posted
Could be my brain but I can't seem to find tx guidelines for bartonella in kids under 12. What does Dr.J use? Is it documented anywhere? thanks kt
Posts: 740 | From BC Canada | Registered: Mar 2003
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posted
thanks heart,is your daughter doing better with tx? How long do you think she'll be on zith? Do you think he intends to change or add to her abx eventually? Hope she improves perfectly and quickly! No child should be subjected to this rotten illness! kt
Posts: 740 | From BC Canada | Registered: Mar 2003
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
dr. jones put my 10 year old on minocycline and rifampin for 6 months ,then switched to mino and zithro for 6 motnhs..seemed to have gotten it all..he's abx free now and doing great!
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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quote:Originally posted by krazykt1: thanks heart,is your daughter doing better with tx? How long do you think she'll be on zith? Do you think he intends to change or add to her abx eventually? Hope she improves perfectly and quickly! No child should be subjected to this rotten illness! kt
Yes, she's doing very well right now on Dr. J's tx. My daughter's been over a pretty rocky road and down a very slippery slope before we finally connected up with Dr. J. Now, after having been under his treatment for just under 2 months time, it appears that she's well on the road to recovery. If all continues to go as it is going right now, she should be off abx in approx. 6 weeks time (total time on abx by then will have been ~8mths). As far as I'm concerned, Dr. J's face should be carved into Mt. Rushmore.
I'm sorry, but the other questions you asked are impossible for me to answer. With Lyme/Bartonella no one could possibly know which way it's going to turn. Same with any of the other Lyme/coinfections combos.
Dr. J is optimistic in our daughter's case, but he has made it very clear that things could turn without a moment's notice. Still, it wouldn't be the end of the world. Her case would have to be re-evaluated and tx would be adjusted accordingly. That's just the way it is in the Lyme world. Ya just nevah know....!
But for now things are going well and that's all I can possibly hope for.
cootiegirl
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Member # 3216
posted
Hi My coinfected (lyme/bart)kiddo is 12 - just on the borderline of your question. He was started on zith alone for a few weeks to see how it was tolerated, then had rifampin added. He started experiencing some big ankle pain, so he was taken off the zith, and given bactrim with the rif. He had a negative Bart test this last appt and is seeing some improvement in cognitive abilities, so it looks like we are moving in the right direction!
His latest med change has been off the bactrim, off the rif and back on zith with plaquenil....the ankle pain might well be some hidden lyme ketes that the zith stirred up, so the zith is going back in after it....here's hoping.... cootiegirl
Posts: 1728 | From New York State | Registered: Oct 2002
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cootiegirl
Frequent Contributor (1K+ posts)
Member # 3216
posted
Hi My coinfected (lyme/bart)kiddo is 12 - just on the borderline of your question. He was started on zith alone for a few weeks to see how it was tolerated, then had rifampin added. He started experiencing some big ankle pain, so he was taken off the zith, and given bactrim with the rif. He had a negative Bart test this last appt and is seeing some improvement in cognitive abilities, so it looks like we are moving in the right direction!
His latest med change has been off the bactrim, off the rif and back on zith with plaquenil....the ankle pain might well be some hidden lyme ketes that the zith stirred up, so the zith is going back in after it....here's hoping.... cootiegirl
Posts: 1728 | From New York State | Registered: Oct 2002
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posted
My daughter was PCR+ for bartonella at age 5 (lyme too). Dr. Jones put her on Amoxicillan (for the lyme) and Zithromax (a 250 mg. tablet each day) for bartonella and lyme.
She's been on this combo for 10 months and doing wonderfully.
Most of her life she had numerous bartonella-induced psycho-rage-behavior episodes (we always thought something medical or mental was wrong, but didn't know what it could be...) Poor thing, she used to say she didn't understand why she acted that way She would be fine one minute and hysterical biting, kicking, screaming things that didn't make sense the next minute, ... As she got older it became clearer that she couldn't even recall what had just happened...like she was possessed.)
Dr. Jones immediately thought of bartonella and, yup, she was positive. Slowly (after 3 months or so) we began to notice she was having less and less of them. And now, thank God, 10 months later, she is one little sweet happy even-tempered little girl.
After 9 months Dr. Jones put her on Flagyl and Zithromax (to target lyme) and we haven't retested her for bartonella yet. Assuming it's gone...hoping...
Leslie
Posts: 340 | From Harrisburg, PA | Registered: Jun 2003
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posted
thanks everyone so much for all the great input! I was inquiring regarding my Grandson who like his mom and I, all have bartonella. As heartbreaking as it is for anyone to have this, it's horrendous to think a child ......kt
Posts: 740 | From BC Canada | Registered: Mar 2003
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She would be fine one minute and hysterical biting, kicking, screaming things that didn't make sense the next minute, ... As she got older it became clearer that she couldn't even recall what had just happened...like she was possessed.) 
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