posted
I have no idea if this is a Lyme symptom. Over the last week, nearly every day I have had periods of dizziness. At first it was just dizziness. I could walk, but had to be careful.
A few days ago, it became extreme dizziness and my eyes felt as if they were locked and unable to focus, so that I was seeing double and unable to read. I had to very slowly read one word at a time, because I could not scan the line. And when I got to the end of the line I could not find the next line.
The sensation feels as if I am drunk, though I had nothing to drink. I am on antibiotics and hormones for menopause. It has happened in the afternoon as well as early evening, completely out of the blue. Today it occurred after lunch and I carefully felt my way to the sofa and lay down, then promptly fell asleep for an hour. When I awoke I was much better, though my head has a slightly foggy feeling.
Anyone ever experienced this?
Pooch
Posts: 548 | From Diagnosed 2003 | Registered: Jan 2003
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Yup, BIG TIME! I've had it for 4 years all the time. My worst symptom by far.
Posts: 1010 | From Mars | Registered: Feb 2004
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I am making a lame attempt at humor...sorry for your problems, Pooch...and I do sympathize. Honest.
I had terrible problems reading for almost 2 years. I could not keep my place and had to go back and read again, etc. Something I loved to do suddenly became a real chore. Fortunately, with treatment I am reading again.
I am wondering if one of your antibiotics is levaquin. I have been on that for several weeks now. An hour or so after taking it I get very dizzy, seem to lose my balance, and looking down gives me vertigo although I don't seem to have any depth perception. I head for the couch and it passes.
Have tried to figure out if I am reacting badly to this drug or if it is squirreling out the spirochetes in my brain!
Don't know what is going on, but I'm curious to know if perhaps you are also taking this antibiotic.
Such a "fun" disease!
Posts: 2135 | From Tick Country | Registered: Oct 2000
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once bitten
Unregistered
posted
I would respond but I am too dizzy to sit up and my vision is so bad I cant read what to type. I actually did have a few days of this lately. Is is my paranoia running deep, or do we seem to have similar symptoms that run simultaneously? Ever noticed that?
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Lymelighter
Frequent Contributor (1K+ posts)
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posted
Yes, and btw...I wake up every am with a wicked hangover. Reminds me of my days in college!
Posts: 1010 | From Mars | Registered: Feb 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
Hey pooch...
Good to see you!
Just a guess.. or suggestion really.
How is your yeast?
My yeast, when it suddenly gets the better of me... HITS just like you described... and I am never sure right away what the heck is going on.
When I finally figure it out.. and take the Nystatin to kick it in the butt... within about 2-3 days I am MUCH better.
Are you taking Nystatin or Diflucan on a regular basis?
If not.. it might be worth a try?
If it is yeast.. BINGO!
If not.. at least you have eliminated one of the reasons this could happen.
Or... another thought...
Have you been listening to Willie Nelson and Toby Keith lately?
You know...
Whiskey for my men... beer for my horses!
Hope you feel better soon!
PS.. One more thought...
You ARE taking your meds WITH food... aren't you?
This dizziness might also occur if you aren't.
Just a thought.
OK... ONE more last thought.
I bought some pear nectar from the health food store a while back.
Healthy me... right?
WRONG.
I had never had pear nectar.. and didn't know what it was suppose to taste like.
Soooooo.. I didn't know it had fermented in the unopened bottle!!!!
I felt drunk without the pleasure of any alcohol! But.. finally I figured it out.. contacted the store.. and they confirmed the fact it was fermented.. took it off the shelves.. and I drank the rest real quick before they could take it away from me.
HA! No.. I got rid of it faster than a hot potato! I didn't like feeling drunk on top of the Lyme, etc. Please do check any "drinks" you may have been drinking.
I suppose this is a rare thing.. but it CAN happen!
posted
Thanks for all the replies. I have been on Omnicef and Biaxin for the last 9 months. I hope that it is not that the antibiotics are now becoming less effective. I have also been having more hallucinations, so I worry that perhaps I am having seizures and the "Drunkenness without drink" is another kind of seizure.
The lesions are in my frontal and parietal lobes. Don't know which ones that would correspond to vision.
And when walking with this sensation I do have to hang onto things. I feel very unsteady.
My LLMD wants to refer me to a neuro to evaluate for seizures.
Pooch
Posts: 548 | From Diagnosed 2003 | Registered: Jan 2003
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Poochy, I forgot to mention that I've had EEGs, PET, CT, MRIs, of my brain , eye tests galore and they found nothing. Obviously, bb can't be seen on these imaging systems. This was my 1st symptom before I'd even started abx.
I was tested for blood sugar issues, took Diflucan for weeks, yet LLMD said it's the bb causing the fog and getting abx into the fatty brain tissue is the trick. My opthomologist say bb can irritate the optic nerve and cause the vision issues.
[This message has been edited by Lymelighter (edited 16 August 2004).]
posted
Hi Poochini, I have those very same symptoms. I sometimes feel very dizzy, like I am going to faint. Also, I have auditory hallucinations which drive me out of my mind. When I am reading, sometimes I have to reread the same sentence five times and I notice my comprehension of what I have read is absent. Often I will feel as though I am going blind, I can't seem to get my eyes to focus. I have had an MRI and my brain appears to be normal, so I believe, as well as my doc, that these are neuro conditions. I don't know where you live, but there is a very good neurologist at Columbia Univ. in NYC. Her name is Carolyn Miller, if I remember correctly and she is part of Fallon's study. Hopes these helps some, but more importantly, I hope it brings you some sense of comfort that you are not the only one this happens to. Fenway
Posts: 23 | Registered: Mar 2004
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troutscout
Frequent Contributor (5K+ posts)
Member # 3121
posted
I am going with yeast first on this one....
because of the drunk feeling and that it happens after Lunch, or in the evening.
This may point to something you may be eating which then causes a yeast explosion...and, acetylaldehyde...which makes us drunk without alcohol.
although....could be somethign neuro.
Trout
Posts: 5262 | From North East Iowa | Registered: Sep 2002
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posted
I have to agree that it's yeast. I know the feeling all too well. Even if you aren't actively taking something to fight yeast, your body takes on the job. I was in a drunken stupor yesterday just because I was going low carb.
Take some psyllium fiber to help mop it up.
Posts: 373 | From Southern California | Registered: Jun 2003
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posted
Yes, some dizziness comes with the lyme, etc. That it increases when you take a certain antibiotic is probably due to a "herxheimer-like reaction", or "herx" that happens when you treat lyme. It will get better soon- eithin 2 weeks most likely- but may return periodically, or when you switch treatments. DaveS
Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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posted
Thanks, all, for the great information and hints. I should mention that this feeling of drunkenness does not last all day. It hits suddenly and lasts for about an hour or less. It builds up, and after a while, I am barely coherent. I still feel slightly weak for a while afterward.
My family said I look very pale and as if in a trance. My sister-in-law assisted me to the sofa to lay down. She put a cold compress under my neck and gave me some water.
I wonder if it is indeed yeast. Is there scientific evidence about yeast causing an alcohol reaction?
Besides my lesions, I should mention that I have hypoperfusion in my frontal-orbital lobes, more on the right side, and in my left temporal lobe tip.
I posted about these symptoms on a seizure list, and there were many who said this was exactly like what their seizures are like. Who knows what is really going on? It is clearly abnormal.
Pooch who didn't even drink hooch
Posts: 548 | From Diagnosed 2003 | Registered: Jan 2003
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david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
Hi
In my case, I had this problem,exactly as you indicate early on, prior to figuring out I had Lyme and starting IV treatment.
This problem has been given the nickname "drunken sailor syndrome" by some, and is apparently pretty common but in most cases the cause is not identified (Slowly progressing infections like lyme are not even considered unless you have a knowledgable Dr.).
The problem eventually subsided with intial IV treatment but it eventually re-occured after I was on oral ABX for a while. This was followed by complete relapse.
Here is what affected the symptom:
vigorous exercise (ie skiing)made the problem very bad
higher body temperature made the symtoms worse
The symtom also periodically included vertigo, which subsided after sleep.
Also a very interesting observation was that after a bout of low grade vertigo sometimes lasting days, the symptom would "break" and within a few minutes I felt 100% normal.
A few questions:
Is is possible that you are relapsing on the current medication?
It might also be that this is a herxheimer.
Is the symptom getting worse? and how fast? Do the symptoms appear on some sort of cycle?
Was your hypo perfussion improved after intial treatment?
Based on my personal experience I do not believe that orals alone can penetrate the brain sufficiently to effect a cure. I know that there is some controversy on this but IV is still the internationally accepted standard for neuro Lyme. Also from what I have read, with effective treatment the hypo perfussion should be improved, did you find any improvement?
however.... If I remember correctly , you had a 2 week lyme symptom cycle. This is what I had. It appears that cycle time other than 4 weeks is indicative of multiple infections or possibly a different BB strain. I don't recall what co infections you had. I had babesia and likely bart along with Lyme. Apparently if you don'd get them all, when you get rid of one, the other one increases, followed by a reoccurance of the one you initially did get rid of.
Let me know on the above as I would like to compare notes, particulalry since you are the only one that I have found that had a 2 week cycle.
Posts: 1184 | From north america | Registered: Feb 2003
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posted
I have lost track of what my herx cycles are. I should check, because there are times when I definitely am laid low or have more partial seizures (hallucinations).
I should have clarified that the "drunken" episodes of wooziness and double vision last only for about 30 - 45 minutes, not all day or for days. It has happened every day now for the last 8 days.
Today it was triggered by some fumes coming from downstairs, where the carpenters are applying varnish to a neighbor's floor. That sent me into a conniption fit, because I had asked for 24 hour notice before they used things like that, so I could prepare and be out of the building.
I did notice that when I finally remembered to take an antiseizure medication, Gabitril, which is for my neuropathy, the sensation of being looped and stupid quickly ebbed. I don't know if this was due to the med, or the fact that this would have waned over the hour. Also, this time I did not get profoundly sleepy.
I think I will try taking the Gabitril from now on when an episode happens.
And yes, David, I do think my orals have lost their effectiveness. I am going to try bicillin IM before I resort to IV rocephin. From reading Cave's report, I guess I should expect a huge bout of fatigue after the shot.
Pooch
Posts: 548 | From Diagnosed 2003 | Registered: Jan 2003
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david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
hi
I found that for vertigo, it could be suppressed with clonazapam + gravol. I don't know if this combo is acceptable but it allowed me to function during bouts of day long vertigo. I used to have to use it periodically.
Siezure drugs did nothing for me. (I tried them all) nor did it affect the pain.
Posts: 1184 | From north america | Registered: Feb 2003
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