posted
Yeah I had the CC- they were more prominent when I first started to see signs of illness - now they are a lighter red color. what exactly is cfids??
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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posted
Are these crimson cresents something I should be worried about???
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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posted
According to long term research. Most people with cfids/Chronic Fatigue Symdrome/Now known a mylagicencephalitis.
This is disorder where overwhelming fatigue hits. No matter whether you sleep or not.
Fatigue that can actually hurt so bad.
It is not the best thing, just adds 1 more infection. Whether related to lyme or co-infect. Not sure. It doe`s have mortalitiy rate.
Cher was in bed 31/2 yrs. for it. Then she went ele natural. Said Sam-e helped her. SHe still suffers from it. Takes coach with trailor & big bed if she is trying to work.
You know she could have called God for help with her money. Still was in bed for 3 1/2 yr. It is known to go into remission all of sudden.
I just got med article yesterday. They proved gfids/ME. It is real, for the doubting doc`s.
Some are totally bedridden..
Posts: 746 | From Clearwater/fl/Pinellas | Registered: Jun 2003
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posted
My fatigue even with lyme disease hasnt been all that bad. Im starting to feel better with the doxy- but the fatigue was one of the first things that disappeared. Im still having my ups and downs of course, but I guess we'll just have to see. thanks for all the info
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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posted
im confused, does this mean that its definitely not a lyme disease thing?? I dont know Im kinda worried now. I noticed the crimson the day i noticed I was feeling bad. 2months ago
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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posted
Ive read soo much on chronic fatigue-- how can any doc determine whether its CFS or lyme? The symptoms are near identical- If I didnt have the rash on my person- I would have been thinking thats what it was that I have. Anyway, this has been a day full of venting- I hope you can excuse me.
thanks for tha info chime
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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Tincup
Honored Contributor (10K+ posts)
Member # 5829
posted
HA! You are a funny girl!!!
I was distracted while writing the reply yesterday and had to stop.. and wanted to add today....
There is a study... published yet??? .. or on the way?? Anyhow.. I heard of it last year.. from the doctor who did it..
They did biopsies on tonsils.
Over 20 of them if I recall.... after they were removed, of course.
ALL of them were found to have spirochetes in them.
Sooooooooo...
And keep in mind...
My cc's were there.. but were clear after proper treatment.
Hope this helps!
And yes.. I miss Florida. Especially since my "little one" is now there. He is helping with hurricane stuff on Sanibel Island.
Hope you got some sleep! AND enjoyed your company!!
posted
Tincup-- sometimes I think you are this websites personal Jesus- The worrying Ive been doing lately is the worst. Anxiety anxiety anxiety. Sometimes I can just read what you write and feel a thousand times better.
chime
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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posted
Hi I know crimson crescents are supposed to be indicative of CFS in all the literature by CFS docs...but they are actually markers of when your Lyme is active according to Dr B.
I only developed permanent crimson crescents when my Lyme became full blown and they are always really noticeable now.
Posts: 37 | From Whitehead, Northern Ireland | Registered: Feb 2009
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lymiecanuck
Unregistered
posted
Interesting post. I can swallow lots of pills at once now too, I thought it was all the practise, but now that I think of it i used to have a lot of problems taking one large vitamin without gagging.
Have to keep an eye on this. I don't know what crimson cresents are but my left tonsil has been enlarged since I had the worst case of tonsilitis ever about 6 months after being bit by lots of cat ticks, 15 years ago.
Interesting that they found bb in the tonsils, this is the side that gives me all the trouble. The left side of my head and the right side of my body. When sick, that side of throat always hurts more and that eye is the swollen one that barely ever goes down to normal size. When the ducks look in my throat, they always laugh to see how enlarged it, yeah, real funny...assh***s.
Tincup, you do have a talent to write great posts, I love reading them. Trout's pretty good too. Lymiecanuck
[This message has been edited by lymiecanuck (edited 29 August 2004).]
[This message has been edited by lymiecanuck (edited 29 August 2004).]
posted
I'm so glad to know I'm not crazy! I noticed this about 8 months ago after being told i didn't have lyme anymore but had developed chronic fatigue and possible lupus.
The nurse doesn't mind doing strep test on me at all. You could stick the swab clear down my throat and not even a flinch of a gag reflex.
My tonsils are also huge and a bright red to purple color. When i told this to my mom she thought i was crazy.
Now I have proof i'm not. Well... enough proof for me anyways!
Posts: 53 | From Nct. Ohio | Registered: Jun 2004
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by Kerryblue: OK> Do you have prominent, what is called Crimson Crescents??
Suppossed to be indicitive of cfids/ME.
Where exactly is this red or crimson crescents located ??
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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heckyeah
Frequent Contributor (1K+ posts)
Member # 603
posted
quote:Originally posted by Kerryblue: Do you have prominent, what is called Crimson Crescents??
Yes. Both my fiance and I do and we both have Lyme... of course after being told we had CLASSIC CFIDS/ME (and me FM too) for many years.
Suppossed to be indicitive of cfids/ME.
Yeah... so they say. Not true though.
Also I have no gag reflex. Used to gag really easy.
Before I finally got treated for Lyme I was dealing with dysphagia. My ability to swallow would almost totally disappear for days and I could barely swallow water without choking on it. If you lose your gag reflex I would assume it is somehow related to those same nerves. Thank God I got diagnosed and started treatment for Lyme and the co-infections.
Jen
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[This message has been edited by heckyeah (edited 30 August 2004).]
Posts: 1082 | From Upstate New York | Registered: Jan 2001
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posted
They are red crescents on each side of your throat.
-------------------- Igm 18kDa+ 31kDa+ 34kDaIND 39kDaIND 41kDa+ 66kDa+83-93kDa+ IGG 23kDa+ 31kDa+ 34kda+ 39kDaIND 41kDa++ 58kda+ Posts: 26 | From La Crosse, WI | Registered: May 2010
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randibear
Honored Contributor (10K+ posts)
Member # 11290
posted
my fatigue comes and goes. some days i just feel like a mack truck has run over me, other days not so bad.
this is sometimes so hard to figure out.
-------------------- do not look back when the only course is forward Posts: 12262 | From texas | Registered: Mar 2007
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blinkie
Frequent Contributor (1K+ posts)
Member # 14470
posted
I have them. They also get lighter with treatment but have never gone away. I ahve a lot of sore throats and a swollen gland on the right side.
Posts: 1104 | From N.California | Registered: Jan 2008
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Dawn in VA
Frequent Contributor (1K+ posts)
Member # 9693
posted
Yep, count me in on the CCs.
As some of you may know, I used to work with human CFIDS serum samples under the scope, but even so, never myself got EBV or HHV6 until "the bite".
I also have an odd small "lump" near my right tonsil. I've asked my LLMDs about getting it removed for histology, but both have been rather ho-hum about it. Got it the same time as the CCs, right after tick bite #1(or 100?!).
-------------------- (The ole disclaimer: I'm not a doctor.) Posts: 1349 | From VA | Registered: Jul 2006
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posted
When I first got lyme, I had the WORST flu ever!!! Thats how my lyme started out, and since then, i have had a red crimson just like you described since last Nov lol. Docs always comment on it. Just means there is an active infection.
-------------------- Stephanie, University Student.
Ehrlichia [POSITIVE] IGG/IGM AB [H] 1.49 indexLyme AB interp. EIA [A] POSITIVE IGG P93 AB [PRESENT] IGG P41 AB [PRESENT] IGM P41 AB [PRESENT] IGM P23 AB [PRESENT] Lyme IGM WB interp. [A] [PRESENT] Posts: 145 | From Idaho | Registered: Feb 2010
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