lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
anyone who has it from time to time when they herx, does it also make you feel weak too? when i get it , it makes me feel so weak all over, like I could pass out from it...it feels like it's in my brain, but also makes me alittle nauseaus and feel yucky and weak...when I was at my kids visit dr. jones explained like a kind of neuropathy of the brain..when it feels like it's vibrating in there adn mushy...
right now I'm experiencing it, as I'm going through a healing crisis with my starting my acupuncture again, and my herbs etc...I hate the pressure feeling in the front of my head...
they've done a million cat scans etc..but I'm always so afraid i have cancer/tumor or something ....I know that's really sillly, but others must have these thoughts also...no? if so, please fill me in, as sometimes i feel like i'm the only one who feels this scared ....
MOst of the times I can be strong..but when i go through these periods of weak feelings etc..I get very scared..even though they've ruled out everything....
thanks,
lisa
[This message has been edited by lla2 (edited 25 January 2005).]
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
thank you..i'm sitting here at midnight, just waking up after horrible nightmares thinking i'm dying ....my head is full and trembling, adn i keep having heat flashes...
I know i am flaring after my accupuncture and start of herbs, but it feels like i'm dying and i feel very alone...
thanks for responding to me.
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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posted
I shake much lately, but until my blood work comes back, and spec scan too, I'm going to have to live on xanax to function. This too shall pass. Herxed last night - flu like so bad, chills, passed with x-strength tylenol. I think this whole disease is an endurance test. I'm hoping for white lesions to explain why I'm feeling like this, yet so afraid to have them cause Idon't know what to expect next with this damn disease. My whole last year is saying "that's why there's God".
God bless
Cigi
Posts: 320 | From Upstate, NY USA | Registered: Dec 2004
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posted
Endurance test is exactly right; how long can you go on with this misery. Day after day after day, when drugs just make up feel so awful, so much worse than before you were diagnosed.
Xanax is the only thing that helps me when the vertigo is so awful I think I am going to have a seizure. I keep it to a absolute miniumum, but if I ever get well (or better) will probably have to go into rehab. Truly I don't care anymore.
There are days when I think about giving up these hidious drugs and going the alternative route which my holistic doc suggested at the beginning. I am beginning to doubt I will ever see any improvement.
Bad, bad day for me Lymelday
Posts: 484 | From Fredericksburg, Va USA | Registered: Sep 2004
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lla2
Frequent Contributor (1K+ posts)
Member # 2364
posted
the weird thing is I was at 95% better this summer then this weird head thing started... once amonth or so it builds into this anxiety, fullness in the front of my head.where my head inside feels like it's vibrating, adn it makes me sick to my stomach...it makes me lightheaded, my whole head then gets full and i get very dizzy, hot all over etc...
no one knows what it is, not neurologists, had vestibular testing etc...lyme dr doesnt' know what it could be..have tried every med in the books...what could it be?
It has me so scared now....it makes me feel so sick adn weak when i get it, and now i'm getting it more nad more often.trying accupuncture and herbs now, adn cranial sacral work....right now i think i'm herxing or having a healing crisis from just starting those ....but I don't know how much more i can take...
it's like everyone has given up on me...
i've gone from 95% to 10% with no new bite and nothing new happening to me...what's up...
I'm just scared and feel alone ....
Lisa
Posts: 4713 | From saunderstown, ri Usa | Registered: Apr 2002
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posted
My worst herx was last month. I get very weak and can't sit up. My head especially my ears feel full and there is vibrating that feels like my blood is electrical. It is worst in my arms but at the worst times I think my whole body felt like it was vibrating. I was way too out of it at that point to note exactly which parts of me felt vibration. I think my head was vibrating too.
After a bad week I usually have a transitional week followed by 2 good weeks, then these symptoms return to some degree. I think last month was especially bad because I switched antibiotics 3 weeks before.
posted
Fogginess? I can sure relate to that. Your sure not alone. Can last for a week with me, no driving or trips to town. It is one of the scariest symptoms, thinking the mind is going. Hang in there!
Posts: 27 | From Santa Cruz, CA USA | Registered: Apr 2004
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