I am an old time lymie, and two months ago had an elective surgery unrelated to lyme. As part of the recovery I was given antibiotics for seven days. About a month later I started having lots of problems:
Forgetfulness Ocular problems Waves of excessive salivation Excessive perspiration Mood swings Eye lid twitching (contacts?) Right upper biceps had a twitch Auditory problems Nightmares Lightheadedness
These problems lasted about two weeks and cleared up by themselves. Then a few days ago I started getting aches in old lyme related spots. Like my right shoulder, right elbow, left side pelvis, and right thigh.
Does anybody think these are related? I ask this because next month on the 17th I am having another procedure.
My question is this is:
Is my lyme reactivated through the trauma or from antibiotics being introduced?
Will it go into remission again by itself, or am I in for another bout of lyme madness. any insight would be nice.
rosesisland2000
Frequent Contributor (5K+ posts)
Member # 2001
posted
IMO, I believe ANY trauma can produce Lyme symptoms to occur. I, too, had surgery earlier this year, torn rotator cuff and bone spur, which I consider Lyme related, the bone spur, that is.
I had been off abx since last August, another story and my Lyme symptoms became more pronounced. I required a whole extra month of PT in order to recover the use of my right arm, which now is about 90%.
I had LD lie dormant for years and only started presenting with symptoms after a severe head trauma from a bad fall, twice in one night, on concrete.
So, yes, what you are describing is either a herx reaction to the abx you took, or, just plain ole LD symptoms.
My LLMD describes herxs as INTENSE LYme symptoms that you've had in the past and NEW ones that you've never experienced before. So, what you are diesribing falls into either category...take your pick.
IMO, you need to be seeing a real LLMD...for to see less, will only cost you much time and much money, not to mention you future health. NOW...is the time to act and get to one.
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
If you had it it has resurfaced Sorry Well at least you didnt get reinfected through blood source.
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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Thanks for responding. It looks like my lyme has been a sleeping dog, and I woke him up. The symptom that I put in list form have pretty much gone away. I am waiting to see if they cycle around this month.
Now the aches and pains are a different picture. It seems they come around every year at this time. It was eight years ago this month I was diagnosed.
The reason roses I believe it is a herx like you expressed, is because I usually get excruciating foot pain every fall, and my foot pain is nil this year. My toesies are quite dandy this year and I'm wondering if it is because of the seven days of antibiotics.
Thanks for responding, and yes I do have a wonderfully marvelous doctor who has helped me tremendously.
Trout your concern about the blood supply is probably founded. I used to be a regular donor and an apheresis donor. They called eight years ago when I was sick. I told them I had lyme and haven't heard from them since. They were always calling me, and then just stopped. I have often wondered why, if it so benign?
TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Yes get a real LLMD because obviously the one you saw before didnt put you into remission. Insert sarcasm here.
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
quote:Originally posted by Svengali Eyes: roses,
Trout your concern about the blood supply is probably founded. I used to be a regular donor and an apheresis donor. They called eight years ago when I was sick. I told them I had lyme and haven't heard from them since. They were always calling me, and then just stopped. I have often wondered why, if it so benign?
That would be Treepatrol not troutpatrol
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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posted
Yes, my LD 'woke up' after I went on amoxycillan for an ear infection. I was OK, and then took the abx, and it was really bad. I had to go on IV and everything. That was 3 years ago, and I have been pretty much symptom free since then, but have also avoided taking abx also, mostly cuz I'm afraid that it will wake up the LD again!!
Posts: 4 | From West Milford, NJ | Registered: Oct 2004
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
I forgot to mention. My LD woke up too, after I took zithromax for an unrelated infection ( and my first in a long time- and I was healthy!!)
and boy oh boy... you can imagine my surprise. I havent been the same since!
I had been on abx before that zithromax and nothing happened, but all heck broke loose on that.
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
quote:
And CrimeOfLyme my doc is one of the sainted ones. He has been a g-d send, and has had me in a good place for a long time. B]
I was pointing out, when I said that, that I do not think it is appropriate for OTHER posters to tell you to get a REAL LLMD. Thats why i said "insert sarcasmhere"
I am sure it will settle back down. Have you called your LLMD yet?
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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I agree that Lyme/mycoplasm and it's co-infections morph and go into hiding in some of the most bizarre places. Surgery/trauma unleashes critters.
My LLMD told me that dental extractions unleashed havoc in my system when we extracted old root canals.
He forbid me to go back to the oral surgeon until I had been on his protocol for at least a month.
This is why I am interested in the bioenergetic methods of tracking down the critters and blasting them in every form...cyst, intracellular and extracellular.
However, this is NOT my expertise and I am learning and reading and listening to others report their results.
Morphing is a wonderful word for the reaction that happened to me. It was like I morphed back in time, to before I knew what was going on with me.
After being on the protocol a month, was your oral surgery experience better?
I see my LLMD about two weeks prior to my next procedure, do you think I would benefit from a few weeks antibiotics prior too,or right after this next procedure?
CrimeOfLyme I hope you are right and it does calm down by itself. And no I have not called my doctor, only because the more disturbing symptoms have gone away.
I am grateful the the seven days of antibiotics have seemed to have done something positive, as the foot and toes are not painful for the first time in eight autumns. It used to be a right of passage this time of year.
Thanks everyone who responded I knew you folks would have some good views.
Oh Maggie, that bioenergetic method you were talking about. What is that? I understand your not an expert, but I've never even heard of it. Can you give a simple explanation?
posted
While I was on the phych drugs, which none of them worked, I had the symptoms of LD. Kept telling the phych Dr. about the symptoms, he looked at me as if I was crazy.
Two years ago I was in the hospital getting a new prescription tested, the lyme symptoms came up, and boy were the prevalent. They tested me for lyme, lord and behold, it came back positive.
This past summer, again the phych Dr. put me on new meds, guess what the lyme symptoms came back. Not only that, they were between stage 2 and 3.
Can trauma trigger it don't know. Anything that plays havoc with the immune system can cause it. Right now I fell something going on with my body, fells like a cold or fue, will know in 3 to 5 days when the immune systems breaks down.
As for me, meds can trigger and aggravate the lyme.
I stopped taking the phych PR.
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Posts: 77 | From Chester NJ 07930 | Registered: Oct 2004
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