Yesterday, stopped mino with intention of going to 100 mgs a day or every other day dose.

Last night, my aunt, who is really like my mother, died. Since I have always been like a daughter to her, this is a bad blow to me and most of my family. She only had a son who needs help desperately to plan funeral, write obituary, and be of general emotional support and help through this. She was most specific about things she wanted to me to do and I want so much to do them for her.

So, I have got to get myself together somehow. The funeral is on Monday and feeling like I do today, I don't think I can make it, much less do anything else that needs to be done. I managed to write the obituary, which took many hours,slept this afternoon and now I am a perfect mess.

What would you all do? I feel like the mino has stirred "them" up and they are raging, but I am afraid to take anymore for now. Clindy by itself I don't think will help.I am so miserable and sick.

I could call J clinic tomorrow, but they often do not call you back or wait forever to do so.

this is just a method to try to get through the next couple of days until the funeral. Any suggestions would be so greatly appreciated.

You've already accomplished a great deal, in spite of being so sick. Writing the obituary is such a heartache, but I'm sure your cousin is deeply grateful that you've taken on that burden.

Your aunt must have loved you dearly to have trusted you with so much -- I know she wouldn't have wanted you to make yourself sicker doing it.

Delegate everything out that you possibly can -- you can describe what needs to be done, right? -- and concentrate on just getting to the funeral. Your family will pitch in for you; people can really come through amazingly at a time like this.

Try the detox stuff -- the teas, and the epsom salts bath, and the children's benedryl; call the doc and see what you can take for the vertigo and nausea, and tell him you need to get through the next few days. Make sure they know you have an emergency. You might also try ginger/peppermint tea for the nausea.

If you feel you want to flush everything out of your system and then start again later, you can use bentonite clay or activated charcoal. But those will suck up oral abx, too, if you take them at the same time.

I'd trust your instincts on the mino, but if you don't think the clindomyacin is causing problems, you probably want to continue taking it.

nothing you can do really to stop a herx in its tracks.

just have to muscle through.

but contact your doc and state that is indeed a serious emergency and you need to speak with the dr asap.

best of luck....

Okay, started on detox tea and other stuff will do tonight. Will call clinic in morning.

This disease totally sucks. Thanks so much my good friends here at lymenet.

I am sorry for the loss of your aunt. I know it must be difficult for you to deal with this additional stress when you already felt you had more than you can handle.

Your aunt would know you are doing what you can and th rest will be taken care by others. You have to do what is most important. Do not exhaust yourself. Certainly writing the obituary was difficult for you, but I am sure would be very meaningful to her.

Call J clinic and tell them you are in emergency mode and tey really need to get back to you ASAP!!! You might even want to call and leave a message tonight. That way you are on their list first thing in the AM.

I don't know about the mino........I would wait til you talk to them. you might not want to be on one drug alone.........really gotta get this info from them.

If you need to hear a friendly voice.....please call....... you know the #.

robi

My prayers are with you.

Detox is a good idea - hopefully it will help, if you can take epsom salt bath with hydrogen peroxide i suggest that (don't know if you have picc or port to deal with).

As for Dr. J's office - I know that they will call if you state your emergency, please give them the benefit of the doubt here - they saved my life again last week - so I know they will reach out to you in your time of need. Give them a chance.

My prayers and thoughts are with you. I know you will get thru this, as hard as it seems right now.

I'm in a very similar position, trying to get on mino but also dealing w/a crisis situation which demands that I function as well as possible. Mino makes me dizzy and lightheaded and gives me a strange headache that feels incapacitating.

I first tried to go on mino a couple of years ago and the side effects were such that I just went back to my previous drugs. Tetracycline made me nauseous and dizzy for 10 days and I got through that, so it insm't that I give up easily. But the mino side effects were not bearable. So, if it is like that, I think it is good to go on something else...at least until your spirochete load is down a bit.

This time around, when my LLMD suggested mino, I reminded him about my previous problem. He said to start with just one 100mg dose in the evening. To tell the truth, I started for the first three days with 50mg at dinner(approx. half the powder in the capsule) then 3 days with 50mg twice a day, then I upped the pm dose to 100mg, and now I am doing the 100mg twice a day w/out too many problems.

I tried to ramp up as quickly as possible but if I pushed too hard and couldn't function, then I skipped a dose or two to lower the level in my system, and restarted at the level at which I was okay.

Again, if I had done this two years ago, I think it would have still been unbearable. I think for whatever reason, spirochete load level maybe, I can now handle the mino better.

Also, if I or the kids are going to switch to new abx, and there is something going on, like a school play for instance (or a crisis needing focused attention) then we just wait to change until a better week or month. Is this possible?

Sometimes it seems like the right weeks never come, but it certainly sounds like a bad week for your Lyme to be stirring up.
Transitioning between drugs always seems to bring problems for a few days, even w/abx that don't cause side effects.

As someone else suggested, ask others to do what your aunt instructed you to do....delegate!

I know you did a terrific job on her obituary due to the extreme love each of you shared with one another.

There was a post by darth..... about losing her Mom to lyme. I posted many sympathy poems there, and my favorite ones were at the top. EDITED: Found it, you can go to it, and find some comfort & print off a few you like.
http://flash.lymenet.org/ubb/Forum1/HTML/030243.html

I know you'll love My Frst Christmas in Heaven, and Remember Me...

Hang in there, and say NO to everything else...take care of YOU. Your aunt would understand.

If worse comes to worse, and you can't go, perhaps the church or someone could video tape the service and you could watch later as you feel up to it. OR have a tape recording of the service.

We have both Mom & Dad's services taped..
Betty G., Iowa

I'm so sorry to hear about your aunt. It's got to be so rough to have a loved one die when you are feeling so poorly at the same time.

Don't forget to hold yourself in the same love that you have held your aunt. The obituary was a huge piece of work for you feeling as you do.

Your aunt wouldn't want you to take on too much and become sicker. Be good to yourself.

I hope you feel better real soon.