aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
I hope I can make sense. I'm on Mino and am having a few problems.
Have done a search on this site for Heparin and read most of the post.
My LLMD doesn't do Heparin so now what?? I'm concerned because I seem to have unusual symptoms that are probably due to hypercoagulation, i.e., swelling hands and feet and front/back of neck, fine red broken capillaries around nose and mouth, unexplained high blood pressure and some chest pain. Swelling is worsened by physical activity. Also get out of breath easily, etc.
Do I go to a hematologist/oncologist for an ISAC panel?? What do I do?? I want to be treated for this at the same time that I'm being treated for Lyme and Mycoplasma.
What have you all done for hypercoagulation problems?? I sure would like to know how you were treated.
Anyways, am disappointed my LLMD doesn't treat this, so I need some advice.
Thanks for any input....I'm in a quandry!!
Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Up for those who operate during normal hours.
Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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posted
That's strange that your LLMD doesn't do heparin. Get a Hereditary Thrombosis Risk panel and an Isac panel done. Hemex laboratories does them.Mine were very abnormal.My LLMD tried to make me do the injections every 12hrs but I just couldn't so now I'm on oral heparin.Blood clots can be very dangerous and if your blood is all thick then the abx can't flow through your blood and kill the lyme properly.
Posts: 124 | Registered: Sep 2004
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robi
Frequent Contributor (1K+ posts)
Member # 5547
posted
Let me start by saying I don't do Heparin and don't know anything about it. I am posting this because I found it while looking for something else and remembered this was a topic on the board.
"It has been suggested that the use of heparin will address hypercoagulation. Recent data from JAMA (Stephenson 2001) indicates that the use of low dose heparin may transform a 'benign fungal infection into a toxic shock-like reaction'. This research was presented at the 39th annual meeting of the Infectious Diseases Society of America in 2001 by Margaret K. Hostetter, M.D. of Yale University School of Medicine (Hostetter 2001 and San-Blas et al 2000).
Hostetter and colleagues found that Candida albicans can attach to host cells and form invasive hyphae. Low dose heparin utilized in procedures for hospitalized patients through the practice of heparin in intravascular catheters may transform C. albicans into a life-threatening pathogen. Hostetter was able to identify a gene, INT1, encoding a C. albicans surface protein, Intlp, which was linked with adhesion, the ability to grow filaments and ultimately virulence of C. albicans of a systemic nature.
The use of heparin raises the cytokines TNF alpha and IL-6 (Stephenson 2001) in addition to Phospholipase A2 (Mudher et al 1999; Kern et al 2000; Farooqui 1999; Verity et al 1994). Biotoxins which form neurotoxins, may create a state of hypercoagulation from the rise in TNF alpha. Consequently, the use of heparin may exacerbate the hypercoagulation and the neurotoxic condition. The source of the problem- biotoxins, which have formed neurotoxins creating a state of hypercoagulation, must be addressed from the context of the underlying neurotoxic condition and healing the cell membrane."
[This message has been edited by robi (edited 04 January 2005).]
posted
There is an enzyme called nattokinase that reportedly helps with blood issues. The following is from the Nutricology website -- www.nutricology.com
Each 2 capsules contain: Nattokinase (1440 FU) 72 mg Other ingredients: Soybean oil, soybean lecithin, glycerin fatty acid ester, beeswax.
Suggested use: As a dietary supplement, 1 to 2 capsules two or three times daily, or as directed by a healthcare practitioner. May be taken with or without food. Take with 8-10 ounces of water. If taken with anticoagulant drugs, use under medical supervision. Contraindicated in any condition associated with bleeding.
Description: NutriCology pioneered the introduction of nattokinase to the U.S. market in 2002. All nattokinase is not created equal: We tested recently introduced products and few meet the standards of Dr. Sumi, the discoverer of nattokinase, and Dr. Holsworth, the leading U.S. researcher of nattokinase. NutriCology offers only the patented NSK-SD� formulation with no Vitamin K, which is the only form that has been tested for safety. Each batch is tested to ensure potency.
Isolated, purified and encapsulated nattokinase, an enzyme derived from boiled soybeans and Bacillus natto. Research has shown nattokinase to support the body in breaking up and dissolving the unhealthy coagulation of blood and to support fibrinolytic activity.
Note: We originally offered Nattokinase which had 276 mg per 2 capsules, yielding about 1000 FU (FU means fibrinolytic activity, the ability to dissolve blood clots). We are now using Nattokinase with a higher potency, yielding 1440-2000 FU per 2 capsules. *These statements have not been evaluated by the U.S. Food and Drug administration. The product is not intended to diagnose, treat, cure, or prevent any disease.
Posts: 142 | From Flyover Country | Registered: Aug 2004
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posted
aklnwlf, I also take Boluoke.You should get an Isac panel done.Won't your LLMD at least give you the Isac panel test? If you get the test done and it is abnormal then you should go to someone who understands how to treat your blood abnormalities. My messed up blood Symptoms I didn't get out of breath and I have normal to low blood pressure.But all of my extremities would always swell and turned all sorts of colors (puple,blue,red).Sometimes it would get so bad that the ends of my fingers would blister.Maybe that was from something else?I also get chest pains and am always dizzy.You should really get tested before it gets worse.I really don't know much more about it.
[This message has been edited by trecetetodromonmetabia (edited 18 January 2005).]
kgg
Frequent Contributor (1K+ posts)
Member # 5867
posted
www.hemex.com You can call them and request the practitioners in your area that use their facility and are willing to have their names given out.
If that doesn't work, I would contact the support group in your area and see if they know of a physician that is using heparin. Fibromyalgia and Chronic Fatigue Syndrome are also treated with heparin, so you could check their support groups also.
One warning. When you start the heparin you will get a major herx. The mycoplasma has been hiding in the excess fibrin and when you add heparin, the pathogens are exposed. The immune system then becomes active.
I just edited this to correct the product name. (Sorry about that.)
Well, I don't know anything about heparin. Dr. C. carries Boluoke made by Canada RNA Biochemical, Inc.
From Dr. C.'s website; "Buluoke is lumbrokinase, an enzyme formulated from earthworms that I recommend for those with hypercoagulation.
Lumbrokinase is the closest treatment to heparin that I can get without actually prescribing heparin, as far as I know." Price $54
Also, have you been treated for Babesiosis? My symptom was shortness of breath. Mepron & Zithromax were used to treat it. I would have never guessed in a thousand years I had Babesiosis. My test was negative, too. Just a thought.....,
You're right. It'd be best to get some testing done for blood clotting problems.
Best Wishes, Jan
Edited to correct product.
[This message has been edited by Recipegirl05 (edited 05 January 2005).]
aklnwlf
Frequent Contributor (5K+ posts)
Member # 5960
posted
Hey there everyone,
Thanks for the input. Think I'll call Hemex lab and see if there is a practitioner in my area.
Can't remember which one of you mentioned blisters on your fingers but I have peeling fingertips the past couple of winters.
Just can't tolerate the cold anymore which is a bummer since all my stuff is still in Alaska. Of course no lyme treatment up there. Looks like I'm down in the lower 48 for the long haul.........
I'll post again when I figure out what's going on.
Posts: 6918 | From Columbus, GA | Registered: Jul 2004
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