Sometimes, though, it will bother me. I dont drink milk or take anything else with Vitamin D. I HAVE noticed that drinking milk is a no no though for me. Hmpf, go figure.

They have a board you can post on for the MP.

On my new DOXY, my nerves are hyper- irritated. No bright lights & no LOUD noises. I have to stay away from TV----even hearing applause on TV is painful.

I try to stay away from Vit. D.

Not quite ready for MP plan & minocin would probably kill me right now.

All my back of head pain (meningits paini) is back. Have been living in a false sense of security for l8 months of treatment.

Check out the recent article from NY Times posted in General Support.

They released this during ILADS New York Conference to make fun of us Lyme patients.

My husband pasted it over there for me.

It'll make you mad.

Her real improvement only really began after she started the MP. The first month or two was rough, really rough, while her hormone levels were adjusting. These days, though, she is feeling better and is doing more than she has ever been able to do. We can't keep her quiet about it. She is always calling to tell us how she feels better on this program already than she did after 17 months of IVs, and she was feeling great then.

I must admit that I was skeptical about the protocol at first, but we are amazed by her progress. Based on our own personal experience, we were delighted to see ILADS make extra time for Trevor Marshall so he could share his research.

We had both begun to feel as if we were going to be "lifers" here in the LymeNet forum. It was so nice to learn and share here, and the support was invaluable to both of us. Still, at times we couldn't help but wonder whether or not anyone ever got completely well.

It's nice to see her healthy self manifesting itself so clearly right before our very eyes. Sometimes I have to pinch myself just to be certain this is not just another dream.

Regarding the necessity for avoidance of sun and bright lights, there are definitely stages to one's sensitivity towards this effect. At her very sickest, prior even to Lyme diagnosis and treatment, she can recall that a couple of hours in the summer sun would make her very ill, nauseous, headachey and spacey almost immediately -- except we didn't understand that that's what it was back then. Only now, in retrospect, can we sort that out.

At other times, when she wasn't quite so bad off, the effects of the sun would be delayed for a day or more, so that it was not easily recognized at all. Sun exposures would be stimulating and invigorating and would hype her up. The after-effects weren't noticeable until at least a day to a day and a half later, except that by then, we always attributed her symptom flares to something else instead, such as diet or an exposure to flu or a to change in the weather or whatever else we could imagine to explain it.

Next, there is the Benicar stage, when one's sensitivity to sun exposure increases significantly, but when it's still possible to get by with breaking the strict rules about sun avoidance without too enormous a payback penalty. That's when most folks try to test the limits just to prove to themselves that it's important to avoid sun and bright lights.

Third, comes the full protocol with Benicar plus low-dose minocycline. At that point, either one of two things happens. Either the person figures it out and recognizes it, or else the payback penalties are so severe for failure to be careful enough in adhering to the strict rules that the patient throws in the towel and decides that the program isn't working and quits in frustration and defeat.

About a month after stopping the D I noticed a sudden, slight improvement in sx, but my previous state has now returned.

My D tests came back as unequivocal for Th1 inflammation; my levels higher than more than 99% of the population.

I'm wearing the glasses indoors and out, everyone thinks I'm a nut but I don't care.

Hope to start Benicar this weekend, provided I get a prescription tomorrow night from my LLMD.

Since starting doxy and 6 wks. ago...benicar....I'm 200% more sensitive.

Still waiting for NOIR sunglasses to come into our local eye wear store; been working on this one for 3 months...progress like congress!

I've always worn the darkest prescr. sunglasses w/wrap around low vision plus my floppy hat over me.

In house if husband has the blinds open, I have to cover my eyes completely to go close them. We've been living in a cave for 20 of our 30 yrs. of marriage.

He has catarachts in both eyes; needs lights; me...just the opposite!

TV volume drives me up a wall even w/his earing aid.