If your worried its yeast kick up his dose of acidophilis it really does work.

Ill tell you how much once I missed my dose in the morning of 3 capsuls forgot them at home while buck hunting at about 2pm I got up from the spot I was sitting at to relieve myself (pee) I started to do it and owwwwwwwwwl bigtime like lightning up my pen*s oh man burn sting sore hurt cant hardly discribe it right. That was the end of hunting went straight home took double dose then that night took double dose. Next day I looked at it and well on the private spot actually looked like burned with cigerette blister took another dose acidophilis and went to bathroom again and it was sore but not like the day before. Point is I missed one dose while on abx's and wham yeast problem.

Dont take acidophilis within two hours before or after abx's allways 2 hrs before or 2 hrs after abx.
I really didnt want to go into detail but I think it makes my point about yeast and acidophilis's ability to starve it out.

My daughter, also has lyme and I went thru the exact same thing. It is a herx from the lyme die off, and I would also highly suspect that your son also has Bartonella, a co-infection that a tic carries that goes straight to the brain and causes temper flares, emotional breakdown and down right nasty moods.

During treatment my sweet daughter would curse at me and scream that she hated me. She would go outside and refuse to come in, sometimes yelling at me from outside.Curse words that I never heard would come out of her mouth and literally shock me.

She hated everyone, including herself and did not want to be bothered with friends. She wanted to sleep 14 hours a day and then wanted to stay up all night.

Dr. J also sees my daughter and told me it would take at least four years of treatment, we are going past our second year and I have started to see some improvement in her mood swings the last few months.

It is a VERY LONG treatment and believe me it gets a LOT WORSE before you will see signs of improvement.

Please make sure you get your son checked for Bartonella because if left untreated it can be mentally devestating to your child. I have heard that some untreatd Bartonella cases could begin self mutilation.

My daughter took two years for the test to finally show up +++ and that was thru Igenex, but I suspect she has had it since day one. I now suspect she has Babesia because she takes off her shirt at night due to sweating.

The next six months will be hard for your son as well as your family because the die off of the bacteria will cause behavior I have never seen in achild, except in movies like the Excorist. It will get better, trust me. The "tuning out" as my daughter also did are sometimes "mini seizures" and will also improve with treatment.

The minocin was the antibiotic that caused the tuning out very severely.........I would talk to my daughter and she would be staring off into space...........she had no recollection of it. These episodes of mini seizures are very scary.

It is really affecting his schooling. He is above grade level (he just turned 6 in sept) but his behavior and lack of self control are really taking a toll this year. (first grade). I talked with his teacher and told her about his situation and she was sympathetic but it is not going well.

The thought of this taking that long is devastating as I am not sure I can cope, I am on meds for lyme and Dr. J said I have bart as well and it is tough for me.

The following may provide a clue:

Magnesium and ADHD and Autism - Lyme Symptom #31

``Our children may be at great risk because they think they need to remain thin to be accepted. Those foods that are high in magnesium that would help them cope with the stresses of growing up (school yard bullies, PMSing teen girls, and teen life in general) are not on their plates.

However, milk and cheese products are on their plates, and calcium/magnesium imbalances may contribute to school violence in manic or manic depressive (bi-polar) students. Without enough magnesium and boron, these young people can loose control over their moods, sometimes with devastating results.

However, there were hints along the way that magnesium was helpful in treating hyperactivity. For example biochemist, Dr. Adell Davis suggested in her 1970 book Let's Eat Right to Keep Fit, that magnesium was beneficial in treating hyperactivity in children and adults. In 1987, Nelson et al. reported neonatal hyperexcitability in full term babies was related to significantly lower than normal serum magnesium.

In 1994 Kozielec et al. found significant magnesium, zinc, copper, iron and calcium deficits in plasma, erythrocytes, urine and hair in 50 Polish children aged from 4 to 13 years with hyperactivity.

The average concentration of all trace elements was lower compared with the healthy children control group and they found that it was absolutely necessary to supplement trace elements in children with hyperactivity for them to regain emotional control.

In a follow up study Kozielec et al. introduced their 1997 article with the comment: "A positive influence of magnesium in the prevention and treatment of hyperactivity in children is more and more frequently raised in the medical literature". They continued in their original research article with the astonishing finding that in 116 children (94 boys and 20 girls), aged 9-12 years, with recognized ADHD, magnesium deficiency was found in 95 per cent of those examined.

Following up their observations, Kozielec et al. treated ADHD children with and without magnesium with spectacular results. Their research comprised 50 hyperactive children, aged 7-12 years, who fulfilled DSM IV criteria for ADHD syndrome, with recognized deficiency of magnesium in the blood and in hair.

In the period of 6 months those examined regularly took magnesium preparations in a dose of about 200 mg/day. Thirty of those examined with ADHD showed coexisting disorders specific to developmental age, and 20 of them showed disruptive behavior. The control group consisted of 25 children with ADHD and magnesium deficiency, who were treated in the standard way (without magnesium supplements).

Fifteen members of this group showed coexisting disorders specific for developmental age, and 10 members showed disruptive behavior. Hyperactivity was assessed with the aid of psychometric scales: the Conners Rating Scale for Parents and Teachers, Wender's Scale of Behavior and the Quotient of Development to Freedom from Distractibility.

In the group of children given 6 months of magnesium supplementation, independently of other mental disorders coexisting with hyperactivity, an increase in magnesium contents in hair and a significant decrease of hyperactivity of those examined was achieved, compared to their clinical state before supplementation and compared to the control group which had not been treated with magnesium.

***Do you think Western children with ADHD will receive proper magnesium supplementation to decrease their hyperactivity? If you are a skeptic, you are probably right. Instead, they will be given "upper" drugs; one such drug is the amphetamine dextroamphetamine which has the unique property of elevating magnesium in serum and significantly reducing the calcium to magnesium ratio. Mothers! watch out for the pharmaceutical drug peddlers!''
http://www.coldcure.com/html/dep.html

Magnesium and Autism

``Dr. Rimland's research, which has been confirmed by researchers in France and around the world, indicates that autistic children have deficiencies in certain nutrients, in particular vitamin B6, and that for some unexplained reason their bodies require these nutrients in much larger amounts - up to 50mg a day more - than do ordinary individuals, who require only 10 to 15mg daily. To maximize the effectiveness of this B6 supplementation program, magnesium is also given. It is a very important mineral here because it can dramatically enhance the effectiveness of B6. In addition, Dr. Rimland gives the rest of the B-complex, zinc, and other complementary minerals. `If that is done,' he explains, `the individual's body has the maximum chance of using the vitamin effectively when it is given in large amounts to correct the metabolic error it is prescribed to correct.'' (6)

Autism

L-Carnitine

is a derivative of the essential amino ACID lysine, and is often found to be deficient in those who take anticonvulsants. A single case report of one child indicated improvements in language and awareness http://www.rettsyndrome.org/main/drug-trials-in-rett-syndrome.htm

Source #6 is Get Healthy Now with Gary Null.
The coldcure website is George Eby's. He is the developer of zinc lozenges and cured his own manic-depression. It's an enormous website, incredibly documented.

Pay very close attention to what the "uppers" do!!!

There is a glutamate connection also.

This disease SEVERELY depletes the INTRACELLULAR level of Mg.

My son has ADHD, learning disabilities, migraines, seizures (rarely)and asperger's. Researching lyme for my sister has provided clues as to what is happening with him. Bb isn't the only pathogen that depletes Mg (so does Bartonella which I have documented on this board before). We are currently working on restoring his Mg levels (much improvement in mood, attitude) since his current cholesterol level is 86 (dangerous!). He has protein in his urine and a "few" bacteria. This means he is fighting an infection without the benefit of having ENOUGH Mg and Ca to make healthy antibodies to do so.

We also found a "natural" OTC formula to act as an antibiotic. It sure did. He herxed. To combine this product WITH abx. would = far, far too acidic at one time. Could = kidney damage (too acidic harms healthy cells).

However, paying attention to the FOODS that have Mg in them likely would help.

I knew I needed to find a product that contained Mg citrate, Ca citrate and another ingredient with a strong neg. charge. (Lots of neg. charges, a few positive -> hydrogen). Citrates and hydrogen are 2 of several things that INactivate PFK, an enzyme that Bb (and other pathogens) is dependent on.

With Mg levels too low, we've lost control of the glycolysis route to make ATP.

Many years ago, a ped. neurologist told me that kids with ADHD do not get enough glycogen to the frontal lobes. Our brain cells ONLY source of energy is glycogen. Mg is needed to make ATP (energy - and we make a LOT in the brain)via both routes...using oxygen and (less) using glycogen.

Hope this helps you to begin to understand what's happening.

Has your son been tested for bart? My other son has lyme and bart and the 'short fuse' type stuff was much more common with him. He is responding well to meds - no herx and much calmer so we are keeping our fingers crossed for him!!!

Just let your child rest and put your worries about school on the back burner for now. The priority is to get well. This is the very wise advice I received from some parents here and it really makes sense. First grade skills are things that you can work with him at home on as he feels like it and missing some time in first grade if he is a very bright child, will not severely impact him academically. I'm sure that the school would send home work for him to complete and you might want to look into what the school does as far as tutoring sick children.

My son is in high school and now you have even bigger challenges and all those state exams that need to be done. But he has great teachers that are supportive. This last week I have been going to school and picking up work and he completes what he can and I return that to the teachers. To be perfectly honest with you, I'd almost like to see him stay home from school for a few months and complete his work at his pace, so that he can rest and just get well. It would lessen the stress, because as a parent told me, just being in the school can stress some of these kids out, making them flair and feel poorly.

Childrens Fast Melt Benedryl

Fresh Lemon Sqeezed into water

These should help...soem.

Trout

We have lived all over the US ...kids in 6 schools....we found that the actual demands on children were dropping and that we had to educate our children with additional material at home.

We come from Iowa where the standards have been the bench mark for much of the rest of the nation. Since moving back we are over joyed that our children now have to work for grades rather than being handed them.

Before the no child left behind law...we had fallen to 23rd in the education level of our children of the world's industrialized nations....hence the influx of foreign educated Dr's, Engineers, etc....this has caused a displacement of The Unites States reputation as a leader in many areas....

Unfortunately...our children will end up paying the heavy price for this since we let out standards slip in the educational process.

Trout

quote:

---

I would never treat my child for POSSIBLE congenital Lyme. The drugs involved are not candy. The reason why your child has yeast problems is because you were on abx before giving birth. I'm sure he has severe Candida and now he could get worse from more abx. No wonder that prescription antifungals are being used on ADD, ADHD, and autistic children. http://www.drlayton.com/autism.html
I can't believe the people on this group are suggesting it's a Lyme herx with the information you have given them.

---

She's been to an LLMD who is telling her to treat for Lyme. That's the best any of us can do!

Don't judge when you don't know all the circumstances.

I think you made a mistake.

Shes seeing a LLMD and hes aware of her past and the boys. Been tested and ruled out the things your saying and in PA its highly likely its lyme.

Heres excerpt from your web site.
Dr. Wakefield's study confirms parents' observations that Autism frequently develops after the MMR vaccine.http://www.drlayton.com/autism.html

Does the measles-mumps-rubella (MMR) vaccine cause autism?
Current scientific evidence does not support the hypothesis that measles-mumps-rubella (MMR) vaccine, or any combination of vaccines, causes the development of autism, including regressive forms of autism. The question about a possible link between MMR vaccine and autism has been extensively reviewed by independent groups of experts in the U.S. including the National Academy of Sciences, Institute of Medicine. These reviews have concluded that the available epidemiologic evidence does not support a causal link between MMR vaccine and autism. http://www.cdc.gov/nip/vacsafe/concerns/autism/autism-mmr.htm#1
And everybody trusts cdc right?

Benadryl may help. Like Mg, it is an antihistamine.

Lemon in water. Lemon becomes alkaline when it hit the GI system.

This is why the lemon in water before consuming that 12 oz. steak...in restaurants. Balance. It's all about balance.

Some believe eat protein first to avoid insulin spikes (both have neg. charge). Others say no beverages at all near/with meals to let the digestive enzymes work better. Think about WHY desserts (sugar, glycogen, ++ charge) are eaten LAST.

Neighbor here has very autistic son. He contracted measles from his siblings just after brought home from hosp. as an infant.

Not enough Mg and Ca to form the antibodies ...Calcium likely. That's what hardens the bones so we can stand. Babies bones are "softer" to begin with - more Mg than Ca.

Infant allergies...soy formula...higher % of Mg.

Mom's milk...very rich in Mg.

See how this all begins to make sense?

In NYS for example, we have those horrid proficiency exams in 4th and 8th grade and the schools go nutty because they can get a 'black mark' from the state if their numbers are not up where they should be. The teachers aren't teaching subjects - they are teaching to test which is just awful. They take time away from instruction to practice taking these stupid tests.....it's an awful system....

But I digress.....one of your options is for your child to get a tutor for his work. You will have to find out what the length of time is for a child to be out before they will set him up with one, but if his health problems are documented, this request should be granted. I have to warn you tho, in some schools, they are very reluctant to do this, so you may be in for a fight to get your child what he needs, but in the end it is worth it. Or, as the other poster suggested, seriously think about home schooling. I think that if my children were younger with lyme, that would be an option I would give quite a bit of consideration to....

I just got back from picking up homework at my son's school. I walked out shaking my head in disbelief.....bet you think I'm going to say something bad, right? Well I couldn't have gotten more support for my son and you can't believe the weight that is off my shoulder right now.

I'm fortunate to be in a district that has a director of pupil services that is a very strong advocate for the kids. She told me she is going to give some thought as to what the school can do for my son as far as instruction off grounds when he is feeling poorly, aside from the standard tutor where a student needs to be absent a set number of days.....she's thinking 'outside the box' for this child and that is what we need more of....

I worry about the yeast and ABX constantly. I treat him with pro-biotics and oil of oregano and gse. (rotate) I do think his yeast is a problem but how do you explaine the periods of time when he is almost symptom free? His symptoms wax and wane like lyme does.
Marnie, forgive me for being dense but are you suggesting supplimenting with Magnesium? if so how much and what kind and calcium also. I could sure use some guidance here. I am having a hard time myself.

I wish I knew what the answer is for my son but I am desperate to help him and appreciate all your help and sympathy on this list.

Who ever thinks wait and see is an option is off base here...THE MEDS WILL NOT KILL, BARTONELLA WILL!!!

And the self mutilation is also a symptom..I have to soon leave for an hour ride to our hospital to get a test for my daughter but I will check my email later if you think I can be of any help..

It is hell and a horrible journey but there are no acceptable options but to proceed. 6 ft under is not an alternative.

I have a bottle of valium that I keep on me all day..It is rarely used but is handy in an emergency..

I have heard very good things about Dr. J, but I go to two wonderful Drs in Pa..Dr. V.S and Dr. A. C..They are constantly working to keep my daughter alive and get her well. They are my angels..

We are trying to get them seen my a llmd but until then does any of this sound familiar to others with children diagnosed? In other words this all sounds subtle but put together does it seem like anything?

older son: born 3 weeks premature, has had lots of ear infections as a baby, ADD with mood swings,anger, nothing makes him happy (which breaks my heart and I work so hard to please him), can not focus even on ADD meds, diagnosed with depression at 7 yrs., difficulty going to sleep at night, dark circles under his eyes, very bad allergies, seems to always be spacing out, obsessive compulsive.

younger son: also born 3 weeks early, and difficulty breath at birth, born screaming and continued for 1 yr. - with colic? had intestinal issues since birth; either throwign up or contsitpation, very violent tantrums, can not sit still until passes out at night, we can't get rid of a urinary tract infection that doesn't really seem to be an infection, hurts to urinate, only problem seen on ultrasound is a thickening of bladder, doesn't seem to want to learn, cant to ABC's or count past 5 even though he is a smart kid.

Also, i'm
very interesetd in the magnesim supplenments and food to help with ADHD diagnosis.

any thoughts would be helpful if you have seen similar patterns
warm holiday
regards

I am currently battling the yeast from helll.

Good Luck Dear.....your heart is full of love...you are a fighter....I'm that kid has you in its corner.

Very sorry,

I am so sad and upset to read your post about your little boy. I'm so sorry for all you are going through! Hugs to you both...

I have been so busy putting out fires around here that I haven't been on board and I just saw your post.

I am so sorry I am not able to be more helpful right now! Today is going to be so busy with appointments but I will try to get back to you with more info as soon as I can.

In the meantime,

You and I are living in a parallel universe and I truly understand the hell you and confusion you are going through.

The symptoms you describe are very complicated, especially in one so young.

We are also patients of Dr. J. Making that step was critical and you have already done it!

My little boy, JC, is 6 and has been through the gamut of similar diagnoses as your son. We are living the same nightmare.

My son displays EVERY symptom you describe and has been virtually incapacitated by the neurological effects of lyme for the last year.

Because our kids situations are virtually identical, you can find a LOT of helpful info by "searching" my name (andie-ws).

That will bring up MANY posts re: the symptoms and problems we've been going through. You will find a ton of very excellent information from people who have been helping me.

There is also a group of moms on this board who have or are going through many similar things. They will be more than happy to share with you and you will see their names in the posts to me.

Just couldn't leave without first sending off a post to let you know that I am thinking about you all, praying for you and want to help!

Looking forward to talking to you soon. Please feel free to email me if you like!!

could you please help me with some info. i want to ask what kind and how much you are giving mg and ca so that i can start to give some to my boys. i am worried about both as well.

As for the Mg, my llmd said it should not be given with the other meds, esp. calcium..Think she said they bond together and neither would then be absorbed..

This makes it all hard when things can only be given at certain times and often not near abx..May your better times continue..

Also thanks Paisley and others for the prayers for us..We are now investigating a possible strept connection..Llmd doesn't like the look of her throat and Dr.V.S. remembers a young patient that had many psych issues from strept..Here's hoping it will have a good cure, if it is lurking in the brain. I have been told possible 2 weeks at NIH..I almost hope it's that easy!!!