LymeNet Flash: neuro lyme symptoms

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»	LymeNet Flash » Questions and Discussion » Medical Questions » neuro lyme symptoms

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Author

Topic: neuro lyme symptoms

kloyne
Member
Member # 5321

posted

Has anyone who has been diagnosed with neuro lyme have any of the following symptoms:

1. Clenched hand
2. Curling of toes when walking
3. Frozen shoulder
4. Cracking of neck
5. Lesion in spinal cord in cervical (neck) area
6. Leg spasms that keep your leg and toes straight when trying to move
7. Pain in big toe

Also, does anyone have symptoms on only one side of their body?

Any help or information would be appreciated. Thanks

Posts: 17 | From Stoystown, PA USA | Registered: Feb 2004 | IP: Logged |

rhpress
Member
Member # 4679

posted

Sorry to hear that you are having such trouble with the neuro symptoms. I have had cracking of neck, leg spasms, pain in big toe. What exactly do you mean by frozen shoulder? I experience numbness across my upper back runnig between my shoulders at the base of my neck down to my shoulder blades. I also have pain and cracking in the joint of my right shoulder. Most of my symptoms only accure on one side at a time (ie left hip or right shoulder). Hope this helps a little.

rhpress

Posts: 51 | From Locust Grove, Ga US | Registered: Oct 2003 | IP: Logged |

krazykt1
LymeNet Contributor
Member # 3739

posted

YES.. I have all those things you've listed and all right sided. Have much difficulty walking, almost wheelchair material. In my second week of minocycline and going thru a frightening herx. How long have you had Lyme?

Posts: 740 | From BC Canada | Registered: Mar 2003 | IP: Logged |

kloyne
Member
Member # 5321

posted

Frozen shoulder is when the shoulder stays in place with very limited movement. And all movement is painful. I have all of these symptoms, and more, but cannot get a diagnose from a doctor. It has completely changed my life ans left me unable to work. After 7 years of trying to get an answer,,,,it does a lot to your mind,,,,,,wondering what it is. I truly think it is Lymes,,,because everything that Lymes imitates, I have been tested for and all have come back negative. I had 6 blood tests,(5 ELISA, 1 Western) all negative. But I had the IGENEX urine testing done,,out of 3 ,,2 were positive. One doctor says yes to Lyme,,another says no. Thus I keep trying to find an answer and hope one day I will get it. Thanks for your replies.

Posts: 17 | From Stoystown, PA USA | Registered: Feb 2004 | IP: Logged |

lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622

posted

Yes, to all the above, at one point or another. The frozen shoulder was one of my first symptoms.

Primarily, my symptoms were always all right sided.

You say you've had 2 positive tests from IgeneX - what are you waiting for??? Please, get to an LLMD. NJ & PA are endemic for Lyme.

Skip the quacks - they don't know about Lyme (BTW - it's Lyme, not Lymes - makes us all here nuts when we see Lymes...). You've wasted 7 years - get to an LLMD and start healing.

------------------
Julie G.
___________
lymeinhell

Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003 | IP: Logged |

Green Darkness
LymeNet Contributor
Member # 985

posted

Yes, have had all the things you listed. Always wondered about the hand clenching thing. That was one of my first symptoms. My problems are all on my right side.

Posts: 560 | From PA | Registered: Apr 2001 | IP: Logged |

kloyne
Member
Member # 5321

posted

Green Darkness,,I see you are from PA too,, can you e-mail the name of the doctor that is treating you for Lyme?

I live 75 miles east of Pittsburgh.

Thanks for any info.

Posts: 17 | From Stoystown, PA USA | Registered: Feb 2004 | IP: Logged |

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