posted
i have been forgeting everything...is this normal for lyme? my husband is discourged with me cause i forget so much....important things...i signed a check few weeks ago and don't remember doing it ......other small things......but its crazy the things i forget. thanx people...i'm 28 isn't that to young to be forgetting already? amy
Posts: 60 | From ELIZABETHTOWN,IL 62931 | Registered: Feb 2005
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posted
Hi! Sorry to hear that you are forgetting stuff but unfortunately it is part of lyme .Try not to get too stressed about it.It can improve with treatment. I think it is a combo of fatigue and pain that increases the problem.
Pain meds can make you a bit blurry if you are taking any.
Everyone forgets stuff anyway,Sue from Downunder.
Posts: 801 | From Kiama,Australia | Registered: Dec 2002
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posted
I understand what you are dealing with. While I am a little older than you, my problems started several years ago. The doctors just said it was part of getting old. I really dont believe that is the case for me.
I use to be able to keep hundreds of phone nymbers in my head, now I am lucky if I can remember mine. When I am addressing one of my kids, I go through every name in the house including the dogs name.
Lately I will turn the sprinklers on out side and forget about them for hours. I will also be driving and forget about where I am going. While my current nurologist says I am fine, I do feel that I am getting worse, and to make matters even more complicated three gnerations before me all have had early onset of Alzheimers.
One thing I did do several years ago was get a palm pilot. I create tasks for everything, and I work from that list, I also store all my numbers in it now. I take it everywhere I go.
There are many factors why we have these memory problems, the disease itself, the impact of the hormones and all of pathways effected by the body not being able to absorb the approprate nutrients, the medicines we take for the disease, the toxins in our body, both from the die off and the ones that we come in contact with, and the big one, the stress we face on a daily basis from this disease.
I would not panic just yet, but organizing yourself will keep you from hitting you head against the wall trying to remember something that you we supposed to do.
[This message has been edited by hwlatin (edited 16 February 2005).]
Posts: 533 | From Las Vegas, NV | Registered: Jun 2003
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I could write a book, really, about all the things I forgot and still forget. Lately I have been trying to forget that I am here, not feeling so good and am much more aware of when I forget something, along with many other symptoms that I just never noticed and mostly likely "forgot" that I had them.
It will get better with abx, tell your husband to have some patience and some day soon he will have all of you back, a much more loving and happy wife. They have no way of knowing just what this disease is all about.
Corinne
Posts: 461 | From Abbotsford, BC, Canada | Registered: Oct 2003
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
thanks all for responses, i'll show this to my husband so he don't think i'm going crazy........well not on purpose anyway....lol........treepatrol thanks for listing symptoms ......show him these and help him understand how i feel.......amy
Posts: 60 | From ELIZABETHTOWN,IL 62931 | Registered: Feb 2005
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posted
I just want to add that the more upset people become at me for forgetting stuff...... the more stressed out I get - and the more stuff i forget. it's a catch-22.
when everything is calm i seem to get a little of my memory back.
posted
amylg, I work in a field where my memory is critical. I have been doing Lyme tx since Oct. My memory at home is horrendous, at work I am right on, for the most part, sometimes I slur or lose a word but mostly my mind is tip top. I asked the OT at my LLMD's office why I am so sharp at work and at home I can't think straight and she said because of my training at work I use a different part of my brain. I asked why I couldn't access that part of my brain at home and she didn't have an answer. It's so scary to forget. I tell people to speak to me like I am in the 4th grade so I can digest what they are saying. Maybe that will help you? Blessings, Marblenose Posts: 287 | Registered: Nov 2004
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posted
Sorry about the stress. I have been in a fog for most of 26 years. Was diagnosed with lyme over a year ago. I still feel a little panicked when I am talking to someone other than my husband or a lyme buddy and I cannot think of a word, or what we were talking about. It's the lyme. I just took Rifampin for a short time and it made me so sick I had to stop. BUT, my mind has been clearer since. When you get clearer you realize how bad you have really been. I know this is the worst part. Be patient. It won't always be like this.
One of the things I had to do was turn over matters to my husband that were of importance to us that I used to do: taxes, insurance, bills, etc. A bummer.
Take care and be assured you are not alone.
tj
Posts: 296 | From Portland, OR | Registered: Jun 2003
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posted
hwlatin, what a great reply for Amy and everyone else!
Tree, glad you showed durameter's comments here!
Amy, yes, I suffer from that too. I recently did neuro psy testing on memory, intelligence, and MMPI, Minn. multi-phasic index to see if I have EARLY onset Alzheimer's/dementia or neuro brain lyme.
NO answers to what I went for. They came up with "hypochondriac & depression, somatization disorder"! I could have hung him up. So don't go that route.
I did the testing since my brother's wife, died of early onset Alzheimer's at age 40, yes 40! She had this mindrobbing illness for 8-14 years. I knew the symptoms too well.
Use the suggestion or palm pilot, make a to do list & mark off as they are done, or have those great POST IT notes everywhere!
Better days are ahead ... just not soon enough! Betty G., Iowa
Posts: 1 | From US | Registered: Aug 2015
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Posts: 963 | From N. Olmsted, OH USA | Registered: Jan 2003
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lymiecanuck
Unregistered
posted
Hi,
It can be very upsetting. It has improved with me, but last year, I was forgetting stuff almost immediately after I said it, and kept thinking i had a stroke.
I would have full conversations on the phone with friends and forget it the next day when they continue the same conversation, and then I just fake it, until it comes back to me.
I have paid bills, made important phone calls, written letters etc, forgetten. Then all of a sudden it just POPS back into my head, hours, weeks, days and even months later.
I had a cell phone last year, brand new. Played with it eveyday trying to figure out how to work it. would teach myself, and forget the next day and go back to making the same mistakes I was making before I learned how to use it. Did this many times. Lost all my messages, before even checking them. Kept erasing them, thinking they were not new messages, just ones i was sending myself trying to figure out phone.
Just about lost my mind. God it was awful. Things are better now, thank god, but still need improvement.
Hope your husband can come around and understand soon.
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