LymeNet Flash: Ketek for Lyme

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Ketek for Lyme

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Topic: Ketek for Lyme

solsearcher
LymeNet Contributor
Member # 4482

posted

I just finished 12 weeks of iv Rocephin. My LLMD is now starting me on Ketek.

Has anyone tried Ketek? What kind of results did you achieve, good or bad?

Thanks,
Scott

Posts: 112 | From St. Petersburg, FL USA | Registered: Aug 2003 | IP: Logged |

Samantha
LymeNet Contributor
Member # 3198

posted

Hi Scott-

My daughter who is 23 has been on it about a month. She had done IV for a while. I think it is helping her cognitive issues and pain.

There have been other people asking about Ketek. YOu may want to do a search.

Good luck to you!

Samantha

Posts: 193 | Registered: Oct 2002 | IP: Logged |

solsearcher
LymeNet Contributor
Member # 4482

posted

Thanks Samantha. I tried searching this site, but I never get any results. I can't imagine what I'm doing wrong. I search on the keyword 'ketek'.

Posts: 112 | From St. Petersburg, FL USA | Registered: Aug 2003 | IP: Logged |

Lishs mom
Frequent Contributor (1K+ posts)
Member # 2344

posted

My daughter is switching to Ketek also. She has been on it a week, and we dont see a lot of difference, she did major herx with jaw pain, and knee swelling.

From what our doctor said, it is to have a better permeability in both joint tissue and BBB. It can maintain a higher concentration in those areas, and addresses the cystic form as well.

It has been used in Europe for nearly 5 years with excellent results for other hardy bacteria. Some european lyme patients have reported excellent improvements, but there is not official lyme study at this point that I know of.

Posts: 1918 | From Central, Oregon | Registered: Apr 2002 | IP: Logged |

Mathias
Frequent Contributor (1K+ posts)
Member # 5298

posted

Up.

Posts: 1250 | From New Jersey | Registered: Feb 2004 | IP: Logged |

Green Darkness
LymeNet Contributor
Member # 985

posted

Soul: Do I search ; I am now taking Ketek--not sure what it will so. Just started it,however, I did a search and got 7 pages of printed info on it. Seems to be helping others.

Posts: 560 | From PA | Registered: Apr 2001 | IP: Logged |

solsearcher
LymeNet Contributor
Member # 4482

posted

I was searching the wrong way. My bad. I got a lot of hits when I went back and searched the right way. Thanks.

Posts: 112 | From St. Petersburg, FL USA | Registered: Aug 2003 | IP: Logged |

liz28
Unregistered

posted

IP: Logged |

annettsky
LymeNet Contributor
Member # 5670

posted

hello everyone,

went to my LLMD yesterday and he is starting me on ketek and he told me to be ready for the herx its bad, so i am waiting does this only come in oral form or is it available in iv form? i will let you know how i do.

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waiting and praying for a miracle

Posts: 106 | From south western new york | Registered: May 2004 | IP: Logged |

ponytail
LymeNet Contributor
Member # 36

posted

Dr. J started my kiddo on Ketek about 3 1/2 weeks ago. She's been tolerating it okay but, beginning yesterday . . . BAD headache and this morning stomache ache and she said she feels like "LEAD".

I'm thinking maybe herx happening which - though bad for her "I'm trying to just survive each day of ninth grade" self, it could in the long run be GOOD. We are hoping and praying!!

He indicated no need for Flagyl w/ this med as it can address the cyst form too - have ya'll heard that as well???

Good luck to everyone!
Sherry R and Katie

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Posts: 704 | From Huntsville, Texas | Registered: Oct 2000 | IP: Logged |

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