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» LymeNet Flash » Questions and Discussion » Medical Questions » Is Lyme suppose to feel like a drug trip/psychosis....

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Author Topic: Is Lyme suppose to feel like a drug trip/psychosis....
BarelyBreathin
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I just started to take doxy, a low dose for 5 days then began having pins and needles all over body so I stoped taking it for a small break, its been 2 days now. I woke up this morning feeling like Im still in my dream. I have had brain fog before and feeling outside my body n all, but this is like im really going nuts, i have spcey tripy thoughts, cant figure out how to get from room to room well, zombified like im doin the thorazine shuffle. I dont think Ive taken near enough meds to cause a real herx that would lead to this. Maybe its just the lyme progressing? Ive alway had bad neuro symptoms, but at times I forget where Im at in my own house, and Im really scared. Feels like i might brake down eventually in go into psychosis or a vegitative state. I think maybe I should start my meds again today, but to herx on top of how mentally screwed up I am is terrifying. Ive also become paranoid. Its crazy Ive never been this bad before. Im afraid to eat just about anything thinking it may make me sick or something. Its just crazy. Im afraid to drink out of cups with out rinsing them several times for fear of digesting any left over soap. Im afraid of my vitamins at times. Its just so crazy. I know its crazy but yet I cant stop it. I have panic and anxiety all night, Bad! I are salad and it tasted bitter and I immediately spit it out because I was afraid it might be bad or have chemicals on it. Its crazy and I cant stop it even though I know its crazy. Give me Pain, Ill deal with pain but to lose my mind is whats unberable.

BB


Posts: 158 | From Vancouver,WA 98682 | Registered: Aug 2004  |  IP: Logged | Report this post to a Moderator
3greatkids
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Oh, BB I was wondering how you were doing.You just wrote my entire life with Lyme!!!

This is possible with lyme and with treatment...you will slowly come out of that nasty stuff....but please do check in with your Dr. for he/she may be able to add something to help with your lyme journey and make it a little bit more comfortable.

I know I had days when I suffled around the house with my slippers on in my robe and my kids said...MOM get a grip!!!! I was trying but the FOG was so horrible and would not and did not lift...until one day slowly I seemed much clearer and now I can not do want I need to do because reading is such a TREAT...I cannot put books ,mags..newspapers down.I once could hardly read a headline!!

Hang in there BB..check in with the ole doc and if you need an extra med to help with thes issues...talk and see if anything could help. It is not for the long term.Take care ..better days ahead for all of us.


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TheCrimeOfLyme
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Before diagnosis, I made the mistake of telling a doctor " I feel like I took vicodiin and drank a six pack" to which he replied "well, did you?"

Not ALL lyme patients experience this, but I have and many many otheres have.

Its not fun and eventually, with treatment, it will go away.

hang in there


Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
dullchime
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the neuro symptoms were bad at first, then progressively worse for weeks. I sat through a whole family dinner with my parents and didnt say 1 word. And Im a motor mouth!! I was a vegatable. Loud things scared me, I couldnt eat, couldnt sleep, watching TV made me sick. I kept thinking I had some crazy disease and didnt want to be near anyone. (yet I didnt want to be alone) I'd call my wife and tell her I loved her 6 times a day. ---and yes Ive done Acid in my day and this felt just like it--- but never ending. vision destroyed, seeing double, people talk to you and it takes you twice as long as usual to understand what they mean. Horrible- I know what your going through and you just have to be patient. eventhough each day feels like a week. Lyme has a cycle for everyone. BUT- from what I have learned, its better to have suffered rather than just get better quicker-- that way you have a better chance of beating this for good. I dont know about you but the only thing that really helped me was listening to music. It helped me escape for a little while. God knows we cant really drink, it makes the fog worse!!
anyway, hoped I helped.


chime


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3greatkids
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Hey dullchime..my husband has watched me this past year and more...all the crazy stuff I have done and not done...and says in a very sweet way "You must be tripping!" Only way to describe this stuff sometimes.

I know, not a good thing to say around the kids,we don't but that little phrase says it all...that's how we feel and want it to go away!!


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RECIPEGIRL
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Hi BarelyBreathin,

When you said Doxy that kind of explains things.

Doxy passes the blood brain barrier at higher doses at about 400 mg daily. It's hitting your brain and your brain is on overload.

In can cause intracranial pressure, so hopefully others will stop by & help you more than I can.

Be sure & call the Doctor when you're in doubt. I would want something like Klonopin (anticonvulsant) which I take.

In my amateur opinion it calms the brain down & you can start to think clearly. Start on low dose though because it can make you sleepy.

Klonopin can be taken at night to sleep, but it stays in your system a long time (long half-life) & will still be working when you wake up.

I've taken it a long time & yes it's addictive, but my brain's broken anyway, so what the heck. (I've got to have some life---with a working brain)

(Doxy also treats Erlichiosis which I don't know if you have & that may be irrelevant.)

It sounds so lame to say, but drink fluids to dilute side effects.

Try to get someone to get you some liquid Magnesium Citrate $1.12 from Wal-Mart and take minute amounts throughout the day 2 hours away from Doxy.

This stuff is so absorbable that it works immediately. Dry mineral capsules do not absorb like this at all.

We try to keep both kinds on hand for headaches, for calmness & to overcome the magnesium deficiency that Lyme creates & that ABX creates, as well.

ABX will not fix a magnesium deficiency.

I learned that Lithium, a mood stabilizer, acts to retain magnesium in the body. (Gosh, why not just take magnesium?)

Forgot to say the Mg. Citrate is found in the laxative section, so you need to take small amounts without going into diarrhea. (you don't want to lose your electrolytes)

What is small amount? L/4 teaspoon or l/2 teaspoon. I don't tend to have diarrhea so I know what I can take. Everyone is different.

Be sure & get some Vitamin B in your system to quieten the nerves.

The brain is mostly fat so try some fish oil capsules, coconut oil, whatever your favorite is. These essential fatty acids make a huge difference in brain function.

See if anything here might help you. I hate to see you suffering so------your doctor can probably help the most though.

Take Care,
Jan


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Lymelighter
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BB, yes, this is the worst part of chronic Lyme. Makes you feel really stoned, but you're not in San Fran 1968, at a Jimi Hendrix concert.
Posts: 1010 | From Mars | Registered: Feb 2004  |  IP: Logged | Report this post to a Moderator
minoucat
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BB, I was searching for info on another topic (levaquin) and found this post about doxy -- good discussion about pros, cons, and what it does.
http://flash.lymenet.org/ubb/Forum1/HTML/014003.html

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beachcomber
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You are not crazy. Well, maybe temporarily. I used to sit in a room full of people and not be able to get a grasp on the conversations around me - couldn't participate. Loud noises made me jumpy, even my sister's voice on the telephone. My panic started when I could not get from point A to point B without writing down every step of the way, like a recipe. It freaked me out. I stopped eating when I had several episodes of hives. I thought I was allergic to everything. Doxy really made me feel edgy & scared.

With progressive treatment I have come out of that strange world where I was not sure if I was losing my mind. It took a long time. I only lasted on Doxy for 5 weeks. My Lyme symptoms got worse and I tested much more positive after 4 weeks of the Doxy. It's a good drug but, I think it really brings the Lyme out of hiding.

Maybe your MD can switch abx. Drink water and be sure to eat. My fear of eating made things worse. You need nourishment to get through this.

Hang in there.

Bc


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SunRa
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BB - youre not alone. You described my lyme life perfectly. Its terrifying. I was a very grounded and stable person before so I can confidently say thats its from Lyme. The only people I can explain it to are people like you who have it too, or like others mentioned, to people who have done hallucegenic drugs.

Xanax sometimes helps. It wont stop the trippy feeling but it helps me not panic about it.

IV Rocephin and craniosacral therapy have also helped a lot, but its still one of my worst sx. When I herx I always think I'm gonna end up in a psych ward, but some gentle detoxing picks me up and makes me feel a bit more grounded.

I do think a lot of it is caused by the toxins the bacteria release, so try to flush them out any way possible. things like activated charcoal, chlorella, epsom salt baths, dandelion root tea, lots of water, etc may help. look into heavy metal toxicity, dental toxins, yeast, etc.

Most people and even drs dont understand it...for ex, my family thinks its "cute" that all of a sudden I am scared of the dark again, like when I was little. But its not just a childlike fear of the dark, but night terrors, severe panic and paranoia, sleep paralysis, etc...and the monsters dont go away when the light comes on.

I know people will just think I'm nuts, so I try my best to hide these sx and deal with them alone, but the whole time I feel like I'm being tortured by my own brain and its truly terrifying to go through.

I'm so sorry you are suffering with this too. Stay strong! Crime says it gets better so I guess we just have to trust her on this one!


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BarelyBreathin
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Thank you all so much for the support, its good to hear some of you have come out of this hell to some extent, and to you

SunRa,

I too am so sorry that you are suffering in this way as well, thank for letting me know Im not alone. I Soooooo hope you find the right med to take you out of this living hell.

BB


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Laurie
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Paranoia and obsessive-compulsive disorders: not uncommon with neuro Lyme. Just almost impossible to deal with.
Posts: 459 | From Connecticut - just across the river from the Lymes (Old Lyme, Hadlyme, East Lyme, South Lyme & Lyme) | Registered: Oct 2000  |  IP: Logged | Report this post to a Moderator
lymiecanuck
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When I first got sick at 17 it was mostly psychiratict/neuro.

I had hallucinations where I thought i heard snakes. I was scared of my own shadow, like I developed schizphrenia overnight.

I thought too, thought I was having acid flashbacks can I had done it before too. It is not nice, hang in there.

My neuro exp. are different now, pain, fog, vegatative states which have passed thank god. Magnesium really helped clear my head when I was having a bad trip last month for about 3 weeks when I felt like I had dementia.

Deep breathing and keep telling yourself reassuring phrases, like "peace is with me".

The mind likes to place tricks on our brain, but if you keep doing it over and over when feeling overwhelmed it will take affect.

Hope you are feeling better. I would say zanax as well, problem is can make neuro symp. worse as far as concentration goes, it did for me anyway.

Lymiecanuck


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lymiecanuck
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Yeah, make sure you eat. When i was 17 I was so freaked out by what was happening and such a vulnerable age, it goes right for the brain during puberty, i truly beleive this. Anyway, i locked myself in my bedroom and wouldn't come out and was starving myself to death for 2 weeks, barely drank anything, almost died.

When I came out, i was 80 and lost half my hair and I never felt right after that.

Was terrified my parents would lock me up in psych ward and refused to go to hospital and knew nothing about lyme at this time, but what I have learned the last year I know now what it was.

Doxy was hard on me too. I had the cranial pressure people talk about. It was tough and had to stop. I could feel my brain was squishing. Not everyone can tolerate it.

I really think it depleted my mg levels and I wasn;'t taking proper mg at the time.

HOpe you see improvements soon.

Hang in there.
Lymiecanuck


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lymiecanuck
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deleted double post

[This message has been edited by lymiecanuck (edited 10 September 2004).]


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sickoflyme
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Dear barelybreathing,
you described my past so well, always felt that it must feel like when you take drugs and are strung out, never did that but it felt like I was outside of my body connected by a long tube that caused brain lag, like jet lag. I also would just a start on abx, cutting pills in 1/8 and trying to work my way up to even a 1/2 pill 2x a day, but always herxed so bad I never seemed to be able to complete any treatment.
This went on for two years, I was sick of being sick, notice my name??!! When you feel better you have to go back on abx and you know you will herx again,then when you are better, you have to do it all over again.
I finally went to a new and I mean new doc here in Ludington. michigan who said he was open to help from Dr. C and I told him about problems docs have w/treating Lyme. He said , well I wouldn't know that as I have never treated anyone before , and no one is going to tell me what I can or cannot do.
I just had my 7th out of 8 Bicillin shots and this last week was so unbelievable because I had no major herxs. I had 2 trips to ER in last seven weeks, they know me by now!
I had unbelievable abdominal pain, nausea, could not eat, severe brain fog, so disconnected!. Terrible headaches, eyes burning, pain in knees, and back. All the regular stuff. My husband can see what pain I have been in and many times I wanted to throw in the towel, even was Halucinating, or maybe it was a vision from my indian ancestors, but I alaways said , well, just think of all the Lyme I killed that time!
I never realized how much Lyme was in me. I have a very athletic strong body for a woman and especially at my age, 65. I never stopped unless the fog or vertigo made me get bed rideden. I was bedridden in January, 2001, and had a heart valve replaced in June of 2002, aortic stenosis, a bicuspid valve made worse by Lyme. I worked my way bak with exercise. I am part Indian and a fighter!
Exercise such as stretching is vital ,even when sick.
The tip I have for all of you is to get two tennis balls and tie them in a sock, put under your head, just at the point where your cranium eds just before neck starts, lie down on them and your neck will slowly relax those muscles and get the brain the oxygen you need. It also helps to take a deep breath and hold it then release by blowing out. It sends extra oxygen to oxygen deprived muscles, and guess what the brain is? A MUSCLE.
I have seen a therapist all summer, doc sent me and medicare pays. They do things like energy work and cranial and sacrial release, showed me stretches that have strengthened my inner core, strengthened my stomach muscles. If I had not gone to her when I was doing this treatment i don't think I would have made it. I did it so whenI get rid of the Lyme ny body will be in better shape and I can start with weights to bring my strength back.
Try Detox tea by Yogi available at health food store, it taste good. I also bought stomach tea and sometimes mix them, and drink LOTS of water to flush. Most of all, FIGHT this! TO THE END! I had a Kahuna on Maui tell me in spring of 2001 that I would live near Sedona, AZ and I would be cured of Lyme in August. He just never told me which August.
I started treatment on July 30, this summer and had my last big herx on last day of August. We lived on Maui at that time & I never dreamed I would ever leave there. After 911, my husband was laid off and we moved to guess where?, Arizona in winter and Michigan is summer. We live in a motor home.
Keep your chin up , have your family read about Lyme so they know you are not nuts! I though that so many times too, remember, when we give up, the Lyme wins, Jane
BB[/B][/QUOTE]


Posts: 17 | From out west & up north | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
liz28
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Yes, but if you take every anti-inflammatory you can, you can reduce the neuro symptoms. There's a number of posts on this subject, but here's some ideas to start with:

Celebrex
Bextra
Bromelain
Theanine
Goldenseal
Coptis
Lecithin
N-acetyl cysteine (NAC)
TOA-free cat's claw (also called samento or saventaro)

Also, it sounds like you are herxing, which makes the neuro symptoms a lot worse.


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RECIPEGIRL
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BB - you got some great advice here.

liz 28 - I printed out your anti-inflammatory list to research------loved it.
Thanks.


Posts: 602 | From Burleson, Texas, USA | Registered: Jul 2004  |  IP: Logged | Report this post to a Moderator
   

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