It took a long time to regain strength. I also had pain worsened by the weakness.

I gradually began reusing my hands. I actually found typing, in an ergonomically correct position, helped. For me it was a light movement that loosened up the muscles.

I also had hands on physical therapy releasing trigger points in my back, that for me only worked in combination with a muscle relaxer. But you seem better than me, as I had constant pain in my back, hands and wrists at that point.

Your last sentence couldn't have been said better. Faith is put to the test.

My Dr. tells me he wants me to work out like I'm training for the Olympics. From that, I gather there's no "over-doing" exercise when working toward rebuilding your muscle strength! Keep it up!

I was referred to as the energizer bunny, always movin' and doin'. I was diagnosed with ALS, this summer (40 yrs old), before finding my Lyme specialist in PA and testing positive. (My Neuro didn't even test me for Lyme, even though I have bells palsy too & I specifically asked for further testing and treatment for Lyme given all my symptoms - some not ALS related)

I have weakness in both legs, and my left hand is very weak. I'm like you, I'm afraid if I don't use it, I'll lose it. Keep on keepin' on, we're in the life olympics

I have had weakness too, in my wrists, arms and legs. I dropped things or felt so weak I had to go lay down.
So far it has gotten better for me with treatment. don't know if it was a herx though?

I've found that when a part of me gets weak (from Lyme) it works best if I rest that part and not try to push it. When it feels stronger then I try to use it exercise without overdoing it.

There were days (while taking doxy)when one hour I could barely lift my arms or carry a small bag and then a few hours later my arms felt fine and I carried really heavy boxes up stairs! Lyme is so unpredictable.

Overdoing it or trying to make a weak part do more than it feels like just doesn't seem to help with Lyme.

This past week was particularly difficult, I get much worse every 30 days and this was my bad week. I'm trying not to get too out of shape and am still hoping to ski this winter.
The other night I tried to do some leg lifts. I tried my hardest and with extreme difficulty could only do 2. 3 was absolutely impossible. A few hours later I felt pretty good so I tried again and was easily did 40 situps and 80 leg lifts.

With these extreme fluctuations in energy it is hard to plan what I can do each day so I just take it minute by minute, hour by hour and adjust my activities accordingly.

Easy does it. Be creative and do what you can, but allow yourself to rest any part of you that needs a break.

I am feeling so much better now. It's like a different life.

I think you are right about wanting to use it to not lose it. But you can use it in moderation.

Get your work area checked by somebody who can make sure it's ergonomic. Learn how to relax your muscles when you type.

Wearing both my carpal tunnel wrist splints w/out splint in....sure helps.