE, PA! | Registered: Mar 2004
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posted
Hi, I too have myoclonus from LD. One of the types I have is stimulus sensitive, sometimes in some info called startle myoclonus... I have been looking here for well over a year for others with it too.
Below is a website titled-Myoclonus fact sheet. I got it off of the google search engine. Google gives you many sites to explore.
If you have difficulty-contact me again, and I will copy and paste more info here for you.Many people with myoclonus totally get rid of it with antibiotics. Others like me are left with it. I have a severe condition.
For the myoclonus I am currently taking Klonopin-the first drug of choice anywhere you see info for myoclonus. I also take Lamictil. These are ant-seizure meds. I have tried many combos of meds, but have had bad reactions to most of them. Klonopin is my base drug. http://www.ninds.nih.gov/health_and_medical/pubs/myoclonus_doc.htm
Take care, and I hope to hear more from you.-terter
daystar1952
Frequent Contributor (1K+ posts)
Member # 3255
posted
OK...here's a weird one for you...I just read the last link that was posted and think what I experience is Action Myclonus. Whe I lay on my side in bed in the fetal postion for a few minutes and then roll over onto my back and stretch my legs out...then my legs bend at the knees and jerk up to my chest...one big jerk and then several others which then decrease in severity. To control that I have to straighten out my legs very slowly. I just realized that I haven't noticed this for a while now since I've been on Biaxin, doxy, malarone and artemsinin...all at once
Posts: 1176 | Registered: Oct 2002
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lymiecanuck
Unregistered
posted
I had this and have not expeienced it lately. I had it for years in mild form just thought I startle easily, never thought nothing of it, until it got bad.
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