He is now in a wheelchair. He has traveled to Mexico, Germany and the last effort was to Mayo clinic. He has taken antibiotics, chemotherapy and various other treatments. I have been encouraging him to be tested by my LLMD for Lyme, but at this point he is very frustrated with Doctors and is afraid of adding any 'new' regiman to the things he has already tried.

Not surprising that he has not been tested for Lyme disease!

In his latest visit to Mayo, they were able to pinpoint the location of his neuro problems as the destruction of the myelin sheath in the 4th and 5th vertebrae of his neck. Of course, they call his illness Multiple Schlerosis.

His concern about trying to seek more answers and try more testing with a LLMD is that nothing can be done to regenerate the myelin sheath once it is destroyed.

Please, if you have any answers or have experienced a similar problem, give me some advice to pass along to him!!

Thanks so much!

My doctor also believes I have myelin damage from several possible sources, including chronic Epstein-Barr, West Nile viurs, and likely chronic lyme.

I started using the Swank Diet (www.swankmsdiet.com) 11 years ago when I first had MS-type symptoms and they went away. I followed it somewhat loosely for the next 10 years with no problems until last fall when West Nile did a job on my immune system and everything jumped on the bandwagon.

By February I could hardly walk and was falling to one side even with a cane. I had some focal seizures and was afraid it was heading toward paralysis. I went back on the Swank Diet and strictly followed it. Within a few weeks the symptoms had lessened, but the best progress was once I also eliminated high-oxylate foods.

My neurologist will not use the term MS either...she refers to it as neuroinflammation and is very encouraging about diet making a difference.

The Bowen Research Institute told me this morning that they are starting a study on lyme disease in ALS & MS. Maybe your doctor could get him in on the study. My friend with MS is definitely going to check it out.

Here are some links that might be helpful:

Swank Diet for MS: www.swankmsdiet.com

Oxalic Acid Contributing to Demyelination: http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=A bstract&list_uids=175908

Oxalate Content of Foods: http://www.branwen.com/rowan/oxalate.htm

How Epstein-Barr virus can contribute to demyelination:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=pubmed&dopt=Abstract&list_uids=15385250[/URL]

http://eprint.uq.edu.au/archive/00001146/01/mp_ti_11_04.pdf[/URL]

The Myelin Project: www.myelin.org

[This message has been edited by janinco (edited 26 October 2004).]

Funny you should ask about this, I just read about Statins being used to treat MS patients. Statins such as Zocor.

there was just an article on this in the Readers Digest about a Dr. treating his MS patients with high doses and seeing improvement. This helps heal the harmful lesions on the myelin sheath.

I wonder if Questran would have the same effect and if that's why so many people feel better on it.

WELCOME To LYMENET

Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.

How to Search Courtesy of Danq
LymeNet Links for New Members
Newbie's Lingo

Lyme Disease Audio Network
Dr. Joseph J. Burrascano's Treatment Guidelines
CDC Website on Lyme Disease
International Lyme and Associated Disease Society

Lyme Disease Symptoms
Rashes
Co-IinfectionsThanx M

Rose's 15 Facts for Newcomers
Making the Most of Your LLMD Visit
Camp A and Camp B, The Lyme Disease Contoversy
2nd Version Camp A Camp B

Why You Can't Trust Medical Journals Anymore
Something to share with friends and family members But You LOOK Good!

Labs
MDL
Igenex Labs

Western Blot Info
FDA It is important that clinicians understand the limitations of these tests

Explaining Borreliosis (Lyme) Western Blot Tests
Explanation of Western Blot Bands
Igenex Labs on the Western Blot
Melissa Kaplan's Lyme Website Explains Western Blot
Dr. C Explains Western Blot
- Not present
+ Low
++ Medium
+++ High
+/- Equivocal = indeterminate (there, but not as intense as Low)

Drug Interactions and Other Drug Info
Drug Digest
American Medical Women's Association Tiscali Reference Encyclopedia
Herxing
What Is a Herxheimer Reaction?
What Is Herxing?
The Herxheimer Reaction

Check Diet Link Atkins Diet
Sexually Transmitted ???
Transmitted Through Sex?
Sex Question-Serious-Adult Content
Video On Demand: Blood Supply May Be Source Of Lyme Disease Infections
Good Site Canadian Lyme Disease Association
FDA on Lyme Testing
Legal Help

GreatSite
MedicalDictionary

USA Support

SupportGroups Canada

SupportGroups Australia

( No you don't always see a bite and if there's no bullseye the only way your going to be able to tell is (symptoms) and (((Maybe))) WB or lyme dot blot 3 day urine banged with abx's to free your antigens up for the test. )
See this ( . )thats the size of the larva stage tick...
Next nymph size... ( * )
Next is adult ( o ) to ( 0 )
Pretty small????? HUH

Marnies......... Ten Points Regarding Mg and Lyme Disease
In a Nutshell P1

In a Nutshell P2

Canlyme MAG

Help with Meds

Vitamins you should Know

Tests Synonyms Guide

Lab Tests Looky

http://www.townsendletter.com/May2003/klennerprotocol0503.htm

But you must get the lyme under control.

For more info see: http://www.explorepub.com/articles/kawagishi_11_4.html

The Inducer of the Synthesis of Nerve Growth Factor From Lion's Mane (Hericium erinaceus)

� Copyright 2002 by Hirokazu Kawagishi,1 Ph.D., Shoei Furukawa,2 Ph.D., Cun Zhuang,3 Ph.D., and Rika Yunoki 4; Japan & USA
(Explore Issue: Volume 11, Number 4)

Abstract

Nerve growth factor (NGF) is closely related to Alzheimer's dementia, and studies have suggested that the disease may be prevented or its symptoms may be improved when NGF is given into the brain directly. However, since NGF is a protein it usually cannot pass through the blood-brain barrier. Recently, researchers have targeted on the substances that could pass through the blood-brain barrier and induce NGF synthesis in the brain. Some compounds with lower molecular weight have been found to have such bioactivity. Among these bioactive compounds, hericenones and erinacines, which were isolated from an edible mushroom called as Lion's Mane (Hericium erinaceus), showed remarkable activity of stimulating the synthesis of NGF. They could be developed as a dietary supplement or medicine to be used for treating Alzheimer's dementia. This article offers an introduction to the isolation method, bioactivity assay and chemical structure analysis of hericenones and erinacines.

This is a cut & paste from URL: http://health.groups.yahoo.com/group/cheal/message/95

Lion's Mane Mushroom
>
> The potentially active ingredient is Lion's Mane
> mushroom (Hericium erinaceus), a popular oriental
> food
> and medicine also known as Monkey Head and
> Yamabu****ake. Lion's Mane contains a family of
> chemicals called ERINACINES. Nerve growth factor
> (NGF)
> is an endogenous polypeptide that induces
> neuro-genesis and repair. Erinacines from Lion's
> Mane
> have been shown to increase endogenous NGF
> expression
> and to be the most potent of the few agents known to
> increase NGF. [1] Since NGF is distinct from BDNF,
> Lion's-Mane-consuming CRONies might enjoy enhanced
> neuroprotection via two neurotrophic pathways.
>
> Lion's-Mane-induced NGF expression is exciting to
> scientists because NGF cannot be adequately affected
> within the brain since NGF cannot cross the
> blood-brain barrier by means other than intracranial
> injection -- Ouch! For that reason scientists hope
> erinacines may be an easier way to increase
> intracranial NGF expression and to thereby treat
> neurodegenerative disorders. [2] Possibly
> facilitating
> growth throughout nervous tissue, erinacines may
> also
> stimulate the repair of damage to the myelin sheath
> that surrounds nerve axons. [3] A range of
> neurological disorders stem from myelin-sheath
> damage.
>
>
> While the in-vitro research looks ideal, what's
> lacking is in vivo human research. However, in April
> of this year a small pilot study testing the
> efficacy
> of Lion's Mane in the treatment of dementia
> concluded:
> "after six months of taking Lion's Mane mushroom,
> six
> out of seven dementia patients demonstrated
> improvements in their perceptual capacities, and all
> seven had improvements in their overall FIM score."
> [4] FIM means "Functional Independence Measure."
> While
> obviously too small to put much faith in, this human
> study provides encouraging results suggesting Lion's
> Mane *might* increase NGF within the human brain.
> The
> authors say a more-extensive study is currently
> underway.
> Availability of Lion's Mane
>
> The best source of medicinal mushroom products may
> be
> Fungi Perfecti, a reputable and well-known mushroom
> business. Indeed, several mycological health
> products
> proudly cite Fungi Perfecti owner Paul Stamets as
> their expert source. I'm currently taking Fungi
> Perfecti's Lion's Mane liquid extract of the
> mycelium
> and fruiting body [5] and "Mental Clarity" (by New
> Chapter but sourced to Paul Stamets) containing the
> powdered mycelium of Lion's Mane and several other
> medicinal mushrooms that may also posses
> neuro-augmenting properties (if interested, search
> the
> web for the lowest price). Fungi Perfecti mushrooms
> purportedly have the only certified p-value ensuring
> genetic integrity. Stamets is also involved in an
> ecologically important non-profit project to
> preserve
> the mycological genome

Not trying to pry, but do you have lyme or are you here to sell your clinic to us and is this you?

Trent W. Nichols, Jr., M.D. is a Board Certified Internist, Nutritionist and Gastroenterologist and a Fellow of the American College of Physicians, the American College of Nutrition and the American College of Gastroenterology. He is a graduate of the University of Denver with a Bachelors of Science in Chemistry and furthered his medical education at Northwestern University Medical School. Additionally, Dr. Nichols completed a Residency in Internal Medicine, as well as a Fellowship in Gastroenterology at Northwestern University. Dr. Nichols has maintained a private practice in Hanover, Pa for over 20 years. He is a member of Jeffrey Blands' Health Committee and is actively involved in pharmaceutical and nutritional research. Most recently, Dr. Nichols is the author and co-editor of Optimal Digestion, New Strategies for Achieving Digestive Health, (currently out of print, but a second edition will be available soon) available at Amazon.com, Borders.com, and Barnes and Noble. (See Book Excerpt and Reviews on this website).

I have been using a home made magnetic treatment device sometimes called a "Doug Coil". It has cured my migraines adn I use it almost daily for arthritis. IT WORKS!

If this was near me, I would gladly pay $50 to see if it works for me!

I am refering to; http://www.amripa.com/