posted
The doctors especially in the er, have lied to me about test results on numerous occasions. It was always because the results backed up my diagnoses and not theirs which was arbitrarly made because I did the unpardonable thing! I assumed I new anything. Please get all your test results including blood and x-rays mri, cat, ect.
They have to give them to you they're yours. You paid for them, they only like to act like they own them, and remember they work for you not the other way around. Secondly, I would like to address your nausea. I have severe migraines too and the pain was so bad a few times I got up look in the mirror to see if my nose or ears were bleeding, seriously. They weren't. On one of my trips to the ER I was given Zofran instead of Phenergan for the nausea. It was miraculous. It was originally used for chemo patients nausea and is now being used for migraine nausea and morning sickness. There are no side effects as far as I can tell, of course I'm not a doctor and I know I'm not since I have been told so many time times by members of their profession. It doesn't make you sleepy and any one who has taken phenergan knows it knocks you on your a--. So far as I can tell it doesn't do anything but work really fast and make the nausea go away completely. It's wonderful. Your appetite comes back too, almost immediately and I have trouble eating too. PLease give this drug a try if you can, I have been taking it as needed for two years. No I don't work for the drug companies and I don't sell it out of my trunk. I just really, really hate throwing up. Good luck.
Also please contact your Lyme specialist as soon as possible because everyone is right. You may have had Meningitis. Have you been on any antibiotics lately. MY daughter,6, is in the process of being tested for Lyme although it is merely a formality since I am positive she has it. Anyway she was recently on antibiotics for strep throat. She hadn't had any for almost a year. About 6 days after she started the Duricef she woke me up at three AM literally screaming her head hurt. Now she's gotten a head ache before when she had a high fever but this wasn't a normal headache. It was scary, She was screaming and holding her head and rocking back an forth and increasing in volume exponentially. I grabbed her and headed for the hospital thinking she had an aneurism or meningitis or something horrible. She had 104 temperature which was the first sign of a temp since she'd had the strep. They ran tests and all came back normal snd yes I checked. They gave her pain meds and sent us home. It didn't dawn on me until I was almost home that she was herxing. Lyme seems to cconcentrate in the cerebrospinal fluid, especially in kids. Thus the toxins were causing her brain to swell. You can have this due to a herx, but you could have had this from the Lyme itself. It seems to be more common in small children but lots of us have had it . I did before I was diagnosed. I have never felt such pain. Let us know how you're doing. My prayers are with you and you will get through this. There is light at the end of the tunnel it's just a really long tunnel. You're almost there.
Posts: 115 | From katy,texas,usa | Registered: Dec 2004
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posted
Welcome Tikbit to this 24/7 educational support group board.
The best way to get a message to anyone who posts, is to look for one of their current postings. Then just reply to them.
POSTERS are the only folks who have the option to receive ALL replies to each individual post they originate; we don't.
Also, please go back into this LONG paragraph post, and shorten up the paragraph to 6 - 8 lines of text only please. ===================================
Those of us with late stage lyme have so much brain fog that we can not read and comprehend such lengthy paragraphs.
By shortening them up and allowing double spaces between paragraphs, this helps all of us out.
You will get more replies by doing this.
Since Andie is so sick right now, you might block copy your entire post, and then paste it to her post about getting out of the hospital. She'll get a notice in her private email that she has a reply from you.
Be sure to print TREEPATROL's NEWBIE links, check them off as you read as there are months of reading there.
Thanks for helping us all out. Betty G.
Posts: 1 | From US | Registered: Aug 2015
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You are so kind to write such a generous, helpful post to me. Lots of excellent info.
I'm so sorry you deal with this head pain! Also about your poor little girl!
The whole situation is very confusing with all the possibilities, isn't it?
You are right about all the medical snafus--it will take awhile to sort things out. I left the hospital in the kind of shape people usually arrive... not right.
You also made a point about antibiotics triggering things. It made me realize that I very briefly took a couple two weeks ago due mild infection in jaw.
Also, thank you for the info re the Zofran---I'll ask the drs.
Seeing the llmd and neuros right away-will have to print out your and everyones excellent suggestions.
My best to you and your little one.
peace, andie
Posts: 278 | From weston,ct.usa | Registered: Aug 2004
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