posted
Does anyone have breathing problems with lyme?
When I say "problems" I mean shortness of breath to the point where I can not speak. It feels like a 200lb weight is attached to my stomach, back is so painful and stiff I can't breath in and out comfortably.
The bizzare part about it is that it comes and goes. Sometimes I'm fine and other days I could seriously pass out from lack of oxygen.
I have had this for a long time. I don't have asthma, I don't believe it's caused by anxiety because it also happens when I am very relaxed. I have been tested for everything and doctors can not tell me what is wrong.
I used feel normal before I was tested (+)for lyme. Anyone else feel like this? I'd like to hear your opinions.
Posts: 17 | From MACEDONIA, OHIO | Registered: Jan 2005
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posted
I get this from time to time and its really annoying, especially when I try to talk to people and my last word of each sentence is forced and out of breath sounding. Like you said sometimes it comes with anxiety and sometimes for no reason at all. I can deal with the rest of the symptoms but this one is horrible.
chime
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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posted
One thing I forgot to mention is I dont really have a relief idea to try to help you. One time it seemed that drinking massive amounts of water helped a little bit but I cant say that its a secure help. I hope you feel better.
chime
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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posted
Babesiosis usually causes shortness of breath. Maybe you should get tested for it again or just ask your doc to try to treat it and see how you respond to it. Babesia too is not always easy to detect so it is worth a try. Kathi Posts: 210 | From VA | Registered: Mar 2002
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liz28
Unregistered
posted
The abx that helped that, for me, was ketek, 400mg/2x day.
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posted
yes, i have this as well. my llmd said its most likely babesia....we are testing for this!
Posts: 298 | Registered: Nov 2004
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Mathias
Frequent Contributor (1K+ posts)
Member # 5298
posted
Mycoplasma is a big time lung pathogen, not just the pneumoniae strain. I would get tested for that too.
Posts: 1242 | From New Jersey | Registered: Feb 2004
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Kait
Unregistered
posted
I have lyme and mycoplasma I get very bad breathing problems. I got tested for asthma and it came back that I have RAD (respitory airway disease), I couldn't tell you what that means. I also have Tietze Disease, it is athritis in my chest, it causes severe chest pains, at times I feel like I am having a heart attack, it feel like there is someone sitting on my chest. My pulmonologist said the only thing to do is take Advil, it helps relieve some of the pressure, but not all. Best of luck!!
posted
Yes I get this too from time to time. It is very annoying and there seems to be no reason for it as with many Lyme symptoms. Sorry I haven't found anything to help yet. Hope some of the other ideas help you.
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posted
Yes, I have/had this - Babesia for me. I would definitely get tested through IgeneX.
Posts: 655 | From NC, Exit 88 on the Deer SuperHighway | Registered: Dec 2004
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David95928
Frequent Contributor (1K+ posts)
Member # 3521
posted
Yup, it eventually went away with standard antibiotic treatment. David
Posts: 2034 | From CA | Registered: Jan 2003
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TheCrimeOfLyme
Frequent Contributor (1K+ posts)
Member # 4019
posted
Babesia very, very often causes this.
So does mycomplamsa. I have myco pneumonia and its no fun. Im 28 and have to stop every couple of feet to breathe.
Posts: 3169 | From Greensburg, Pennsylvania | Registered: Jun 2003
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posted
it's the babesia for me! Sometimes I just lay in bed trying to convince myself the air is reaching my lungs, but it sure doesn't feel that way! I don't gasp for air, but sometimes I get scared and start to hyeprventilate a little, and pass out. I am still learning how to stay calm when it happens. I haven't been treated for babesia because I just recently tested positive, and I am pregnant. I would definately get that checked out! best of luck
Posts: 160 | From Frederick, Maryland | Registered: Nov 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
I recentlly stopped my biaxin hoping that my vertigo and MCS would clear being off it.
It didnt,,,,instead I felt burning pains in my feet and legs extreme weakness and I couldnt breathe. Felt like I couldnt get any oxygen.
Posts: 2905 | From New England | Registered: Sep 2004
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Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
Lymeherx - you just described most of the symptoms of babesia - vertigo, burning in feet and breathing difficulties. Have you been tested?
I've had asthma for years, that actually has gotten better in recent years. I've had some wheezing ever since starting Ketek. But beyond the first few weeks, it's been very slight.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
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lymeHerx001
Frequent Contributor (1K+ posts)
Member # 6215
posted
Yes. Four times.
Lyme could cause this. The toxin issue. I have multile chemical sensitivities also.
These PVC vinyl blinds on the whole wall are driving me nuts!!!
Im starting to get a migrane and bad vertigo and postnasal drip.
This week Im eating nothing but protein. Im gonna see how it goes. I have heard this diet is good for clearing the toxins and bringing things back in balance. Especially the sinuses where I need it.
Posts: 2905 | From New England | Registered: Sep 2004
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posted
I posted already here but I also thought that maybe, just maybe the breathlessness could be yeast as well..
Just a thought..
Lyme and Yeast go hand in hand..
and many times identical..
Posts: 232 | From kennett square, PA USA | Registered: Aug 2004
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kam
Honored Contributor (10K+ posts)
Member # 3410
posted
Shortness of breath was one of the first symptoms I noticed when this hit hard and fast.
I am not sure we are having the same symptoms.
Sometimes I feel it is weakness with my breathing muscles.
I was treated for asthma 3 times when docs were looking for answers. All 3 times, it made things worse.
I have been battling this symptom among many others for over 3 years now. I have been on abx for 2 years now.
I currently am being treated for Babs.
Yes. It comes and goes. Mostly comes. But, it is great when it goes. Sunday, I was able to walk to the local coffee shop and back. The coffee shop is about 5 minutes away.
It was great, but rare that I can do this.
I too have wondered about sleep apnea. Don't know much about it yet. But, I do usually wake up feeling worse than when I went to bed.
And it takes me a while before I can move the body and mind.
When this first hit, I noticed that I would get totally exhausted just from trying to take a shower. So much so, that I would have to lie down before I could dry off and get dressed.
I also noticed that I could not empty the dishwasher without this same heavy breathing and total exhaustion.
I am fine if I am lying down and haven't over done it. If I have over done it, it is very difficult for me to breath and takes a while of laying down before breathing is normal again.
Those times are scary.
I also get a dry cough when I try to push it.
Posts: 15927 | From Became too sick to work or do household chores in 2001. | Registered: Dec 2002
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posted
I'm experiencing breathing problems right now...and have posted some questions on different thread: Anyone need oxygen tank?...which should really be: Anyone USE osygen tank?
Please let me know. I'm wondering if that will help & if I should push my doc to write the script & get one sent over here pronto! Not going back to hospital !
------------------ DR. Wiseass - not a real doc - just a real wise ass. www.twistoflyme.blogspot.com
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