I am happy to report some good news to go along with my bad news today. My good news is that my exercise tolerance is now higher than it's ever been since the lyme settled in. I can now walk 3 miles at a brisk pace, while a year and a half ago I couldn't walk half a mile. I'm very pleased with this and now feel I am physically capable of doing what most others in society can do.
My bad news is that this derealization for me has become my worst symptom. I have recently moved to Orlando, I'm in a new area by myself, and when I'm driving around here the environment around me does not seem real. It feels as if I'm in some bad dream. It doesn't change my vision, as I am seeing things the same. It just seems as if my brain is telling my eyes that what it is seeing does not really exist.
Fortunately, I do not seem to exhibit many depersonalization symptoms, as mine seems to be more of derealization. I have been visiting these sites on derealization such as this one; http://www.dpselfhelp.com/jbaker_print.htm
They all say that minus any neurological disease, the sufferer truly doesn't have any reason to worry about losing their mind. Problem is, I DO have a neurological disease with this lyme.
Am I in danger of fully losing my grasp on reality? I am also very anxious right bow because in one week I am flying to Colorado for 3 days, and Colorado seems like a dream world anyway, even without this!
Has anyone else experienced this? I'm not sure what to do for it, and it seems the more I try to get it to go away, the worse it becomes. It got A LOT better when I was on Rocephin for 3 months a year ago. I saw a return of this symptom in August after I had been off Rocephin for 4 months, and now my Ketek doesn't seem to be battling it as well.
Help please.....
Marc
Posts: 173 | From Lakeland, FL 33813 | Registered: Aug 2003
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Linda LD
Frequent Contributor (1K+ posts)
Member # 6663
posted
Marc,
Hang in there. I guess you just need to read as much as you can about it. Read, read, raed, and learn, learn, learn. Any money to see someone about it?
God bless you, Linda
Posts: 1171 | From Knoxville, TN US | Registered: Dec 2004
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posted
I live in depersonalization. I feel like I'm identitiyless, but thank God I still do what I do (take care of my son, teach...) I've been on rocephin for almost 3 mos. back, and take xanax. Sometimes, by the end of the night, I have a little conviction about myself - it's weird because there seems to be no emotional connection. It freaked me out every day that I have this, but, I'm on treatment, I have no choice. My spect scan said hypoperfusion and heterogeneous global - maybe that's the cause, maybe not. I can relate. I'm in the house that I put together with my husband and feel like its my first time there. Please this is one of my major symptoms. Hang on. I'm hoping it gets better - I miss my life and family and friends and enthusiams toward life. Look forward to a day that we'll get our lives back. I'm glad you're physically getting well. That's a big plus.
Take care and God Bless.
Cigi
PS ) It got MUCH WORSE after my first round of flagyl and my sodium went low and put me in the hospital. Just something to think about - any new med changes???
Posts: 320 | From Upstate, NY USA | Registered: Dec 2004
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treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
This kinda reminds me of dejvue Spelling?
I have felt that way a few times not for quite a while though thank God.
On both accounts.
Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003
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posted
I get this a lot of the time. It is a very strange feeling to think you're totally disconnected from what's going on around you. I'm sorry you all suffer with this, too. I have a 14-month-old son whom I love dearly, but unfortunately sometimes I feel like having him isn't entirely real, if that makes sense. I have babesia, so it could be that, or the lyme. The babesia isn't being treated right now, and it never has been (I just tested positive), so I'm hoping treatment will help.
Good luck! Hang in there!
Posts: 160 | From Frederick, Maryland | Registered: Nov 2004
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