My first post, but I have been reading for 2 months. I only just received my positive diagnosis last week. Yesterday I started zithromax and minocin for a challenge .

Your personal experiences have truly made the beginning of my journey much smoother, including seeking an appropriate doctor and using various supportive therapies. I thank each one of you.

I implemented as many of the nutritional supplements as possible while waiting for answers : Marnie's Magnesium schedule, Samento, olive leaf, oregano oil, milk thistle, kidney cleansing teas, changed to a low carb/no sugar diet, extra B complex, freeze dried garlic, probiotics, etc because I just was in such poor health and had no understanding of what was wrong. I just recently added the cordyceps and reishi mushroom drops. Couldn't hurt in case it was lyme!

I do believe my condition stabilized due to all this and so I thank each one of you. I still was experiencing a milder form of the same problems while waiting for my appointment an LLMD

My GP had found nothing wrong, and I experienced the "alligator pit/duck" phenomenon: she said I just should go home and "heal", whatever that means. When pressed, she said she could refer me to a rheumatologist . She overlooked a swollen gland for a year, misread a lab reports, and was quite adamant in denying my direction towards investigating a parasite of some kind.

Thanks to reading everyone's experiences, I knew it was time to walk and do my own research. When you tell of your symptoms in your postings, it is so much more understandable than medical terminology. Lightbulbs go on!

When I saw Dr. J., we reviewed symptoms and all the normal lab results. Then, I just said I was there because I would believe him if he said it was not lyme. Then, I hoped he would find out what is really the problem. (obviously I am hoping he will say it is not lyme...!)

After the initial interview and exam, he felt lyme would be a possibility, and so lots of blood was drawn (and lots more......too!).

Unfortunately it came back positive for lyme.

This has been going on since June. I am looking forward to sending the old GP a packet of Burrascano's symptoms, plus letting her know my final diagnosis for her enlightenment .

I am currently in NC but grew up in CA and WA, then moved to DC, then to northwest PA, then to here. Always outside from childhood until this year.

No bullseye, although known embedded tick 10 years ago, and 30 years ago. Problems started with the weird zinging up leg and spine, progressing to skin stinging sensations, stabbing wandering joint pains, wandering bone pains, skin and tissue degeneration, had one swollen lymph for a year, one strange rash which I thought was prickly heat, and another which a derm said was dry skin (in July in NC?), teeth and mouth electrocution, etc. Oh, just the usual.......

I look forward to being able to ask questions now that I know what I have, and perhaps one day I will be able to help someone as you have helped me.

Thank you,
JRobin

Welcome to Lymenet!!!

I just started my treatment with the J. Clinic too (week 3).

Can relate to much of what you've said. I tested positive for Lyme, Mycoplasma and Epstein-Barr.

Welcome to Lymenet.

I'm sorry you are sick with lyme, but I agree with the above poster...sounds like you have done all the right things for yourself.
I'm glad you have a proper diagnosis and will be on your way to recovery. Good luck to you.

Wow it sounds like you are on top of everything and very proactive and involved in your condition.

I go the Jemsek Clinic also and used to live in Eastern North Carolina for 15 years. I live in the triangle area. Where are you located?

be wild, celebrate life, hug, cuddle and snuggle th e ones you love,

Glad you could join us here.

If you have been reading this board for 2 months-

You already know...

I always like to have someone new to pick on...

You're IT!

Glad you decided to log in and start posting.

Don't ever feel bad about asking questions. Sooner or later someone will come along that can help out.

It nice to just share your story and know others know how you feel.

I do not know if I personally would describe the supplements as proactive but I can see your point; secretly, my true motivations were major fear and desparation! How could a body fall apart so severely in one month?

Please never forget it was all of your knowledge and experiences that you posted, that prompted me to walk right out the GP's door and head for the right dr.

Breathwork: thank you for the heads up on the WA1 babesia. I return in 2 weeks and will check on it. My son is now in CA, and we went to the Mt.Shasta area last year for father/son flyfishing vacation. I was tromping through the grass.......

And Tincup, thank you for the "warning"!