I read a few items on a recent post, about symptoms.

I have had iritis (which we now believe is due to the babs and possibly Lyme) for years. I have had eye surgery at least 3 times now.

my eyelid on that eye droops, especially when I am tired. my eye doc had told me this is b/c of my condition - surgery, and the iritis itself.

now, I read it can be a symptom of Lyme. I really don't know... can I expect this to stop drooping when she gets rid of this stuff? so far babs is the only certainty, but she feels sure I have Lyme as well as babs can hide it.

I have a few times been given the option of having eyelid sugery to correct it, but, I can't stand the thought of unnecessary surgery - especially near my eyes. it isn't so noticeable except in photos, and besides - I'd rather look a little cosmetically goofy than have anything happen near or to my eyes!

thoughts?

thanks!

Cecily and Ophelia say hi too:

if it comes and goes, or if you face or head feel numb or tingly or twitchy sometimes, or those sensations in the back of your head or other places, then it's very possible it's a sort of mild form of bells palsy- a symptom of lyme.

That's caused by damage to one of the main nerves in the back of your head. If that's what it is, surgery isn't likely to fix it, antibiotics would.

My eyelid began drooping about 10 years into my infection (I wasn't diagnosed then). Was only slightly noticable, especially in photos. Mine also seemed to be worse in times of fatigue or stress.

It became more noticable after a year of drooping and I began research for eyelid surgery as suggested by an opthamologist. Luckily within the month I got bells palsy on that side 3 different times and then got diagnosed with lyme and bartonella.

I would notice my eyelid wasn't blinking open very well and I could feel the eyelid, upon opening, bump into the skin under my eyebrow. Slightly annoying and worrisome. After about 6 months of antibiotics my eye went back to normal! Hasn't happened since.

I avoided unnecessary surgery as it turned out. But I didn't know that then, and got lucky all the cards fell into place at the right time.

Did you see the lyme literate opthamologist on the PA list I sent you? Could be worth the trip for an evaluation and consultation about how often eyelid drooping clears up during treatment or if there's often permanant damage or not.

One of my symptoms was a droopy left eyelid. I went 13+ years before being diagnosed with neuro LD & Babesia.

From l989 - 1994, I was misdiagnosed with myasthenia gravis because of my droopy eye and weak voice.

But after 20 months of ABX & Mepron
(2 bottles)-----I don't recall the last time it drooped. That's strange because it was a symptom for so many years and now I don't know exactly when it stopped.

Because the left eyelid and left ear would usually hurt at the same time, all I cared about was the pain ending.

The weird thing is I used Oticort ear drops just for the ear pain, but I quickly noticed that it would stop the left eyelid pain as well.

Now my 21 year old son with LD has drooping of the right eyelid when tired. The Zithromax also made the eyelid droop. And yes, I wonder everyday if he acquired LD inutero.

Hope ABX will help you, too.

I knew LD could cause iritis, but didn't know Babesia could. That's very interesting.

Let us know how you do.

Take Care,
Jan

My LLMD told me it was cranial nerve involvement, and after excessive use, the muscles would get tired.

Here's something that helped get me through it when you're eye starts to droop. Put a drop of Peppermint Oil above each eyebrow. It's amazing how refreshing this is and takes away the droop.

After all these years of searching, I've never heard of anything good for droopy eye. Wow----peppermint oil for droopy eye. Good to know.

I read here some use it for headaches. I'll definitely have to get some for my son.

He perked up when I told him about it. He absolutely hates the droopy eyelid thing.

O.k. I'll try that. Sounds good.

Jna

I get all my oils from www.youngliving.com. I think it's $9. If you decide to purchase elsewhere, please read the label carefully.

ever since I was a little kid, my smile has been crooked. I think I'd have a really BROAD smile except that my right side rises to the occasion - nice and WIDE smile and my left side (not my blind side by the way) doesn't seem to extend as much. also when I laugh - the right side drops more than the left. it's not a lack of control on the right side, it's almost like something is snipped on the left side!

BTW I also had no gag reflex and had trouble swallowing. For me I believe it was a lyme affected nerve. No problem with either anymore.

Amazingly, the bicillin is curing it just like my llmd said it would.

Funny you should mention peppermint oil.

One or more of a class of coumpounds called 'Terpenes,' are spirochetocidal.

Peppermint oil contains a terpene whose specific chemical name eludes me for the present.
I think Pep.Oil is at least borrelio-static, if it doesn't kill the keet; either this or some other TBDs with which I'm infected.

From an experience of eating a SINGLE peppermint life savor on a truly empty stomach , I had a severe neurological reaction, wherein I was rendered unable to execute the physical act of writing longhand; nerve pain,and weakness in the optic tract, neck, and other Sx. The pain had a 'burning character'. No amount of will power could over come the nerve-weakness produced by the severely fatigued nerve in my writing limb to be able to continue to write. the nerve pain and fatigue went straight up into my head(neck, and optic nerve) Had to give up writing.

Prior to lyme, I frequently ate 'Pepo-mint' life savors,maybe several times a month,on a truly empty stomach, and never had such a reaction. Brain-Bld-Bar. was compromised,so maybe the peppermint terpene crossed the BBB and caused the reaction itself, or it somehow affected the keets.
No, I don't suggest this as a 'mono-therapy' by any stretch of the imagination.

Mint in toothpaste, has a terpene in it. I'd imagine is one reason for its inclusion in toothpaste. I believe it kills the '_____Denticola' spirochete, an oral spirochete,which has been implicated as a cause of Mult.Scler. in at least one study.

My point, and interpretive hypothesis of your reponse to putting one drop of the P.oil above each eybrow:

The P. oil went into the skin, and perhaps deeper, caused the keets to flea the connective tissue fibers(disattach from),and other tissues in that area, and when they did, your function returned;i.e., the droop went away.
I'm not a doc but this might be one possible explanation.

quote:

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Originally posted by lymeinhell:
"..............."
Here's something that helped get me through it when you're eye starts to droop. Put a drop of Peppermint Oil above each eyebrow. It's amazing how refreshing this is and takes away the droop.

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[This message has been edited by pq (edited 16 June 2005).]

[This message has been edited by pq (edited 16 June 2005).]