posted
I'm a little nervous but so ready! I get my first treatment tomorrow. Part of me is scared though of herxing. Can anyone tell me, does this usually happen right away or after a couple of treatments. Not sure if he will do IV or what. I will post again after my appt. tomorrow. Posts: 204 | Registered: Jan 2005
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liz28
Unregistered
posted
Herxing usually starts one to four days after you start treatment. If possible, try to start on an anti-inflammatory. I don't know what the natural alternatives are--I take Celebrex, which is no longer okay to recommend.
A herx can hit you all of a sudden, and be debilitating, so make sure you aren't driving over the next few days or going into social or professional situations where you have to be sharp.
No matter what, do as much research as you can on treatments for Lyme and the co-infections. LLMDs see hundreds of people, in various stages of illness, for months on end. Like all doctors, they are entrusted with great authority, but are human beings, with all that entails. If you can advocate for yourself, and clearly ask for the treatments you want to try, you will be in the best position to take full advantage of a doctor who is willing to assist you.
posted
Well, I do have to drive to work. But that is a must. There is no getting around that unless I am at home and feel to ill to work. I did warn them that if severe I might have to take a short-term disability. But I don't see that happening. However, you never know.
Posts: 204 | Registered: Jan 2005
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posted
most people when begiing treatment for Lyme have pretty big flare ups . i would consider the real possibility that you may have to have time off from work. If you have only been infected for a short period of time you may get better quickly , If longer than a few months it may take much longer to start feeling better we all go through periods of feeling better and then have another flare up and it goes back and forth like this for some time
posted
Do you know that your Dr. has a reputation for starting people on a heavy duty dose?
Ours is starting us on very low dose oral antibiotics with a gradual ramp up as we can handle it without feeling too yucky. This is even though we have had some antibiotics already.
Not only that, she also gave me things to help with symptoms, such as brain fog and fatigue.
Treament for this does not necessarily have to be brutal... It is easy to forget that the goal is to get feeling better.
Hopefully it will be pleasantly 'less bad' than you imagine.
Posts: 714 | From San Antonio TX | Registered: Oct 2004
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liz28
Unregistered
posted
Hi, I was just flipping through here before going home, and saw your post.
If you have never had a herx before, please allow me to advise you, in the strongest possible terms, not to drive before it hits and you know what you are dealing with. I've had herxes cause sudden paralysis, delirium, and narcolepsy (I think that's the right term for abruptly falling asleep, right?). We Lymenetters can sometimes go over the top in our descriptions, but this one is for real.
Make absolutely sure you have enough food and water in the house to last a week, and someone who will either be nearby, or take your calls if you are delirious. You might actually need someone who will be able to call your job for you.
I sincerely hope your herx never gets like this. My worst herxes were caused by rocephin, omnicef, flagyl, and minocycline.
It kind of depends on what your 'treatment' tomorrow is. You MIGHT just walk out with a script for an oral antibiotic and a few supportives. Or you might be given something stronger right on the spot. Different Doctors have different approaches.
In our case we THOUGHT we had been infected late June last year, but our Western Blots suggest we've had it at least a year.
In any case our herxes were just achy, foggy, headachy experiences. Not pleasant but not disabling either.
Everyone reacts differently, so it is best to be prepared in case it hits you hard. If not, it will be a relief. If it is rougher, you will at least be ready.
If your treatment isn't something given right then in the Dr. office maybe you can schedule some downtime to start it.
We will hope it goes better than expected for you.
Posts: 714 | From San Antonio TX | Registered: Oct 2004
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posted
Wanted to give update. Dr. gave me Doxy 100 mg -two pills twice a day. However, he is working me into it gradually with having me take 1 pill twice a day for one week and then the following week bump me up to two pills twice a day. He is doing this to reduce herx reaction. He thinks I have had this for only a short time so my herx shouldn't be to bad, but then again who knows? I also will be taking Natural Calm (Magnesium supp.) and Digestaguard Probiotic along with Azo yeast. I have Diflucan as back up in case I actually develop yeast infection. I took my first pill of Doxy tonight but then realized I ate a sandwhich w/cheese in it. They say avoid Calcium because Doxy doesn't absorb as well. Since I had already eaten the sandwhich though I'll have to remember that in the future. Night all! Posts: 204 | Registered: Jan 2005
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posted
You will want to take that with food unless you want to throw up... at least that is what it does to most people on an empty stomach. With some food no problem.
I think calcium interfering with absorbtion was more of a problem with the original tetracyclines than doxycycline or minocycline. You might want to look it up... maybe somebody else remembers.
It is good he is starting you out slow. In case you get more of a reaction than he anticipates it is ok to start out alot slower than that if need be. Maybe 100mg once a day if twice is too rough.
Be sure to call and ask about a more gradual start if it is too rough. Everyone reacts differently.
We are being started on Minocycline 50mg every other day right now, for example of a slow start. Mino is a bit rougher than doxy though.
Hopefully you will have few difficulties.
Posts: 714 | From San Antonio TX | Registered: Oct 2004
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posted
Hi Nukegirl, I think I may have replied to your posts before........Email me, I think we are close to each other!! Hope things went well today.......
Gail
Posts: 562 | From Wellsville, PA, USA | Registered: Jan 2004
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posted
I had "herx" reactions, but they did nor occur immediately after I started a treatment, except in a couple of cases. It was usually more like 2- 3 weeks into a new treatment combi. I hope you get good results as fast as possible. But always look for every good thing you can find, and watch for long term- improvement to help boost your spirits. Most of the time I did manage to somehow muddle through through each day with lyme, though there were a few periods during which I could hardly do anything. I had to get lots of help with many things.
DaveS Posts: 4567 | From ithaca, NY, usa | Registered: Nov 2000
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posted
I had only minimal herxes while taking Doxycycline. The disabling ones started after I switched to tetracycline which has been more effective for me and easier on my stomach.
Protect your stomach, be sure to take the the doxy with lots of water and some food. I found it was best to eat at least half a meal before taking it. I always drank 2 glasses of water with it. Don't lay down for 1/2 hour after taking it.
I would take probiotics and restrict my dairy consumption to lunch and late night (as far from Doxy as possible).
Be very carful with the sun. I would burn in 1 minute while taking doxy. I always wore a wide brimmed hat, a scarf (I now have ones for all seasons) and in the summer, long sleeves or a big scarf like a shawl. I could not have any exposed skin even for the shortest time outside.
My eyes also became very sun sensitive so I was never without sunglasses. If you are well enough to exercise outdoors consider doing it at night.
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