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I have been using this site for a week now. I have met some great people and I am thankful for it. I am sorry to say but I am really starting to get disappointed. I have been reading up a lot on LYME and all the test and treatments available today. I talked to different doctors and they all have opinions on the treatments. Then I come to this site and hell breaks loose. It seems to me that everyone is being treated individually. I think it is nice to share what kind of symptoms you are having and treatments you are on but when someone is telling me what stage of lyme I am and how I should be treated it is definitely not appropriate. If anything I believe it is really messing up new diagnosed patients. I think only me and my doctor will know how long of a treatments I should have. She listens to me and is willing to work with my symptoms. Just because I have been bit three years ago it doesn't mean I am in a late stage. I have been totally healthy until 5 weeks ago. Also I have talked to so many doctors last week and my PCP was the most educated on the disease. I am not going to sit and wait for 3 weeks so I can see a specialist and pay out of pocket when he is going to do same treatment or similar. I think everyone is different and needs a different treatment. Just because you are taking Doxy it doesn't mean that someone else should be taking that as well. There are findings that you should not be on the IV for more then 4 weeks but people are on it for 10 or more or that the bacteria can form cysts. If there was a set way on treating LYME everyone would be on the same meds. Even doctors don't know yet what is the best treatment but I have noticed that some people on this site do. All I am saying is it that your input on the disease, how you are treated and your recovery is greatly appreciated but I think a lot of you are also trying to play a doctor. At this point I am better off staying away from this site. Don't bother replying because I won't be reading it. I don't mean to offend anyone this is just my own personal opinion.
Posts: 24 | From Clearwater, Florida | Registered: Sep 2004
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