LymeNet Flash: Uveitis related to Lyme

LymeNet on Facebook

LymeNet on Twitter

Follow @LymeDiseaseNet

The Lyme Disease Network receives a commission from Amazon.com for each purchase originating from this site.

When purchasing from Amazon.com, please
click here first.

Thank you.

Dedicated to the Bachmann Family

LymeNet needs your help:
LymeNet 2020 fund drive

The Lyme Disease Network is a non-profit organization funded by individual donations.

»	LymeNet Flash » Questions and Discussion » Medical Questions » Uveitis related to Lyme

UBBFriend: Email this page to someone!

Author

Topic: Uveitis related to Lyme

dzeb
Member
Member # 4426

posted

Hi everyone,
I was wondering if anyone has any information or articles relating to Lyme uveitis? Any information would greatly be appreciated.
Thanks
Dee

Posts: 75 | Registered: Aug 2003 | IP: Logged |

flygirl
LymeNet Contributor
Member # 6669

posted

Hey Dee! It's Beth! how are you doing?

still hanging in, week 6 of the abx.

HOPEFULLY only 10 more weeks to go. one can only hope (I was told a minimum of 4 months)

Posts: 167 | From Ashburn, VA | Registered: Dec 2004 | IP: Logged |

Marnie
Frequent Contributor (5K+ posts)
Member # 773

posted

Most definitey! Sis had to resort to steroid shots IN her eyes to stop the damaging inflammation. At one point all she could see was the big "E" on a chart. She went to a uveitis specialist in Chicago.

The shots DID stop the damage although she has a LITTLE permanent damage in one eye.

She IS able to see well enought to drive now.

She was misdx'd and given steroids many years ago. So she was very concerned about using steroids in her eyes. They assurred her it had a local effect and was nec.

I highly recommend you try to get to a specialist.

Yes there is some lyme uveitis info. "out there". Start with www.pubmed.com and type in "lyme uveitis" in their search window.

Pubmed has abstracts (summaries) of med. research done around the world. Pay close attention to the title (ie., what are they looking for) and then the conclusion. You will get the gist of the research.

Posts: 9481 | From Sunshine State | Registered: Mar 2001 | IP: Logged |

flygirl
LymeNet Contributor
Member # 6669

posted

oh yeah, I have had a fair number of shots right in the eyeball. not a lot of fun but it sure does trump the "oh I hate it when that happens" routine with your friends!

Posts: 167 | From Ashburn, VA | Registered: Dec 2004 | IP: Logged |

dzeb
Member
Member # 4426

posted

Hi Beth,
I am dong Ok still on the ATBX. My Lyme tests are finally starting to come back negative after months fo ATBX therapy. Plans are to stay on the ATBX until March retest and if allis still negative possibly start to come of the ATBX. The uveitis has been in remisson for 16 months now and counting so plan is to come off the MTX in July. They are still calling Lyme uveitis very uncommon but finally believe that that is what caused my eye problems.
I had those nasty steriod injections to the eye as well. That was a big mistake that made my eye sx worse.
How are you doing?
Dee
Dee

Posts: 75 | Registered: Aug 2003 | IP: Logged |

riversinger
Frequent Contributor (1K+ posts)
Member # 4851

posted

Barb Peck has a lot of posts on uveitis. Do a search on her user name, bpeck, and I think you will find a ton of information.

------------------
Sonoma County Lyme Support
[email protected]

Posts: 2142 | From California | Registered: Nov 2003 | IP: Logged |

Printer-friendly view of this topic

The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:

The Lyme Disease Network of New Jersey
907 Pebble Creek Court, Pennington, NJ 08534 USA
http://www.lymenet.org/