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» LymeNet Flash » Questions and Discussion » Medical Questions » How do you get back?

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Author Topic: How do you get back?
cigi
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Member # 6600

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How do you get back to yourself mentally if you're in hell. You don't know if it's the lyme, you cracked, sleep disturbance - I dread another minute. Lost 5 lbs. this week with the anxiety alone, throwing up, can't eat. Just started oral zithromax last Monday - on IV rocephin and ended flagyl. My husband is supportive, but when you feel there is no emotional connection to you, your family...it's a bad place to be.

I'm on zoloft and klonopin.

Anyone help?

I have a 9 1/2 year old that I adore and he needs a mommy. I need a person back.

[This message has been edited by cigi (edited 09 January 2005).]


Posts: 320 | From Upstate, NY USA | Registered: Dec 2004  |  IP: Logged | Report this post to a Moderator
snowboarder
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Hi,

Have you tried calling the doc's office that gave you Zoloft and Klonopin? I'd start there first and see what they have to say.

How about going to a psychologist and doing counseling? I've not been depressed but if mentally your not doing well those might be some options for you.

I have an eight year old and understand what you mean by your child needing a mom.

Take care!


Posts: 738 | From Colorado | Registered: Oct 2004  |  IP: Logged | Report this post to a Moderator
twoangie
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I've heard of a lot of people who experience really bad anxiety on zithromax. The PDR mentions some of the following side effects from it: agitation, insonmia, feeling of illness, nervousness, overactivity.,,

I'm certain there is a whole host of other side effects that never made it to print. I know of one woman whose mother tried to commit suicide while on the drug years ago. The woman was not a Lyme patient so was taking it for something else but it just seemed to set her off. Some of these drugs are supposed to be highly effective so, possibly, it is related to a larger die off of the infectious organism and the release of toxins from their little dead bodies floating around?

When you get so stressed out, try to emotionally stop and take a time out to remind yourself it is the medication, not you.

I have included an abstract I found a year and a half ago, when I had a manic episode from amoxicillin. The abstract does not mention Zithromax specifically but there may be some research out there that does. There is no doubt in my mind that it can have this effect.

Take care,

Angie

J Clin Psychopharmacol. 2002 Feb;22(1):71-81.

Antimicrobial-induced mania (antibiomania): a review of spontaneous reports.

Abouesh A, Stone C, Hobbs WR.

Southern Virginia Mental Health Institute, Danville, VA 24541, USA.

The authors reviewed reported cases of antibiotic-induced manic episodes by means of a MEDLINE and PsychLit search for reports of antibiotic-induced mania.

Unpublished reports were requested from the World Health Organization (WHO) and the Food and Drug Administration (FDA). Twenty-one reports of antimicrobial-induced mania were found in the literature.

There were 6 cases implicating clarithromycin, 13 implicating isoniazid, and 1 case each implicating erythromycin and amoxicillin. The WHO reported 82 cases.
Of these, clarithromycin was implicated in 23 (27.6%) cases, ciprofloxacin in 12 (14.4%) cases, and ofloxacin in 10 (12%) cases. Cotrimoxazole, metronidazole, and erythromycin were involved in 15 reported manic episodes.

Cases reported by the FDA showed clarithromycin and ciprofloxacin to be the most frequently associated with the development of mania. Statistical analysis of the data would not have demonstrated a significant statistical correlative risk and was therefore not undertaken.

Patients have an increased risk of developing mania while being treated with antimicrobials. Although this is not a statistically significant risk, physicians must be aware of the effect and reversibility.

Further research clearly is required to determine the incidence of antimicrobial-induced mania, the relative risk factors of developing an antimicrobial-induced manic episode among various demographic populations, and the incidence of patients who continue to have persistent affective disorders once the initial episode, which occurs while the patient is taking antibiotics, subsides.

The authors elected to name this syndrome "antibiomania."

[This message has been edited by twoangie (edited 09 January 2005).]


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kam
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I am going to attempt some humor here regarding your question on how to get back.

Ok Just get back in your car and return to the spot of the scene of the crime. Squish that little vermit with a heavy mallet.

OK. All is well now.

On the other hand...it is pretty scary when the mind is not co operating too.

I found zoloft made me worse and actually depressed me. Others have found it has helped. So keep an open mind.

Mommy's tend to forgot to listen to their own bodies and want to do for others.

In order to be able to do this again, you need to take care of your first and be patient with yourself.

I think of myself like a car at times that isn't able to run like it use to because not all the wires are connected under the hood or the spark plugs are fowled (freudian slip), etc.

I will be starting zithromax soon so I will let you know if I too do not dance very well with it.

Sleep really makes a big difference with me. NOt over doing it makes another big difference.

You are right. There are so many factors going on it is tough to see the forest for the trees at times.

Give yourself a hug for me and remember...tha this too shall pass...at a turtles speed not the rabbit...but it will pass. Afterall the turtle did win the race.

It also helps me to let those people who are making a difference in my life know what they mean to me and show appreciation.

It is great that your husband and son are supportive. Give them a hug too.


Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002  |  IP: Logged | Report this post to a Moderator
DawnE
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Hi Cigi,
When I first got Lyme in 1998 I suffered from severe anxiety like you have and found Klonapin did nothing or actually made it worse. Trying differents meds to find the one that works for your body is a good idea. I found elavil best for me. My anxiety went away completely after 7 weeks on IV Rocephin anyway. How long have you been on it? Hang in there, It will get better!

DawnE


Posts: 158 | From Great Neck, New York | Registered: Sep 2002  |  IP: Logged | Report this post to a Moderator
cigi
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Thanks for your remarks. I'm on rocephin 8 weeks,klonopin ususally cuts it for me, but not lately. Rocking, shaking, thoughts... I appreciate all your advice. You wonder if its me, meds, espcially when you've been prone to anxiety for your whole life.

I hope everyone gets the rest they deserve.

Thanks.

Cigi

[This message has been edited by cigi (edited 09 January 2005).]


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jlovelace
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I am so sorry you are at this point! I had the same siutation, depression, neurological issues to the extreme. I went back to my pyschiatrist and he played with my meds a little and gave me one specifically for anxiety/panic. I also have a wonderful clinical therapist who counsels but also looks at it from a nurses viewpoint. I wish you the best of luck!
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Paisley
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dear cigi,
I want to reach out and share a story with you to help you get back. I know. I am there as well. Everyday. I live for my 4 and 9 yr old boys. But on some days I also need another gentle reminder.

My help is knowing how truly precious each day is. I have no idea how I live through the horrific pain each day. I suspect its my faith.

On May 3, 04 it was kind of like any other day. I was a more tired than usual, but tried to sit at my desk to sort out med bills and ins. stuff. Suddenly I felt as though I couldn't stay up any longer and decided to go take a nap. I was so tired.

Before my head even hit the pilllow, there was a sudden confusion, weakness all over my body and what felt like a lightening bolt go through the left side of my brain. As confused as I was, I was coherent and believed I was having a stroke.

I barely dialed 911 and crawled to the front door. I couldn't walk at that point and my arms were shaking like parkinsons disease. Over the next hour I became paralyzed from the feet up. I was never more scared in my life.

The firemen were there but they thought it was a drug case, so they didn't take it that seriously. When the time came for them to put me on the stretcher to take me to the hospital I was getting to the point where I was having a hard time breathing. I tried to tell them I would need a breathing tube. As they were putting me into the ambulance everything that I've ever known changed.

My throat closed up completely and I could no longer breathe. I had already starting floating out of my body. I remember the pain being gone for the first time. I heard a loud rushing sound, felt a strong magnetic pull and then I saw the brightest golden light one could imagine.

Suddenly I realized what was happening. I was dying and I was leaving. I remember starting to cry at least in my heart and thoughts because I remember thinking I don't want to leave my boys yet. And I haven't finished my work on earth yet. Then, as quicklly, my throat opened up and the mangetic feeling, rushing sound and light faded away. I kept hearing "Learn and teach" over and over. I knew that it was a near-death experience right away.

I remained paralyzed for the next 8 hours. I lay there wondering what my new life like this would be like. I went from being unable to walk, to a cane and now I can walk on my own for about 10 minutes a day. It truly was a miracle. I cry as I write this.

Believe it nor not it was guillan-barre syndrome brought on by a root canal the week before. The infection in my mouth had gone straight to my brain. It showed me so much in such a short period of time, but mostly, that each day matters. Especially for your child. As many days as he/she can have with you. The other thing I realized is that I belive that each of us as had so much taken away from us and I believe we need to find ways to become whole (spiritually) again.

Now, the next question for me is now that I'm back what am I supposed to do with this info. I figured telling you was part of the bargain that I heard in the moments coming back.

It scared me enough to think of each day separately than just the big picture.

Please let me know if there is anything else I can help you with.

With loving energy
Paisley


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liz28
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I've never taken anti-depressants, but do take Celebrex, an anti-inflammatory, and L-theanine, a green tea extract from the health food store. In my very, very personal, subjective opinion, the psychological symptoms were a sign that the Lyme and its co-infections weren't being treated effectively. Every time I've been off the wall upset, it's turned out there was an underlying physical cause.

People have suggested bromelain as an alternative substitute to Celebrex. You may want to look into various anti-inflammatories to see if there is one you are willing to use. In my case, the Celebrex turns my mood around within ten minutes.

Again on the personal experience note, I found that ketek, the next generation of zith, to be far more effective. In my case, it was SO effective, when paired with omnicef, in quickly reducing Lyme symptoms, that it uncovered two co-infections.


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Paisley
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I also wanted to mention that I bolster myself with everything I know how when the war (neuro/pshych) stuff gets going. My llmd said that its the babs that does so much of the psych symptoms like depression lack of interest, etc. He looked at me straight in the eyes one day in his office and said, "Are you ready, this is going to be war." I have no idea why, but when he put it like that I was able to look at it differently.

I'm am working with a therapist because she knows how fragile and vulnerable I am (just for the time being - i'm coming back to fight hard for LD). I'm on wellbutrin, klonopin for the psych stuff and of course all of the other crap for everything else.

I hope you find some peace soon.
With much concern
Paisley


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