Trout

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Subject: Dr. Marshall at EICS Conference

Hello, All

This is notify you that it is confirmed that Dr. Trevor G. Marshall, Phd, will be at the 4th EICS Conference in Kansas City on November 19, 2004, at the St. Joseph Medical Center.

Dr. Trevor G. Marshall, Phd, will do a poster presentation on his discovery of the mechanism of and treatment of sarcoidosis, which appears to apply to a number of other diseases such as lupus, rheumatoid arthritis, CFS, chronic borreliosis, and other ``auto-immune diseases'' that may be of a CWD (cell wall deficient ) bacterial basis.

Dr. Marshall was a medical researcher who was sick for some thirty-some years, consulted with many of the medical community who did not know what his illness was, finally found one that told him that it was sarcoidosis, that it was not known what caused it, that it would get worse, and that there was no treatment for it. He wound up in a wheelchair, unable to walk, and not able to work. He decided to use his education and experience to research the research and come up with an answer as to what was causing his problem, and find a treatment. Luckily for him, his wife holds a degree in pharmacology. He walks today, and at last, feels well! He says that only time will tell whether he is in just a remission or has found a "cure".

Dr. Scott Taylor, DVM, a vet in Iowa studying immunology to better understand the borreliosis that he had acquired from the animals that he had treated, came upon Dr. Marshall's website that he had created about two years ago to spread the information about his discovery. The two collaborated, and Dr. Taylor spread the word to his tick-borne disease support group in Iowa. A number of those folks found a PCP to assist them to do the MP (Marshall Protocol), and at least some of those folks claim to be free of their borreliosis symptoms today. From that experience, grew the new website.

If you are interested in doing some reading, go to www.sarcinfo.com and/or www.marshallprotocol.com . When you read the former site, which is the earlier site, whenever you read "sarcoidosis" think "borreliosis". The latter site was established in July 04 to handle the traffic by borreliosis, and some other diseases.

I am doing the MP! I believe that I am experiencing some slight improvements that encourages me to continue. However, it is really too early to rave. A big thing that I am experiencing are herxes with only 4.5mg and 6.0mg of minocycline, every other day, which herxes are of strength that I have previously experienced with 1,500 mgs of metronidazol (generic of Flagyl) every day.

Wellness to all!
____________________________________________

The above was from a Lyme Support Leader in Missouri.

Hope you find it interesting.

Trout
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Now is the time in your life to find the "tiger" within.
Let the claws be bared,
and Lyme BEWARE!!!
Iowa Lyme Disease Assoc. www.ildf.info

The pathology report on my swollen inguinal lymph node said "Although morphologic features are non specific, these non-caseating granulomas are suspicios for Sarcoidosis"

I asked the doctor to test for Lyme at a friends suggestion.....of course the Labcorp lyme tests came back negative. She dx'd me with sarc even though my lungs were clear and I had noraml blood work for other sarc indicators.

I dropped her and found an LLMD.....I do have lyme.

So, I am sure many sarc folks really have lyme. Many Drs. figure once they slap on a diagnosis you will leave them alone.

robi

Signed Gutdoc, who is a physician/scientist with Lyme

quote:

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Originally posted by troutscout:
Hey Folks....here is a copy of one of my latest e-mails.

Trout

____________________________________________
Subject: Dr. Marshall at EICS Conference

Hello, All

This is notify you that it is confirmed that Dr. Trevor G. Marshall, Phd, will be at the 4th EICS Conference in Kansas City on November 19, 2004, at the St. Joseph Medical Center.

Dr. Trevor G. Marshall, Phd, will do a poster presentation on his discovery of the mechanism of and treatment of sarcoidosis, which appears to apply to a number of other diseases such as lupus, rheumatoid arthritis, CFS, chronic borreliosis, and other ``auto-immune diseases'' that may be of a CWD (cell wall deficient ) bacterial basis.

Dr. Marshall was a medical researcher who was sick for some thirty-some years, consulted with many of the medical community who did not know what his illness was, finally found one that told him that it was sarcoidosis, that it was not known what caused it, that it would get worse, and that there was no treatment for it. He wound up in a wheelchair, unable to walk, and not able to work. He decided to use his education and experience to research the research and come up with an answer as to what was causing his problem, and find a treatment. Luckily for him, his wife holds a degree in pharmacology. He walks today, and at last, feels well! He says that only time will tell whether he is in just a remission or has found a "cure".

Dr. Scott Taylor, DVM, a vet in Iowa studying immunology to better understand the borreliosis that he had acquired from the animals that he had treated, came upon Dr. Marshall's website that he had created about two years ago to spread the information about his discovery. The two collaborated, and Dr. Taylor spread the word to his tick-borne disease support group in Iowa. A number of those folks found a PCP to assist them to do the MP (Marshall Protocol), and at least some of those folks claim to be free of their borreliosis symptoms today. From that experience, grew the new website.

If you are interested in doing some reading, go to www.sarcinfo.com and/or www.marshallprotocol.com . When you read the former site, which is the earlier site, whenever you read "sarcoidosis" think "borreliosis". The latter site was established in July 04 to handle the traffic by borreliosis, and some other diseases.

I am doing the MP! I believe that I am experiencing some slight improvements that encourages me to continue. However, it is really too early to rave. A big thing that I am experiencing are herxes with only 4.5mg and 6.0mg of minocycline, every other day, which herxes are of strength that I have previously experienced with 1,500 mgs of metronidazol (generic of Flagyl) every day.

Wellness to all!
____________________________________________

The above was from a Lyme Support Leader in Missouri.

Hope you find it interesting.

Trout

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What persuaded us to pursue the MP therapy was learning that Borrelia is capable of granuloma formation and also of intracellular sequestration, based upon numerous PubMed searches.

I posted that link for GutDoc, but here are some more interesting links for patients.

http://www.marshallprotocol.com/forum32/ -- the FAQ page

http://www.marshallprotocol.com/forum2/ -- overviews, how to start Phase I, baseline blood tests, etc.

I have been dubious because lower doses of minocin did not do enough for my joints. It takes l00 mg twice a day to make enough of a difference.

Would the addition of these other elements change this or would I just slide further backwards. Am just too close to being non-functional to take a chance. In the past, for no apparent reason I have gone from ambulatory to bed-ridden for a week.

Am frightened at deliberately taking chances and would also like some actual studies that compile all results, not just vague assertions of this (or a number of other things being promoted as good alternatives) as the answer to chronic symptoms. It is also not clear to me why the apparent success Dr. Marshall had with sarcoidosis being treated this way should translate into it working for lyme disease and co-infections.

It is a good thing that alternatives are being considered and that some brave souls are willing to try them, but I have a built in aversion to being first in line, and want an organized and careful reporting of results.

That said, TX lyme mom is pretty grounded in science, so I would read this protocol on her say-so, but maybe not try it at present until those results are reported. Anecdotes don't do it for me.

I'll look for the topic you started for me.

you made my day! I really wish I could travel to hear him speak. I would give anything to thank him in person for all he has done for me. Unfortunately, there is too much to do with the wedding rapidly approaching. So far, it seems to be working extremely well for me.

I began it after recently testing positive for Lyme and Bartonella following a relapse. I feel better doing this than I have ever felt on anything else. I wasn't about to do Rifampin, which was what my LLMD had suggested before he retired. Gosh, I feel better now than after IVs and even after my improvement following Mepron & Zithromax. My current doctor and I are both thrilled. Of course, we'll know more when we follow up with Bowen testing. It's hard not to feel as if I've won the lottery, but I do want to do things correctly and collect data for our community. In my opinion, the compliance is a very small inconvenience in order to feel this well.

quote:

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Originally posted by lou:
[B] It is also not clear to me why the apparent success Dr. Marshall had with sarcoidosis being treated this way should translate into it working for lyme disease and co-infections.

That said, TX lyme mom is pretty grounded in science, so I would read this protocol on her say-so, but maybe not try it at present until those results are reported. Anecdotes don't do it for me. B]

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Lou,
We did not base our decision to pursue this on anyone else's results. Instead, we spent over two months studying Trevor's papers and the scientific rationale behind it. We ignored the progress reports of other patients entirely.

What convinced us that this was indeed a promising approach to take was by searching for and finding PubMed abstracts indicating that Bb is capable of sarcoid-like granulomas. It took me a long time to grasp the concept of what a granuloma is and of why it's important as a host defense mechanism. Here's one of my favorite links:

http://www.granuloma.homestead.com/

After we finally understood this basic concept about granuloma formation, then Trevor's papers began to make sense. At that point, wild horses could not have deterred us from pursuing this promising new therapy.

Granulomas are not the only reason, of course, because Bb's ability to hide out intracellularly is another important reason. The MP/Benicar program deals effectively with both of these.

I do not encourage anyone to pursue this until/unless s/he is absolutely convinced that this is not the only right thing to do, but that it is "right timing", too.

For example, I've heard indirectly that there's one MP-friendly doc who now refuses to accept any young mother with children to care for at home as an MP patient unless she has back-up support around the clock, knowing that otherwise, she will be a treatment failure because the initial adjustment period is VERY difficult to endure successfully.

In fact, I just talked a neighbor OUT OF doing the MP right now because she has too many other responsibilities in her life. In a couple of years from now, she won't be having to chauffeur her teenage daughter around to activities all of the time. When her daughter gets a driver's license, then my neighbor will be ready to be a good candidate for the MP. Until then, she is going to continue to tread water the best way she can, using current therapies, in order to keep functional.

It's only just the first couple of months which are so difficult, but this neighbor has no back-up family support nearby for help with family responsibilities at all. This is NOT a good time in her life for her to try the MP program right now.

That is THE very reason I am trying to get my LLMD to start after the beginning December...I am going out of business and my wife and I are adjusting things so I can concentrate on this Protocol...

What a great gal.

Another thing that brings me to the table on this........Mangosteen Juice...it is an EXTREMELY effective anti-inflamatory...after you get the amounts adjusted....while taking a short course of this...almost ALL of my problems disappeared!!!!

(I can't be on it fulltime due to the fact that I am also doing Prolo-Therapy..which REQUIRES Cox2 inflamation.)

That said.......I am even MORE thrilled at the thought of taking Benicar and adjusting ot it's intricacies....

I am finding that many of those that fail on Benicar....didn't realize that what they were experiencing WAS what was to be expected......remember...the sicker you are....the longer the treatment.

You will want to start reducing all sources of dietary Vit D now so that it will be easier for you when you do start. You'd be surprised how many things they are adding Vit D to nowadays. Read labels.

We have found a source of Vit D FREE milk -- organic whole milk at Krogers. If it's not whole milk, then the FDA requires that synthetic Vit D be added to all milk which has had its fat content altered.

Or else, you might want to wait until after you have had your Vit D metabolite levels measured first before you start making these changes so that you have good baseline data. Here's the link to info on how to get the baseline lab work done:

Mangosteen (NOT Mango) juice has NO vitamin D added...but thanks...good point.

I will be getting my baseline in Late November...if not before then.