I had tremors, mostly my head and my hands. I also had facial twitching and what felt like rolling and pulsing of my arm and leg muscles. It was a little freaky. All of those have been resolved with abx, for the most part, except for some facial minor twitching when I am really tired. I would say it was pretty constant for about 16 months. Treatment for Babs. seemed to help. Have you been checked for co-infections? Also, I think some here have used magnesium to help. I take mag. but, to be honest, with all the Rx and supplements I take I really couldn't say what has helped the most for the tremors and twitches.

Someone will come along and add more.

But this is how it was described to me.....

The dammage to my brain was done already (shown up on SPECT scan ONLY) but my body would LEARN to route around the dammage and slowly the twiching would go away. This is happening. BUT during times of stress (mental/physical) your body would go back to the old routes so long as the stresses lasted.

So while I am dealing with the aftermath of Frances I am twitching a bit more than usual. But nothing extreme. Had I not been warned I could easily think my lyme is starting to come back, but I have no other sx except what was told to me would happen under stress. Actually when I get stressed it gets worse, i.e. talking to FEMA or dealing with things directly releated to the problem. When I am doing things in my normal routine then the twitching fades away.

Just something to think about.

While undertreatment the Mg did help a lot. If you have it widespread over your body, I have heard it said that soaking in Epsoms Salts helps, but I am just passing on rumor not medical advice.

Stick with it people do get better.

I twitched (fasiculations) in my muscles that could be seen by others but did not cause my arms or legs to move.

I also developed myoclonus which is jerking that causes large movements. I mostly had jerking in my hip but also in my back and wrists. I was on heavy duty anti-seizure medication and clonazepam for 4 years before I was diagnosed with Lyme.

The medication helped a bit - at least I could sleep but the thing that worked like a miracle was the antibiotics.

I rarely twitch now after 8 months of treatment for Lyme disease. I am also eating gluten free and taking supplements.

All my best,

My twitching was considered benign at first too.

Get checked for mycoplasma. My mycoplasma infection is in my CNS and it has caused me to twitch 24/7/365 for over 1 year now.

how are they treating you for that?

My twitches used to play musical chairs with me, I swear.

I had a twitch and vibration down my entire leg, 24/7 that would NOT go away.

Abx, after a year did the trick, and I finally do not twitch anymore except every once in a while especially when herxing or female cycle.

I started on Doxy, which made the twitching worse. I was switched to IV Rocephin for 12 weeks & then 8 weeks of Ceftin. They both seemed to help. I took an abx break & it all came back, especially the head tremors - non stop. What finally did the trick was Mepron/Zith combo and another round of 16 weeks of IV Rocephin. I am off the Zith and the Rocephin now, but continue on with Bicillin and Mepron. So far so good.

I am pretty sure that Magnesium also helps. But, I think hitting the Babesiosis was the kicker.

Hope that helps.

Levaquin 500 mg/d
Levaquin 500 mg/d w/Doryx 200 mg/d
Minocycline 200 mg/d
Ketek 800 mg/d
Ketek 800 mg/d w/Doryx 200 mg/d

Ketek seemes to help the most.