posted
you're a sweetheart; thanks. I so hope you get to do your triathalon... I already got some calls from people with similar problems to us...gotta get the word out..
Posts: 588 | From Wallingford, CT USA | Registered: Sep 2003
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posted
Congratulation with the great article. You express so well the fears and fustrations that I, and I am sure most others with Lyme, have.
Not being able to plan for the future, because I don't know how I am going to feel tomorrow, next month or next year, is probably for me the most fustrating part of having lyme.
Posts: 6 | From Washington, D.C. | Registered: Aug 2004
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Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
High 5s on the great article. Spread the word!
Posts: 1010 | From Mars | Registered: Feb 2004
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beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
Great article.
I cycled 4.8 miles on Saturday. I was overjoyed, even though it felt like I did 20. I now count my physical accomplishments in 10ths of a mile rather than in miles. Like you, I used to consider myself an athlete. I have incorporated my plan to be athletic once again into my abx and diet plan. You can too and I believe you will be running again.
Kara Tyson
Frequent Contributor (5K+ posts)
Member # 939
posted
I printed that story out a few days ago. You can be assured that it will end up in the hands of some unsuspecting med student next time I give a lecture (I pass out differant articles).
Posts: 6022 | From Mobile, AL | Registered: Apr 2001
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posted
LWL, Great job! This is wonderful for all Lymies. ps. you're cute as a button
Posts: 267 | From Abbotsford BC | Registered: Jul 2003
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DiffyQue
Frequent Contributor (1K+ posts)
Member # 3317
posted
Former athlete here, so I know how you feel. Article helps increase awareness! Keep it up.
posted
Great article. Be thankful that you didn't get to the point where my son in law is...confined to a wheel chair and totally disable.....God certainly bless you
posted
You are a beautiful lady. Very good article. Can you tell me how you approached the paper to do this article? I would like the same to happen in my hometown paper. My mom would make an EXCELLENT subject!
Thank you soo much for sharing.
~Amanda
Posts: 688 | From SW Arkansas | Registered: Dec 2003
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
Good job Smart and pretty good combo Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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You guys are the best...thanks so much for the feedback. I approached my local paper by phone; suggested they do a story. They asked why I was vested; I told them and they decided they wanted to do the story...Several people have called already; that's what I wanted to happen. Although I've never met you guys, I thought of ALL of you through it. you all probably don't realize that you saved me...
Posts: 588 | From Wallingford, CT USA | Registered: Sep 2003
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arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
Great article! I had one written about me last summer and I was so happy to get the word out in my area. My article ended up being on the front page of my local newspaper. It's so great to be able to share our stories so maybe other people won't have to suffer as long as we did before figuring things out and getting proper treatent.
Way to go!
--Annie
------------------ ``The best way out is always through.'' -Robert Frost
Thank you so much for sharing that article and your photo.
I really connected with your story...I have had a very similar experience.
My biggest challenge right now is getting help. Like you I look very healthy. I have little to no support and live alone. It is so hard to convince people or tell people how sick I am and how hard it is for me somedays to even move. I even have a hard time getting the Dr. to schedule my appointments in the afternoon because most mornings I can't drive.
I have printed out your article and have hung it on my fridge. It makes me feel less alone...so I thank you for that.
Joop
Posts: 44 | From Vancouver Island, Canada | Registered: Apr 2004
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posted
Sarah, Thanks for passing your story along and getting involved.
My 14 yr. old son got Lyme when he was 6 yrs. old and it took almost 4 years to be diagnosed. He's still battling it.
I just sent him a copy of the article. I hope that one day he'll connect with another Lymie...so far, he's not wanted to, but I think it would help him if he didn't feel so alone with it.
He's very social and he has good friends who have stuck with him, but no one who can really relate to all of the difficulties and suffering.
You and other young people with Lyme who are speaking out can and do make an enormous positive impact!
posted
I'm sorry-I accidently sent it without putting anything in here-that was AWESOME. I danced for 9 years, did gymnastics for 3, and then did cheerleading-which is where I hurt my foot-and everyone though I was lying-then everything was okay for a while-and I actually was running at school about a mile every morning-then it all came back-although in my whole right side not just my foot-between God, my best friend Erin, and the Dr. who found I had Lyme and my family and friends who support and understand-they don't fully understand but it's TERRIFIC that they are trying-I have been saved to live on and tell others as well-just wish I could get the chance to put it in papers near where I live-it's spreading so fast around here-in VA. Email me or keep me posted on your situation and feel free to ask questions from me-I'm only 21 and supposedly got it when I was 17-so I know how you feel about seeing doctors and what I always got was "it's in your head" or "your faking"-great doctors huh?? well thanks for that inspiration to know someone out there is still young with it and trying to show the world!!
posted
You're a great spokesperson--you look very serious, grounded, and collegiate, not the sort who would make something like this up.
Though unfortunately, we've probably seen a lot of the same doctors in this area, and knowing what they must have said to you (as opposed to just "missing the symptoms") you are to be commended in your restraint when you were asked to describe how they treated you.
posted
Congratulations on getting your story in the paper, and they were cooperative about it. Yes, you are a truly beautiful person inside as well as outside!
I too had my story printed Aug. 7, 2004; I'll have to find it on another board and print mine/and the co-chairs here. I worked for 2 months to get my fibro/CFS story printed and then dx 2 wks. prior to publication with LATE STAGE lyme.....misdx for 34 years and 40-50 drs. later! Betty G.
Posts: 1 | From US | Registered: Aug 2015
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posted
lifewithlyme! Wallingford is my hometown. My boyfriend was recently diagnosed with Lyme and my dad and I have many a debate on treatment and whether or not it's truly Lyme. He cut your article out and gave it to me as kind of a peace offering; as if to say, "alright, I finally believe you, Lyme is terrible and it does truly mimic so many other diseases." Thank you so much for contacting the Record-Journal to share your story.
Posts: 1 | From CT | Registered: Aug 2004
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posted
kgrrl-I'm so glad it has helped; that's funny that you're from Wallingford too!
Posts: 588 | From Wallingford, CT USA | Registered: Sep 2003
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posted
What a great article. I felt like I was reading my life story... except I am not and never will be a runner. LOL There are just too many people out there afected with this disease and it is just so frustrating. I really liked your quote at the end and plan to make a poster of it.
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