I fired my daughters old pediatrican in November and now have a new dr. but haven't told her what's going on.

Healthcare providers do not think lyme exists in this state.

Any suggestions?

I was standing in your shoes a couple of years ago...

My son was tested for lyme and he got a positive titer, but inconclusive western blot. So his PCP following what he read in his book, prescribed 3 weeks of amox and thought all was well.

With the help of my LLMD, the folks here and the great Dr.Jones, we convinced our pedi to give my son a referral to Dr.Jones ( pedi LLMD in CT)

My husband ended up going to the office visit with me and we both pushed the pedi up against the wall when we asked him...

if our son didn't have lyme, than what was causing his continued chest pain, joint pain, headaches, mixing up his letters, difficulty retaining information, testicle pain, etc..

The pedi tried to explain all this away as growing pains, but eventually opted to give us the referral..which the insurance denied.

I was on the verge of finding a new pedi when my daughter got violently ill with severe vomiting and high fevers that lasted over 6 weeks ( she was diagnosed with Cyclic Vomiting Syndrome when she was 18 months old)

To the pedi's credit, he sent her to the Children's hospital to see some specialists. There they did a routine lyme test and it was positive.

Again, I was told she didn't have lyme, despite her positive WB, I was told she had an auto immune disorder.

So the folks here once again advised me to get her to Dr.Jones. When I brought my children into the pedi for a follow up and to request a referral for my daughter to Dr.Jones,

he couldn't believe the improvement in Derek, and admitted that he knew little about lyme and would look into getting her to see Dr.Jones.

He called Dr.Jones personally and faxed him my daughters test results. So the pedi decided that they needed to both be seen by a pedi specialist for lyme and somehow by the grace of God , got the insurance company to approve referrals to Dr.Jones for both children..

And he has been working closely with Dr.Jones ever since. Dr.Jones sends him a report after each follow up visit and if the pedi has any questions, Dr.J has always been willing to answer them.

It takes alot of my mind as a mother, having both my child's pedi and LLMD work together to help get my kids healthy. I feel like they have a team of specialists devoted to their recovery of this disease.

So if you have a good relationship with your daughters new pedi, I would say it would be a benefit to have her involved with your daughters care and her LLMD.

If on the other had the new pedi seems close minded, I would let the LLMD take care of her lyme issues and the pedi take care of the everyday childhood things...

But I think it would be great if you could find a pedi who would join the team, if you will and work jointly with her LLMD.

I know when I was dealing with the extra fluid in my son's brain last May, I was lucky to have Dr. Jones be able to call our pedi and speak to him and order tests...

Our LLMD is 4 1/2 hours away and in my son wasn't able to travel, so it was nice that his two doctors had this relationship...

Just something to think about..

Best wishes!

~LymeBrat

I wonder if your pedi is willing to share his new understanding about Lyme with other pediatricians?

I take my son to see Dr. J in Ct, my son has made alot of improvement since seeing him, he is the best!!