Please tell your doctor about this symptom. I understand your embarrassment, but you have no need to feel shameful. There's nothing "icky" about the urinary system!

It may be a Lyme symptom. It may not. But it's important to know why you have this problem.

I'm not saying my problem is your problem, but I share this story to exemplify the need for speaking to a doctor.

Once, I suffered with urinary frequency. I thought I might have IC, Interstitial Cystitis, an inflammatory condition. I saw a urologist. As it happened, I had a tumor. I had surgery to have it removed, and, fortunately, it was benign.

It's important not to chalk it up to Lyme and forget about it. If there's another cause, it can be addressed. If it's due to the Lyme, it should clear up with treatment. Maybe there is a specific treatment for this symptom, too.

Please keep us posted. Steph

It has continued throughout the whole process of other symptoms (far worse) appearing. I read somewhere on this forum that it can be a symptom of neuro lyme.

I told my docs at J. Clinic about it; they did not seem to be concerned. In other words I think they thought it was just another lyme symptom.

Hope this helps.
lymelady

Please see your doctor though. The last thing you want to do is backflood your kidneys or stretch your bladder cause you arent getting it out when you need to go. My daughter has neurological bladder due to NON lyme problems.

You don't want to cause other problems by not remedying it.

There are a number of reasons that you might be experiencing this problem that are easily resolved with medical treatment.

Good luck.

I have IC, and used to have some amount of hesitancy, but nothing bad. You might want to check this link on IC. www.ichelp.org

However, my IC is tons better since long term abx treatment. So for me, it was Lyme causing the problems. My biggest problem was pain and frequency.

And yes, please tell your doc about it. They are there to help you and if you don't tell them ALL of your symptoms, they will not be able to adequately treat you.

frenchbraid

But I also needed to have my Uerethra (hope that's spelled right) stretched in order for me to empty completly

and beable to have a much better flow than just a trickle!!!

It wasn't painful, in fact it has helped and I have no troubles any more. I am currently an IV (picc) and I do have to go ALL the time

but I go with no trouble. Also I before the surgery I was having chronic U.T.I. due to the trickling.....

I havn't had a U.T.I since, and that was last year.

Antwho, that's just my experience.....

Good luck

Jamie

The only thing that helped me was long term abx. Now its a distant memory. I'd forgotten this symp that plagued me til I read your post. I hope you have a good abx regimine and that this will eventually help you get to the point that you hardly remember it too.

I do want to say that it is very important that you communicate Everything w your doc. No need to be embarrassed. They deal w our intimate problems all day long. Its nothing to them. They won't even notice it as a "touhy" topic cuz it will be so normal to them.

Many lymies have urinary problems. One of my closest lymie pals stopped urinating altogethr bc of the disease and had to be catheterized.

But after hearing your story, you may want to ask your MD or LLMD if a visit to a urologist and/or a Lumbar MRI is appropriate. Many people have bulging discs and are asymptomatic. If the disc compresses against a nerve in the sacral area, it can cause urinary & bowel problems. A nuerologist and/or a neuroradiologist can examine your MRI for such issues.

My LLMD said that Lyme can affect the bowel, bladder, & associated muscles, prostate, and can affect the sacral nerves that control urinary & bowel function. He felt that these issues improve with abx treatment.

I posted something similar quite awhile ago. I believe the clinical term for what you have is paruresis. You can perform an internet search for more information.

A lot of people here have already suggested possible physical causes of this such as urinary tract infection or lower back pain. There is also a psychological component, though I personally don't see the distinction between psychological and physical.

I also suffer from this. My suffering began about the same time as my other neurological symptoms began, symptoms I now attribute to Lyme Disease (LD). When I suggested that there might be a connection between LD and paruresis in my previous post, the majority response I received was that the two aren't related. However, if LD can mimic schizophrenia, paranoia, and other so-called psychological ailments, then I don't see why it can't mimic paruresis. If paruresis really is the diagnosis, then I think LD could be a factor.

Like the others on this thread, I also recommend seeing a urologist to make sure "the plumbing checks out." It's uncomfortable, but not painful. (It's worse for a man!) I hope you overcome. It can be a socially debilitating disease. Good luck.

You do realize that your bladder is connected to your kidneys and you can literally backwash your kidneys if you arent getting the urine out, right?

After watching my 6 year old daughter not be able to pee for 6 years and have to straight cath herself every 4 hours due to a birth defect, I would never suggest someone not stick their butt up in the air!

Have you ever asked the folks at the Paruresis group?

My LLMD felt that Lyme can cause prostatitis, IC, etc, but that he'd seen and heard about Paruresis in a plethora of non-patients before he became a Lyme specialist.

I think paruresis is the condition described in this thread. There are any number of causes. My general question is this. If LD can get in the brain, is there any limit to the psychological symptoms that it can mimic? My answer is that I don't see any limit.

Of course, lacking a definitive diagnosis, no one here knows the cause of anyone else's paruresis. But the spirit of the original post was a question about the relation of LD to paruresis. I'm throwing in my two cents and claiming that there could be a relation. I don't know with certainty. But I think they could be related.