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» LymeNet Flash » Questions and Discussion » Medical Questions » A Caution about Osteoporosis & Lyme

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Author Topic: A Caution about Osteoporosis & Lyme
nan
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I have met several young women who have chronic lyme and also have been diagnosed with osteoporosis. I also have it.
Apparently this disease can contribute to this condition which can be very serious.

I would urge anyone who has had lyme for quite a while to ask your doctor for a bone density scan. Simple...painless, and quick test..but
to catch it in early stages can avoid serious problems later on.

Women should be taking 1200-1500 mg. of calcium per day. Take no more than 500-600 mg. at a time because that's all your body will absorb.

There are no symptoms of osteoporosis in beginning stages.


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lifeline
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Hi Nan,

You are absolutely right. I've had osteoporosis pre-Lyme, but it was always controlled with Fosamax, lots of Calcium and exercise.

Since Lyme, my bone density tests have been worse even with all the meds and exercise.

So, true, Lyme does affect your bones...anyway, it did mine.

lifeline


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nan
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Hi Lifeline,

I could not take the fozamax...terrible pain...am now on Miacalcin.
If you are an older woman these drugs can be helpful...but doctors don't like to prescribe them to younger women as they don't know the long term effects of them.

One friend with chronic lyme is in her early 40's and I urged her to get a bone density scan. She was shocked to find out that she had it and went to a specialist.
She has been taking her calcium and exercising while fighting her lyme.

Her latest test shows that her osteoporosis has worsened. I am almost afraid to get another one since hearing her results.

Wonder why this occurs with us? Is it the abx? or inflammation? or what? Do you know?
Nan


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Paisley
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I also would urge all women with lyme to begin to research and be as proactive as possible regarding their bone density. I have posted before regarding this topic.

I've had lyme for 20 years, but didn't know until last Nov. still had it. Diagnosed and "cured" in 80's.

We could not figure out how I continued to have so many odd symptoms. One was that i have lost almost 4 inches in height in last few years. My spine is slowly compressing. I'm 40ish.

Don't quote me, I believe this has to do with the very delicate balance between Mag., Calcium and Vit. D. ...in addition to all of the the other vitamin/mineral insufficiencies.

I have been doing DEXA scans (bone scans) since learning about my bone loss. Still losing, but not as quickly. I am on Fosomax w/Vit. D. and of course calcium.

I also inadvertently learned that all of the dairy products that I was consuming for calcium actually may have backfired and caused additional bone loss. I can't explain at the moment, but if you would like this info. I can probably dig it up.

Best of health
regards
paisley


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Aniek
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They have also found that strength conditioning can help prevent osteoporosis. I know it's hard for many of us to exercise, but it can make a huge difference. Just a little light strengthening to build up muscle.
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lifeline
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Nan,

No, I don't really know why osteoporosis can be a problem with Lyme, but in my case, I believe a lot of it is the fact that I have been on thyroid (Synthroid) meds since a teen; I am a "senior".

My Synthroid has been changed on 3 occasions since Lyme. I believe Lyme messes with all of our hormones to the point that, again, in my case, it takes a lot of "trial & error" to reach a balance. I am still not there, yet.

Abx, of course, is not good for the bones, either, but who wants Lyme! So, we're in a Catch 22...sort of...

But, maybe with me, it is because I am early 60's, and have had (irregular) hormones all my life...thyroid, estrogen.

I am off abx right now (5 months), doing well on the German protocol of Diflucan, plus tons of supplements, herbs, exercise, etc.

Good luck, and do get those bone density tests. You might consider thyroid testing, also.

lifeline


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nan
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Lifeline...

Guess I have a few years on you. Your comments on thyroid interested me. My LLMD diagnosed me with hypothyroidism and has me taking Armour Thyroid. There may be a connection!

I did some research when the hypothyroidism came up...and discovered that, like you, people were having problems striking a balance with the synthetics. I have had no problems with the Armour Thyroid and feel so much better on it!

And you're right...no choice about abx when it comes to the lyme! Glad to hear you are doing well after 5 months off!


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just don
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Hi Ladies,

Hope you dont mind a 'guy' popping in on your convo. My reason for doing so was to inform people that NOT just ladies are subject to bone density problems.

I had a complete bone scan too and it showed where it was beginning. I am on the Fosamax too.

Hard to remember tho a once a week pill. And not eating, drinking or laying down for an hour afterward is a problem, sometimes, also, here.

So guys, get your bones scanned. It doesnt hurt a bit, you just lay there.

I think it happens to us because the keets eat up our calcium at a huge rate. Thats what makes my joints and hands hurt.

I take two Citricale every day and IF I dont I pay the price!!! It hurts worse than now.

And osteo- biflex with glucosomine and chlondridian(sp) is essential for me to lessen pain!!!

I also take "good" magnesium cause that is a major player too. I was taking Walmart stuff and that is worthless. Stay away from there for supplements.

Stick with your trusty dusty drug store where you get Rx's.

FWIW --just don--

[This message has been edited by just don (edited 30 January 2005).]


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bg
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Great topic. Oseoporosis runs in my family so when I turned 50, I had the test run and they found osteopenia; not quite 100% O.

WORST thing I'd every done in my life. They put me on a machine that went up/down the machine & wanted to STRAP me in as I was 200 lbs. NO WAY! Then it SHOOK violently the entire I was in there...nearly passed out since I'm claustrophic!

I too was taking calcium, vit. B, and glucosamine/MSM pills. I've been off all supplements since Aug. 04 when my LLMD started treating me w/abx and benicar.

Glucoasamine really helped w/my total body pain! I miss it.

Just Don, thanks for contributing from a man's point also! Could you edit your post and make paragraphs of 6-8 lines only for our brain fog! Thanks so much.

Betty G., Iowa


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snowboarder
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My LLMDtold me D3 was more instrumental than taking calcium. My mom and sister do not have osteo just me and I believe part of the reason is from taking Lupron for endometriosis.

My last bone scan was 13 months ago and I dread taking another test. I used to be a long distance runner and still managed to get this awful disease and I'm early 40's.

My MD said Ipriflavone helps alot who knows.


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Lynn Lymemom
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A Bone Mass Density Test is similar (but different than) to an xray. It looks at your spine and hip - checking for osteopenia (precurser to osteoporoasis) and osteoporosis. It's quick and easy! I don't know what Betty had done - poor dear - but I just don't want others scared off not to have it done.

Quicky ones can be done by checking your feet like at a health screening day - but it's not the full real test like described above.

This is an important test for *all* (not just Lyme patients) women (and some men) to have done on a routine basis - probably about age 50 or so - talk with your primary doctors.

Lynn Lymemom


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daystar1952
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I have heard much about the dangers of flouride and how it was mainly a way for the aluminum industry to get rid of their flouride...a by product. This way they sell it and make money instead of paying to have it taken away and buried somewhere. Look up osteoporosis and flouride and see what you can find. An excellent book....Health and Nutrition Secrets that can save your life by Russell Blaylock has a large chapter in it on flouride. It should not be used in any form and can actually cause flourosis of the bones. Despite the babyboomers and being brought up on so much milk and dairy products....osteoporosis seems worse of a problem than ever. Keeping you PH more alkaline , I believe has a good effect on the bones
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shassler64
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Hi!
Amazing timing I have just been for a bone density scan today as I had some spinal x-rays pre Xmas and they said that I was osteopenic.I was shocked as I have always loved my milk and been a PE teacher so lots of exercise and never skinny .Skinny people are meant to be more prone as weight bearing helps bone density.

Anyway it is in some way nice to know there is probably a lyme reason behind this by the sound of it.It is not something dreadful I did or didn't do it is just this crappy disease.

I am only 40 and my normal doc was shocked.

Get the results soon ,shall be interested,

Take care,Sue from Downunder.


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