riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
I've finally started IV and herx hell has broken loose. My heart rate, which tends to be very sensitive, has been running elevated and hard. Not full out tachycardia, but running between 95-105 at rest.
I'm also passing out in the afternoons, which the doctor is telling me is a paradoxical reaction with the elevated heart rate. Usually you get one or the other.
He is thinking the herxing is all nervous system, and screwing all systems up. I'm not sure, but the passing out may be related to low blood sugar.
I'm also running very fine tremors, as well as twitching and jerking, my temp has dropped really low, and feeling very anxious.
The doc wants me to keep infusing, but to take beta blockers to bring down the heart rate, and to eat more to try to keep the blood sugar running OK. How much more can a girl eat?
I also got back my first labs that show abnormal signs. Nothing is really off yet, but my BUN and Neutrophils are low, and my MPV and Eosinophils are high. ususally everything is very middle of the road.
I HATE taking more drugs, tweaking things up and down. What's the scoop on beta blockers? Anything I should know or watch out for?
This whole thing is scary to me, as I don't usually have some exxagerated neuro symptoms. Mine have tended more toward memory problems, word finding issues, and neurological pain.
Passing out is the worst. Fortunately I'm not dropping like a rock, more gradual, so I don't think I'm in danger of falling, but once I'm going, I'm gone.
beachcomber
Frequent Contributor (1K+ posts)
Member # 5320
posted
River:
I took a Beta Blocker while on IV Rocephin. It really did help to calm things down, including my anxiety. But, as the Bb load lightened I started passing out because my blood pressure had gone from very high to a hypotensing state. My MD took me off the Beta Blocker and the passing out subsided.
You just have to watch that your BP doesn't get too low. I had to experiment with different stregnths of Inderal until we found the right dose that settled my heart but didn't drop my BP too low.
I was told to take my pulse frequently. It might not be a bad idea to pick up a BP monitor. Just dont' go nuts and take your BP several times a day - you'll make yourself crazy because it does fluctuate.
lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
high eosinophils could mean a parasite infection...have you been checked for babesia yet?
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Thanks, BC! I will watch my blood pressure, as it tends to run low anyway. I have a blood pressure monitor because I thought maybe I felt like I did because it was too high. Instead I tend to run low blood pressure and high heart rate.
Lisa, my doctor is suspecting babesia even though all of my many tests have been negative. I responded to artimisinin with an increase in symptoms, then some improvement, so it looks like yellow paint might be in my future.
I found out the med I'm to take is Toprol XL. Any more feedback?
lymeinhell
Frequent Contributor (1K+ posts)
Member # 4622
posted
I've been on Toprol XL for over a year now. It takes a little getting used to - takes about 45 minutes to kick in, and may make you a little dizzy at first (even says so right on the rx).
Make sure to take it with FOOD! No one pointed that out to me - it'll rip up your stomach if you don't.
The bp monitor is good to have handy when first starting the bp meds - it typically takes a while to find the right dose. Too little - you end up with the heart palps. Too much - you'll be feeling faint every time you stand up. (been there, done that)
How's your yeast situation? The BUN and Neutrofils could be off because you could be headed for a UTI - increase your water intake dramatically and take cranberry pills to give your bladder a good flush.
If you do have problems with yeast, it could also be lowering your blood sugar. And cause memory problems and brain fog and muscle twitching....
Eat often - little meals, little snacks (almonds are always good to have handy).
------------------ Julie G. ___________ lymeinhell
Posts: 2258 | From a better place than I was 11 yrs ago | Registered: Sep 2003
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posted
I take beta blockers for high blood pressure. Most meds give me lots of side effects so I started with only 1/4th tablet. No side effects. This low dose turned out to be all I need. My Dr. was amazed. I'm sure a whole tablet would have caused problems and would have been way more than I needed.
Over the holidays I forgot the beta blockers a few nights. Herxing was also much worse. Now I'm wondering if there was a correlation.
I need to eat frequently. Lots of little meals. My symptoms get much worse if I'm hungry. I'm on a strict anti yeast diet. I also need more protein than I used to and feel better if I add more fat to my diet. (before Lyme I was on a low fat diet). I keep nuts in the car as emergency food.
riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
Well, one 25mg tablet and two hours later and my HR is still 111. I'm supposed to be able to take up to four at a time, but I presume I should give it more time. It is the extended release.
No dizziness, but it did cause a little excitement in the tummy region. Thanks for the tip off Julie! I did take it with a good meal.
I'm supposed to eat frequently, but I tend to get bored with it, so have to keep reminding myself. I absolutely have to eat enough fat and protein to stay balanced. Just lately I've had a harder time staying on an even keel, so will have to keep the nuts nearby.
I take Atenolol, another beta blocker, and it helps me so much. You probably only need a small dose, say 25 mg at bedtime. It calms down your heart rate and will make that symptom calm down. Its a good idea. Your may get lightheaded a little in the beginning as it takes about a week for your body to adjust to the beta blocker. Once it does, it works awesome and helps very much. I tried Toprol and it took too long to start working, I didnt like it. Atenolol rules, and it is cheap to get too.
posted
atenolol is a great drug. When I first started IV's I would go into tremendous atrail fibs. However, they would only last for ten seconds. I would clal the doctors and be like "what is happening to me? lol. I would go to the ER then it would go away. I told them I was getting weird heart sensation like some animal was trying to get out.The docs asked me if "I was ok mentally". Well the next day the weird thing happened again. I drove to the urgent care and then they called an ambulance to take me to the main ER. I saw the same doctor I had seen the day before. He hooked me up to the heart machine and told me I was in Afib. I called him a f#$#$# moron and told him he should believe his patients next time and not be such an a@##$#$le.
Anyway, ever since I have been given 7mg a day of atenolol. One quarter of a 25mg pill in the morning, and one quarter 12 hours later. More than that would lower my bp too much. This drug has saved me so much aggravation.
fortunately, rife has killed off most of my lyme. I am now doing 15 minutes every 7 days of the mag pulser and staying stable. I remember back in the days when I would stop abx and replase with in 3-21 days. Thank god those days are over.
My only real symptom left is a real bad sensitivity to certain chemicals like carpet cleaner and old molds. Bleach, windex, etc are fine.
The atenolol has been a big help with the big rife herxes too.
riversinger
Frequent Contributor (1K+ posts)
Member # 4851
posted
HR this morning first thing is still 95. The Toprol XL is a once a day med, so it looks like maybe 25mg isn't enough. I might have to try more when I take it this evening.
It does seem like my heart isn't pumping so HARD. I know what you mean, Mike, about that animal, but so far they have never found anything in any of the tests. At least mine is a small, timid animal trying to get out.
Glad you are doing well on rife! I'm still a chicken about electrical things , so I am still watching and waiting, but I love to hear that people are improving, no matter how they did it.
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