LymeNet Home LymeNet Home Page LymeNet Flash Discussion LymeNet Support Group Database LymeNet Literature Library LymeNet Legal Resources LymeNet Medical & Scientific Abstract Database LymeNet Newsletter Home Page LymeNet Recommended Books LymeNet Tick Pictures Search The LymeNet Site LymeNet Links LymeNet Frequently Asked Questions About The Lyme Disease Network LymeNet Menu

LymeNet on Facebook

LymeNet on Twitter




The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

LymeNet Flash Discussion
Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive


The Lyme Disease Network is a non-profit organization funded by individual donations.

LymeNet Flash Post New Topic  New Poll  Post A Reply
my profile | directory login | register | search | faq | forum home

  next oldest topic   next newest topic
» LymeNet Flash » Questions and Discussion » Medical Questions » Critical juncture

 - UBBFriend: Email this page to someone!    
Author Topic: Critical juncture
bridude2001
Member
Member # 5645

Icon 1 posted      Profile for bridude2001   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
I 'm at a crossroads and am seeking advice, although I realize that ultmately I have to make this choice on my own.

My first LLND thought I had ehrlichia when I first showed up with brain fire, ie CNS inflammation. I was a newbie and was confused by his assumption that there HAD to be a coinfection. We started the doxy @ 400mgs a day. Three weeks later the Igenex tests came back and while there were low titers that indicated Lyme (it was officially an equivocal reading,) ehrlichia came up clear. However , the Igg on the babesia (microti) was 1:20 which from what I understand means that I may (may!) have been infected with babesia. I had no chills, night sweats or fevers at any time.
So, one would assume, based on this idea that there must be a coinfection to account for such early acute neurological symptoms, he prescribed the mepron/zith combo. As some of you know, i couldn't tolerate the mepron as it turned my vision yellow (Its finally starting to clear up!)
At that point he put me on the Artemisinin/zith @ 400mgs but it made my brain explode to the point where if this was a herx, it was going to be the death of me. Maybe I should've backed off and stuck with the Artemisinin, but I had just met a woman who nearly died from the stuff and was wary. I discontinued the Art for the time being, staying a a bi weekly colloidal silver drip, which I seem to like a lot. I always feel great afterwards.

I saw another LLMD for a second opinion, as I really need to be treating in some way. He looked at the Igenex results and said "Where's the positive for Babesia?" He was looking at it at the time! He ordered the Igenex Fish test, which I have heard mixed reviews of. But it would seem like the logical thing to do would be to try to pinpoint as to whether or not i really have babesia, at least to pursue it further.

Here's my dilemma: He wants me to go back on the doxy @ 400mg for three months and then go to flagyl/ceftin for a couple of months, anyway something like that. I can't remember exactly. If I start the doxy I intend to stick with the program this time, no matter what happens. But what if the babs test comes back with a more solid positive? Would I switch again? I forgot to ask the new doc what his game plan would be in that event, but he implied that there was controversy about having to treat babs first, so i would guess he would continue the doxy route etc. After all, many people got better before they knew about coinfections. Some of those people probably had them.

I know it's a complex situation. I'm just curious as to what the general consensus is with some of you folks. I'm still a relative newbie, having only been infected in April of this year. I am almost 100% positive that this is my first infection, so I am working with the idea that I'm four months out from the infection now.

Any ideas?

PS: thanks to all the good people of lymenet who have answered my questions before.


Posts: 15 | From Forestville, CA | Registered: May 2004  |  IP: Logged | Report this post to a Moderator
jbgoth
LymeNet Contributor
Member # 5567

Icon 12 posted      Profile for jbgoth   Author's Homepage     Send New Private Message       Edit/Delete Post   Reply With Quote 
Bridude,

I dont have an answer to your question, but i also had a 1:20 babs test from Igenex.

My LLMD started me on the mepron/zithro right away. Thankfully, i dont seem to have too much of a problem with these ABX. I did have some GI issues but i think it was a reaction from trying artemisinin.

I was wondering if anybody had any info on the babs test from Igenex? What have your experineces been?

Thanks,

Jordan

------------------


Posts: 593 | From Miami, Florida | Registered: Apr 2004  |  IP: Logged | Report this post to a Moderator
caat
Frequent Contributor (1K+ posts)
Member # 2321

Icon 1 posted      Profile for caat     Send New Private Message       Edit/Delete Post   Reply With Quote 
maybe you can talk to him about "ramping up" on the artemisia or whatever other drug for the babesia. Something I do when I'm having too hard a herx. Start low dose then increase it.
Posts: 1436 | From Humboldt county ca usa | Registered: Mar 2002  |  IP: Logged | Report this post to a Moderator
   

Quick Reply
Message:

HTML is not enabled.
UBB Code� is enabled.

Instant Graemlins
   


Post New Topic  New Poll  Post A Reply Close Topic   Feature Topic   Move Topic   Delete Topic next oldest topic   next newest topic
 - Printer-friendly view of this topic
Hop To:


Contact Us | LymeNet home page | Privacy Statement

Powered by UBB.classic™ 6.7.3


The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA


| Flash Discussion | Support Groups | On-Line Library
Legal Resources | Medical Abstracts | Newsletter | Books
Pictures | Site Search | Links | Help/Questions
About LymeNet | Contact Us

© 1993-2020 The Lyme Disease Network of New Jersey, Inc.
All Rights Reserved.
Use of the LymeNet Site is subject to Terms and Conditions.