Of course I have been having lousy sleep for years, but when I went on Rocephin Nov-mid Jan, I got to know what no sleep realy means. I got literally no sleep one night, 3 hours maybe the next...and so on. No amount or combo of herbals helped, not melatonin, not my usual mix of poppy, valerian, kavakava, st johns wort,

So I went to urgent care and they gave me some ambian. And, I got 6hours of sleep ! But it afterthat helps some, but didnt work too well. The usual problem is if I take something chemical to get to sleep, I wake up at like 3am. So, maybe get 4 hours sleep.

The visiting nurse arranged a perscription for sonnata, which was pretty worthless. My doctor returned and gave me a prescription for Nerontin. Which I guess is not reallt a sleeping pill but calms brain activity. This was also somewhat helpful.

The doctor had me take three nerontin and the ambian. So, I would sleep, wake up way to early and be not with it to drive kids(not too far, fortunately) at 7am, which I must do. After effects from the drugs.

So, I have another stronger valium famly type pill and anyway, I dont want to take stuff every night, I dont want to be dependent, so I dont. And, even if I take it its not like Im going to get a full nights sleep. And I have to take quite a bit or a combo to get any help.

I thought this would go away since Im not on any ABX at all at the moment. But, it realy hasnt. I look and feel pretty bad. Im tired, but if I go lay down, I wont sleep.

I typically woke up 3-4 hours after going to sleep and then stayed awake for several hours, basically until it was time to get up.

The melatonin isn't really helping me get past 4am, but I started going to bed earlier, 9-10 and am now sleeping thru to 4am. This has worked the past two nights, so it is really to soon to tell. I do seem to sleep better if not longer.

We are taking a low dose, 1mg. Meletonin is an amino acid manufactured by the pituitary gland. Production can be distrubed by illness and age.

We are both on abx and suppliments. No other drugs.

Others on lymenet have reported success with meletonin.

But


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I tried Ambien but it seemed to slowly stop working for me. And it did not KEEP me asleep. I still woke up after a few hours. I ended up having bad nightmares on Ambien and had weird memory problems when I didn't get the 6-8 hrs of sleep.

I went on Flexeril, which helped me fall asleep but did not keep me asleep.

So, I tried Amitriptyline and that helps me stay asleep. I can take 1-2 pills a night but usually 1/2 a pill will do great.

So, I take Flexeril and Amitriptyline for sleeping.

I tried all the different supplements and teas that have been recommended on here for the past year and nothing works for me.

I eventually weaned myself off of the Flexeril and Amitriptyline (took about only a week or less) and went w/out them for about 4 months. And I was fine. But then the sleeping problems started again, so I am back on that combo.

Generally, some of these various drugs I have tried and are somewhat helpful, at least for falling asleep, and a little more restful. A big problem for me is waking up at 3am, but too groggy to think to take something else, and I dont go back to sleep. I took something called Restoril (Temazepam) last night, and am still quite groggy. I fell asleep, but dont know for how long, Probably 5 or 6 hours.I know I was awake for quite some time before my daughter was up. And, I know these things are addictive.

So, most of these are addictive. And alot of them like ambien I very quickly build up a tolerance to. Neurontin worries me because I dont understand it, do I want something messing with my brain signals or whatever ? And, I have to take 300mg for any effect, and take something else with it, and can feel it all next morning.

lymied- Im not done with treatment, but I am not on any abx at the moment. I am taking 200mg of diflucan for antiyeast a day tho. I've been off abx for 3 or 4 weeks, since we pulled my PICC line from Rocephin. That time was so bad nuerologically, I just want to be, but I know I need to take something again soon. Dont know what it should be.

LYmetoo- what is trazodone, and flexeril ? Do you take these ? What are side effects ?

JillF- what is Amitriptyline, do you have side effects ? Is it addictive ?

I think a number of things will help with falling asleep--the trick is how to stay there for more than 3 or 4 hours.

I speak from experience. I also hardly slept, especially after starting treatment for Lyme which also mobilized some of the metals in my body. Now that I am rid of all of it, I go to bed, put my head on the pillow and sleep soundly without any pain until morning.

Neurotoxins disrupt the hormone producing glands (pituitary, etc.) doing from what they normally do. Heavy metals are the worst neurotoxins.
I posted the list of neurotoxins recently. You might want to take a look.

I remember the ruined days because of the ruined nights.

When that doesn't work I take SOMA and/or Ambien.

I take 10mg Elavil.

Elavil is an antidepressant, but only in larger doses.

In small doses, however, like the 10mg I'm taking, it acts as a weak sleeping drug.

I can't even tell I'm taking it, yet I fall asleep in less than 30min now. I used to take up to 2hours.

I also don't wake up anymore. I used to wake up typically two times every night.

Certainly a lot of the medicines work, but usually after 2-3 nights, I am not getting the right sort of sleep and am not alert during the day.

The BEST Solution I have found is a sauna right before bed for about 15 min. Give it a week before you decide, as it takes some time to get the toxins out, then you can sleep. I also take one buffered aspirin with milk right before bed.

Try it.... it is a wonderful way to end the day!!! Then slip off to sleep

Hopes this helps,

Hello there. I will tell you what I have to deal with.

My family doctor is taking care of my pain management. Thank God.

But anyway, I told him that I have had people say to me, "You are going to get adicted". The doctor told me that I wouldn't be adicted, that I would be dependent. I hope he is right.

I have constant pain so I take the Ambien every night. Otherwise I would just lay there and just feel my pain and never get any rest.
I get at least 5 to 6 hours of sleep.

I feel that since I first started treatment, I am feeling some better. It is a slight improvement but none the less, it is improvement.

I hope that you soon will feel better too.

Take care.