Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
I've asked my LLMD but he's not sure. He told me to drink more H20 & see an Optho. Has anyone else experienced dry eyes, fluid retention, or other dry symptoms?
Posts: 2451 | From Lyme Central | Registered: Aug 2001
| IP: Logged |
Health
Frequent Contributor (1K+ posts)
Member # 6034
posted
yes I had this, became severe. Lungs became affected too.
Was off antibiotics when I got this symptom... had taken a break from the antibiotics for 75 days, and well, the lyme came back, developed this symptom, dont know why. Never had it before.
Went on the azithromycin and flagyl for 2 months, then this stopped working, and went on the the Doxycycline.
My dryness has improved, very much, but still get some days where it comes back, but not as bad. I hope it goes away completely.
Candida can cause this too, if you think it can be candida, I would try the nystatin, then over to the diflucan if you need it.
I read a woman had this in a candida book, and after nystatin, long term, it went away.
Also, lyme causes this, for me it was lyme... scary.
I also read somewhere on the net, that bartonella can get into the glands that produce saliva, so possibly bartonella MAY cause this, not sure.
posted
For a long time, I thought the "eye headaches" I had were just lyme symptoms. But two different opthamologists, who were recommended by my LLMD, said the aching behind the eyes was a classic symptom of dry eyes. When I finally started using the eye drops regularly--that is before the eyes started aching--the eye ache improved dramatically. (The eye docs said if you wait till the eyes hurt, it is too late as it builds up over time) Mine are always worse in summer.
As the aching started with the lyme disease, I had assumed it wasa lyme symptom. However, apparently, it was the lyme that caused the dry eyes which resulted in the pain behind the eyes. I just use over the counter drops for dry eyes.
Best wishes!
Ann
Posts: 287 | From Northern California, USA | Registered: Oct 2000
| IP: Logged |
posted
I've had dry eyes for as long as I can remember, and that's as long as I've had Lyme Disease. I go through a bottle of TheraTears every two or three weeks.
Foggy - Please let us know if you have success with Restasis. I saw it advertised on tv. That makes me skeptical, but you never know.
Thanks, Scott
Posts: 112 | From St. Petersburg, FL USA | Registered: Aug 2003
| IP: Logged |
kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Foggy, I'll have to get back to you on this one. I am a little dehydrated right now and need a long drink of water.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
| IP: Logged |
Beverly
Frequent Contributor (5K+ posts)
Member # 1271
posted
Hi Foggy.
Yes, I have dry eyes. I use Systane over the counter, it works good.
lymemomtooo
Frequent Contributor (1K+ posts)
Member # 5396
posted
Yes, my daughter has the lyme dry eyes too..Her ll eye dr has her on Restatis..
Posts: 2360 | From SE PA | Registered: Mar 2004
| IP: Logged |
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
lymemomtooo, did your LLMD know your daughter is on Restasis? While not a steroid, it is a immunosuppresant.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
| IP: Logged |
lymiecanuck
Unregistered
posted
I got this too, and get the pain with it. I don't like the drops but use them when I have too. As a result my rheumie is checking me for sjorgens symdrome, will see him soon.
When the heat comes on I strivel up like an old prune, my skin starts flaking. Have to drink my 8 glasses or I feel it.
Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310
posted
Canuck, ay, my LLMD also tested me for sjorgens and gave me an ANA and they were both neg.
I hear you on the 8 glasses of H20 ay. I'd really like to put back a few Molsons, put on some Rush, ay, eat a few Jelly doughnuts, and watch some hockey, ay?
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/