They don't seem to coincide with what I eat though. Sometimes I will eat something sugary and it will be fine and other times I won't have anything and they are extremely high.

I was diagnosed with LD 2 years ago and diabetes a year or so ago. I am on Actos 30mg in am and Fortamet ER 500mg in pm. Could these weird blood sugar levels be lyme related?

I am sure that this is half the reason I am not getting better. None of the medications or supplements I take can do their jobs if my blood sugar is so "out of this world". ICK!

Thanks once again for any advice or info.

Her blood sugars are all over the place but often above 300..We have had some off the meter and many in the 4 and 500 range..

She is starting Actos again with Cholostramine(?sp) and her llpsych is concerned about the actos affecting her sugars.

Good luck. I think everything is harder when you have both things to deal with.

I had been undiagnosed for probably 15 years or so. I remember having a weird circular rash when I was in my teens, but the drs told me it was a fungus from tanning beds.

They could not explain why it didn't go away even after using several creams and even some pills. I didn't know any better back then, so that was that and eventually the rash did go away.

Looking back though, if it had indeed been a fungus infection from the tanning beds I don't think my stomach would have been the place I would have broke out.

With fungal infections you have an outbreak where you contact your source of infection, which would have been on my back or butt or legs/arms even.

The only place I had the rash was on the upper part of my stomach. Looking back now I realize that it probably was NOT a fungal infection.

With the diabetes I have no family history. I mean nothing! Our family has alot of things, but diabetes is not one of them.

I know that doesn't mean you can't get it, but it's just so odd. I just wish I could get my levels more under control.

Nothing can work right in a body, including antibiotics, that has such high blood sugar levels.

It is sooo frustrating! I too believe that it is Lyme related in some way. It is just too coincidental.

Thanks for the post!

I am Type II diabetic, and I take Actos, but it raises my AM blood sugars for some reason. It takes as much trial and error with Diabetes meds as it does with Lyme meds. Are you seeing a good endocrinologist for your diabetes?

Wizard

Type II diabetes seems to be a real problem after getting TBDs.

We really need to address this,as a group, as we have lyme disease.

Have any lyme researhers done anything in this respect?

Two causes I seem to have identified are
inflammation, and antibiotics.

I once heard a radio-physician making a comment to a caller about her antibiotic(s)
"...jellying her pancreas..." He gave no explanation,nor the mechanism by which they did so.

Unfortunately we never got the result he had hoped for...

I have wondered, since being dx'd with lyme in Dec. if there is a connection. I have been dx'd with so many things and now I wonder if they are all related to lyme.

I don't recall the radio-doc's name, as this was over two years ago.

Secondly, while I can certainly see how this could be true, the tenor of his comment was also in the service of painting abx in a bad light, and thereby hope the the caller sees him for whatever non-abx treatment(s) he had to offer.
My guess, w/o basis in fact, since I haven't researched it, is first, the abx itself could cause this directly.

Secondly, massive inflammation induced after the abx did its job, caused the jellied pancreas.

Third, both of the above, to their respective extents.

There was no connection with lyme and the caller.

So, with lyme, one major key to minimize inflammation,(not quell it altogether) is to treat the inflammation, perhaps even before giving the abx.

One site for leads to controlling blood sugar: http://www.garynull.com

There are many easy-to-find sources for controlling blood sugar.

I haven't explored them yet, so I have a paucity of information w/rt to deranged carbohydrate metabolism.

dq

Lymemomtoo and I have kids with type 1 diabetes. Having Lyme as well certainly affects the course of type 1, with blood sugars very variable due to flares and also due to meds.

Type 1 is an autoimmune process by which the insulin-producing cells in the pancreas are attacked by one's own body and destroyed. It is conceivable, perhaps, that the Lyme bacteira could trigger this autoimmunity, as it does very clearly trigger other types of autoimmune activity. People having the HLA-DR4 marker might be more susceptible to this.

In my daughter's case, ti is pretty clear that the cocksackie virus triggered this attack, but perhaps other organisms could.

Type 2's still have insulin production going on in their pancreas, but for a variety of reasons their bodies are not using it properly, or are "insulin-resistant."

I would think that since Lyme affects the endocrine system in lots of ways (as our endocrinoligst constantly says) that it could mimic Type 2 diabetes, or even trigger it.

This would be similar to a situation in which the thryoid hormones are being produced in the right amounts, but are not being used well by the body, as has also happened to us w/Lyme.

In addition to my daughter having type 1, my tow other kids have ahd "ketotic hypoglycemia," another condition of the pancreas which involves early am low blood sugars (severe) wiht high ketones (toxic) which made tham shake, or even be unresponsive, followed by hours of continuous vomiting.

I have wondered for years why all 3 had issues w/pancreas. My pre-natal care was excellent, births were fine, no family history. This past year, all 3 have tested postive for Lyme and presumably they had it at birth.

This entire thread speaks for the need for the entire endocrine system being evaluated, what is known of it.

I was addressing type II diabetes, and its apparent emergence after a lyme and/or other TBDs, and/or drug treatment for the latter and former.

I humbly bow out of this discussion due to insufficient knowledge and experience with this condition and defer to those with knowledge and experience with it.

Furthermore, I'd like to propose that the knowlegeable, and experienced both in Type I, and Type II diabetes start a separate discussion thread on this topic, and its various aspects.

I should like to proffer topics to cover:

1. Type I and lyme
2. Type II and lyme
3. Inexpensive testing kits; leads and links to testing sugar, hormones, etc.
4. Expensive testing kits; leads and links as in No. 3
5.0 Leads on the management of:
5.1 Type I
5.2 Type II

5.3 Conventional management
5.4 Unconventional management, no matter how "bizzare-sounding," so long as these treatment "modalities," have proven efficacy in:
5.4.1 Conventional peer-reviewed lit.
5.4.2 Unconventional peer-reviewed lit.

Thats all that I can think of for the moment.

For starters, flash-discussion section is loaded with links and leads to endocrinal sources.

I intend on doing a self-study, "impaling" my fingers on "spikes" many times a week,-- --for a month, at different times of the circadian rhythm for the purpose of studying my metabolic rhythm of carbohydrate processing, and/or to the extent of its derangement.

Thanks for your consideration and accommodation of this request.

dq

Wish I was intelligent enough to be a Dr or do lab studies but I must accept the hand I was dealt. CRS!..And with dyslexia, I get very confused with much of this especially the acronyms used in medical literature..So I would not be the one to persue this..

I hope that someone will do some studies..I have this gut feeling that there is a major blood sugar thing going on due to the lyme, other tick borne diseases or the neurotoxins..I am sure it probably affects both type 1 and type 11 diabetes..