I've got the hip, lower back and foot pain as well. I find the plaquenil helps keep my upper back, shoulder and hand pain down, but not lower body. I think it's just different pain.

My LLMD really wants me to strengthen my hips. She thinks that will help. I find the muscle aches in my things go away when I exercise, but it's easy to activate the hip pain.

I've found heat really does help the hip pain. The best thing I found for foot pain is using elastic ankle braces. It's a new discovery. It helps some, but not great.

I'm on the top dose of Flexeril and I have Vicodin, but neither get the hip and foot pain. I tried Neurontin, but I was too fatigued on it.

Long time.. no see!

I hope you are having some FUN these days?

I think the muscle pain is related to Babesiosis. I have the same thing happening.

If treated successfully for Babesiosis.. my muscle aches and cramps/spasms are lessened greatly.

That never happened on antibiotics alone.

When I have a reaction to Babesiosis meds.. my muscles get worse... like when herxing.. then better.

If the other meds helped.. why not try them again to see if you notice a difference?

The best abx for the pain was Biaxin which I just started up again. IV Rocephin helped quite a lot. I've never tried Plaquenil, malarone, or artemesinin.

I have also found that there is no pain medication that takes away the leg and back pain. I've tried Neurontin, Hydrocodone, and Oxycontin. Nothing works for me.

These symptoms appeared 2 1/2 months ago. It was terribly painful to sit (especially drive) & stand still. Walking and lying down was fine. I found a "good" chiropractor. This has helped tremendously. Look out for the bad ones. Ask around a lot for references.

I am still in pain, but it is tolerable. My muscles are still extremely tight, but theraputic massage & heat/vibration helps for short time period.

I am new at this. So, if any of this can cause me complications please let me know.

Hope this helps.

I have been thinking about it and haven't quite come up with a good reason that this happens. Or an exact reason.

Some thoughts...

Maybe because the red blood cells are affected with Babesiosis (damaged or destroyed).. they can't deliver the oxygen as well to the muscles.. making the muscles cramp and/or spasm more?

Maybe because the red blood cells are bad.. they can't deliver the calcium/magnesium that is needed to the muscles?

Maybe the lactic acid formed can't be removed as efficently from the muscles when the red blood cells are infected.. producing the burning pain that folks get after a hard workout?

Babesia enters the cells.. then we kill the babesia.. and we basically destroy what is left of those cells... our own cells.

THEN we produce new.. uninfected red blood cells... that CAN do their jobs.

Of course I am totally guessing here.. but I am wondering why this happens.

If you find out any information.. please let me know.

I have seen this happen in others with babesiosis.. and I always suspect babesiosis when someone lists symptoms that include muscle pain... or if they tell me they hurt when doing very little exercise.

I have muscle pain that is overwhelming at times.. from doing something as simple as brushing my hair. The repetative motion.. even a few strokes... causes muscles to hurt so much... and "lock up" or freak out.

In other words.. the little activity I do... instead of feeling it a little.. it feels like I have done LOTS. The pain is WAY out of proportion to the activity.

I would also be interested to know if treatment again helps you.

Thanks!

And have some fun over the holly days.

OK?

PS..

Have you tried Coral Calcium? This has helped my muscles quite a bit.. but when I stopped the mepron.. the muscles.. even with taking the calcium... became MUCH worse.

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If you get the choice to sit it out or dance...

Kept complaining of a muriad of issues and my GP told me to see a shrink.

Finally seeing a lyme Literate doc and guess what, I tested positive for Lyme disease. I have just started treatment, on it about 6 weeks now. My Doc believes I have bartenella ar babesia. Right now on Reocepherin, mepron and zithromax.

Like you TC I have a problem when I do very little work, particularly repetive motion. I feel like I have been hit by a truck and it takes at least a day of rest to overcome. Also, I experience the hip and foot pain, ususally in the morning. It almost feels like I stepped on a 6 inch spike in my left foot, which goes away in an hour or two of movement. Although for some reason I have been having some terrible aches and pains that I never had before and some are quite extreme. I finally made the decision to stay off work till I feel a little better.

I'm wondering... they found in AIDs patients who have bart (& also in lyme patients with GI bart) that the capillaries or small blood vessels break.