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Lyme Disease Help
http://www.wildcondor.com

I couldnt ride elevators or nothing, I was so woozy in my head. I got alot of neck and head pain and alot of eye pain on it while it did its job, but the movement stuff was amazing.

Hang in there. What dosage are you on? I was on 600 and had to back down to 300 cause I was constantly on an elevator in my head.

Jodie

I guess my point is I am not yet on treatment and feel this. Boy, I wonder what treatment will do!!!

We are always so alike in our health saga.
Thank you for making me feel sane again by saying its probably the Rifampin. Its making me so weird in the head. I hate this!
I feel like I have been hit by a 2 X 4 and seeing stars except I am walking around. Its not really a dizzy feeling, more like mentally warped and woozy, like I am on some narcotic.
I hope it calms down. I am only on 300 mg of this stuff! I see my doc in a few days thank god.

The worst is I just pretty much snorted and entire capsule of Rifampin accidentally. I swallowed it without food 300 mg as normal. Then I had reflux and the capsule came back up into my esophagus and popped open and the powder choked me and went up my sinus cavity, holy panic! I blew out orange powder and junk out my mouth and nose for 1/2 hour and it still hurts.

Please tell me this bizarre brain symptom will go away. Anyone else have this?

The first two weeks were actually alot worse than the third and fourth then it calmed down alot. IT came to the point that taking it was like taking water for me but it still helped.

I loved my rifampin.

After the brian crap, I got ALOT of lung herxing, which didnt feel good at all but was a huge relief in tradeoff.

You've helped me so many times.

I feel bad making light of what you're going through but maybe you've found the answer to our problems.

Instead of swallowing our meds, maybe we should be grinding them up and snorting them. 8)

I hope your treatment with rifampin ends up being as positive as Jodie's.

BTW, I think I've gotten that same feeling whenever I get overheated. It's happened for years. It's almost as if I'm going to pass out but don't.

Take care,

Thanks for describing that so well - I have had a symptom like that on and off since about 1988 - like a whoooooosh in my head similar to a very fast elevator right.

It only lasts a second or two for me, but during that time I feel like I'm about to lose consciousness.

I have tried to tell docs in the past, but could never describe it beyond headrush, which wasn't quite describing it well.

When this happens, if I'm sitting (only has happened sitting and lying down so far - I have to sort of grab my head (not sure why, but it's like a reflex).

I know you've been getting this (or a similar sx) on Rifampin, this is just part of my sx list regardless of abx.

I combined 2 descriptions of peoples'symptoms on this thread. They are so alike....and exactly what the neuro stuff has been and is all about with me. Was life stopping for the first seven months, but now easing up with antibiotics.

I think this is a real and common lyme neuro symtom, not caused by the antibiotic, but relieved by the antibiotic.

Quotes: 1. "Really weird and annoying woozy feeling in my head whenever I move my head or eyes my head feels weird like I am being put under anesthesia or something. Movement is really weird annoying feeling and brain fog too."

"2." Sometimes during a BIG flare-up that is the first symptom I notice. I get pressure in the right side of my head, by my eye. Then I get the dizzy/woozy feeling. I have had it so bad that I could not look up or even reach for things up high. Also, if I hit a bump in my car it would make me dizzy. I cannot even swing with my kids. I have also noticed that if anyone puts something close to my face I get that feeling.Its not really a dizzy feeling, more like mentally warped and woozy, like I am on some narcotic.

Does this describe the neuro symptoms of other lymes out there? It is so exactly right on with what I experience, but said more accurately than I could have. I wonder if it is typical of most neuro lymies?
Peggy

It's like a painless pressure in one area of my head that will sometimes travel across my head and leave me disoriented. It can get "stuck" like that though for hours.

I usually have difficulty concentrating and major short term memory at the same time. I also have difficulty with left/right orientation at the same time sometimes.

TOTAL WEIRDNESS! "Wooshies" has become a "household" word now I've had this before and during meds.

Well, mine may be different from what you're experiencing, but at least you know you're not alone in weird, hard-to-explain brain symptoms!

I'm not sure if it's anything like what youre describing, but I thought of your post when I read it.

I forgot to mention that Rifampin crosses the BBB very easily. Im sure you know that, but if you dont, that may be why its hitting you so hard. Its
used for a certain type of meningitis, so it definately gets up there.

I hope you start to feel better soon

That "party in your head" feeling.. without the party... STINKS!

The work I do with the chiropractic neurologist seems to help that quite a bit.

I don't know if this will help... but.. maybe try it?

Look straight out in front of you.

Put the tip of your finger directly out in front of you.. about a foot or so from your face.

Slowly move the finger to the right and watch it with both eyes.

Repeat 3 times.

If that makes it better.. fine. If that makes it worse... try going to the left instead.

You may get some relief.

If that doesn't help....

Stand upright...

Turn your head gently to the right. (You want to have your chin lined up with the center of your right breast.)

Gently lean your head back from that position so your chin is pointing upward.

Hold that position for about 10-15 seconds.

GENTLY lower your head down and bring it slowly back to facing forward.

Again.. if that makes it worse.. do it on the opposite side instead.

This opens up the ventricles in the front of the brain and makes them do better.

My guess is the Rifampin triggered it... like others have said.

Not that I've taken it... but I have seen lots of folks here with "head" problems like you describe from using Rifampin.

Hope it settles down soon!!!!

I still get these sensations but not as much. Next to extreme fatigue it is my worst symtom.

Just thought I would let you knoe and maybe its just not the actual med. that is causing it maybe its just a stronger med causing the stronger reaction?

I am not a Dr. I am very new at all of this but just I just thought I would let you know that I am on a different med and expereince this as well.

:-(

I also added in N-acetyl carnitine 1500 mg combined with SAM-2 400 mg taken together once daily and the improvement came overnight. Just a note to all that not everything is a herx, and these drugs can increase the effects of each other.
Be careful and good luck, and thank you for all the help and advice.

WildCondor