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» LymeNet Flash » Questions and Discussion » Medical Questions » Epstein-Barr Virus and Chronic Fatigue Syndrome

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Author Topic: Epstein-Barr Virus and Chronic Fatigue Syndrome
trecetetodromonmetabia
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Is there a blood test for EBV or CFS? Are they the same thing?
Posts: 124 | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
zipzip
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http://flash.lymenet.org/ubb/Forum1/HTML/028265.html
Posts: 795 | From nyc | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
rosesisland2000
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www.google.com is a good place to start your search

This site explains the tests for EBV.

I don't think that their is a particular test for CFS as it is a variety of symptoms and it's a clinical judgement, I believe.

Some sites say that CFS causes EBV and other's do not. So, I would think that since they are very simular, then the treatment for each would be the same if not nearly the same.

Why are you asking this question?

Are you feeling that you do not have LD?

Be sure you do understand that having LD can and does cause the exact same symptoms as CFS and EBV...

Copied this from one site:

Definition

The Epstein-Barr virus test is a blood test, or group of tests, to determine the presence or absence of antibodies in the blood stream directed against proteins of the Epstein-Barr virus, the cause of infectious mononucleosis.

Purpose

The test is primarily used to detect whether first time infection (called primary infection) with the Epstein-Barr virus is currently occurring, or has occurred within a short period of time.

The pattern of the antibodies detected can, however, tell if the person has never been infected with the Epstein-Barr virus, or if the infection occurred in the more distant past.
These tests are mostly utilized in the diagnosis of Epstein-Barr virus-associated infectious mononucleosis when the more common diagnostic test, the heterophile antibody, is negative, or in situations where the infection is manifesting unusual symptoms. Therefore, the tests are often not needed in a situation where a doctor believes that a person has mononucleosis and the heterophile test (also called the monospot test) is positive.


In addition, Epstein-Barr virus testing is usually not needed in the evaluation of a patient who has long-lasting fatigue, and may have the chronic fatigue syndrome.

Initially, it was thought that discovering a particular pattern of antibodies to this virus was helpful in the diagnosis of chronic fatigue syndrome, but this no longer appears to be the case.

Rosemary


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ShadowHawk
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Hi Rosemary et. al.,


Rosemary, you and Tincup constantly impress me with your wealth of knowledge. Facts are extremely important when trying to figure out how to go about treating an illness and you two consistently dole out the facts.

I had an EM rash back in the middle to late Summer of 1990. At that time, I did the 10 days of abx. to "cure" the lyme and never thought any more of it. About 8 months later, I became very ill with fatigue, muscle pain, sore joints, bleeding gums, etc. The Dr. put me on abx again as precaution, but I continued to stay ill. After a couple of months of being ill, he finally did an EB titre which came back extremely high. According to the Duck, it was "off the charts". His response was to send me to a CFS specialist.

So, I started Tx with the specialist and he ran EB titres regularly. All of them came back high, but would go "out of range" on the high end when I was really ill. Eventually he also ran titres for several virii, including herpes and a couple of others. Now, the thing to remember about titres is that they only measure the immune response to these particular virii and are usually a pretty good indicator of recent exposure or infection if the titres are high. But...here's the catch...they don't show for sure that you've got the virri in your system. The only way to be positive that an organism exists is to actually find it inside you.

Since this guy was doing research in CFS, and wanted to be sure, his research group paid for the tests to try and locate any of those virii...the EB or Herpes...in my system. Funny thing is, they couldn't be found. The conclusion was that something else had triggered my immune system to respond this way. And, oh yeah, I also started testing positive for the Hashimoto's antibodies at this same time.

Now, when I look back on it and cosider all of the research I've read in the past couple of weeks, I'm convinced that I had this immune reaction as a result of the borrelia infection.

BTW, my titres for Herpes I & II, EBV, & Hashimoto's all kept coming back positive for seven years. Following that, they were negative again...until recently. My current PCP ran an EBV titre two weeks ago, when I presented him with my questions about it possibly being Lyme (He ran quite a few tests actually) and the EBV titre came back positive again, as did the Hashimoto's. He didn't test for Herpes.

I also talked to him about doing blood work to test for Lyme and he said it was pointless. He knew of the high failure rate, and considered it a given that I have Lyme just based on the past history of the EM rash. Smart fella' there, but he's still unwilling to try and treat it as he doesn't feel qualified. Thank God he doesn't think he's a god.

Anyway Rosemary, I just wanted to share with you my experience and say thanks for being so accurate with your info. about the EBV titre. I haven't spoken to a Dr. about CFS in quite some time, but you're right, my CFS Dr. concluded it to be useless in diagnosing CFS before I quit seeing him. Too bad he wasn't very aware of Lyme. Also, I have seen quite a few people remark that EBV is something other than the virus that causes mono. Again, thanks for pointing out that it is.

Paul


Posts: 67 | From Kansas City, MO | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
rosesisland2000
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trecetetodromonmetabia, are you there?

What's going on?

Rosemary


Posts: 6191 | From Arkansas | Registered: Jan 2002  |  IP: Logged | Report this post to a Moderator
trecetetodromonmetabia
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Rosesisland 2000,
I worried that I might have something else besides lyme & babesia.


[This message has been edited by trecetetodromonmetabia (edited 08 October 2004).]

[This message has been edited by trecetetodromonmetabia (edited 03 November 2004).]


Posts: 124 | Registered: Sep 2004  |  IP: Logged | Report this post to a Moderator
   

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