Hi IBelieve!
Just checking on you to see how you're feeling. I meant to reply yesterday, but ran out of steam.
Anyway, I also saw your reply on the head pain thread today and wanted to encourage you a bit about the returning pain.
You said the head & nerve pain along with the jaw pain seems to be returning. I am very sorry this is happening.
I had a pain meltdown on starting my 3rd bottle of Mepron for Babesia which occurred well after I had seen great improvement with the all-consuming pain.
When symptoms start returning that you thought were long gone-----well it's disheartening to say the least. More like a a slap in the face------I know. You're left wondering---where the heck did this come from?
I hope you'll contact your doctor like the others suggested. Please don't settle for going backwards. You got better before & you can get better again.
But yes, I agree with you It's frustrating & disappointing as can be. Have a good cry if you need to.
I don't know what your doctor wants to try next, but everyone's right about the Flagyl. It's usually given with Rocephin.
Just a FYI:
Flagyl can be rough on some causing nerve pain. It penetrates the blood brain barrier and also acts against some types of fungus.
Some start with small doses and work up slowly; others like the Long-Acting Flagyl. So, as usual, it just depends on the person.
Some choose to use Tindamax in lieu of Flagyl as it's easier for some to tolerate. Just depends on what you and your doctor think is best for you.
There are many Lyme Disease ABX protocols and I'm sure you can find something that will help you get going in the right direction.
From reading on Lymenet, it seems pretty standard to follow IVs with oral ABX for as long as needed. Naturally, it depends on the patient as to how long they might need ABX. We're just all so different.
Also, eventually consider treating for Babesia (or other co-infections), at the very least, if you don't get better.
If you're still having pain while on your next treatment, be sure and tell your doctor.
Sometimes we have to tell them our pain meds are not working; otherwise, it's completely natural for them to think everything's spiffy. Sure hope you won't try to be stoic when it comes to pain.
Sometimes just taking action can be a great encourager. It is uplifting & gives us hope.
Let us know how things turn out. We're hoping things will turn around for you real soon.
Best Wishes,
Jan