Went back to hospital AGAIN today...it's becoming like a @#W#$ing hobby.

Had some pulmonary tests does as I'm having that "air hunger" experience that many of you are aware of yet....interestingly enough my pulmonary doc hasn't heard the term & has no @#$%ing idea what I'm talking about.

Long story ... I'm sure it'll be one of my next exciting dramatic blog posts - and am not in mood to relate now.

Needless to say, as nice as pulmonmary doc was - she just didn't know really anything about Lyme, but doesn't see anything wrong with lungs right now...blah blah blah

(This, of course, does not make my shortness of breath, the air hunger, the stabbing chest pains, the dizziness, or the feeling that I have a large butcher knife shoved out underneath my shoulder blades go away....)

MEANWHILE, there is a popular LLMD neuro that I REALLY need to see - but again, he's either not taking new patients or I'm being black balled by the receptionist because I don't know how to keep from saying inappropriate things because clearly I'm an idiot.

NEVERTHELESS, there are people who travel from out-of-state --- literally HOURS of travel who are seeing him & I can't see him even though he lives 20 @#$%ing minutes away.

SO -
The ONLY doc I have that knows anything about Lyme at all wants to treat me with herbs....

And all the other docs want to run tests that indicated individual organs are OK - yet they're not getting it that this disease is systemic and I need someone that really knows what the @#$% to do.

Oh yes, and they want to take me off the medicine that the others have put me on so they can put me on their favorite medication. My hubby has gone to go get the latest RX for the anti-anxiety meds since that's the best pulmonary doc could do. I think I'll actually take this med - but not sure about HER particular anti-depressant, since my other doc just took me off another one to see if my "symptoms" weren't just "side-effects" from meds.

This is a crazy-making disease.

I've had a really hard day & I'm just about ready to go to Dr. M's office & sit in the reception area until he sees me or the police come and take me to jail.

So - first I thought perhaps some of my fellow Texans (or those that drive to Bedford) to see this LLMD - if you wouldn't email me & either give me some "hints" on how to see him ....or perhaps I can sweet talk you into dropping my name in the ol' mercy hat at Dr. M's office.

Many of you know exactly who I'm talking about & if you can help me -- so that I don't have to be arrested or committed to a psych ward prior to receiving adequate treatment for this ever-delightful disease...please email me promptly.

[email protected]

Thank you.

Well, dear, not to worry. You are a long-term lymie, after all, so it's not so very much to lose....

Herbs aren't so bad as a stop gap, but I agree you need much more aggressive therapy.

I'm hanging in as best as I can...and thanks for the little "pick me up" mino with the thought of being the "long term lymie that I am" (yeah, I actually chuckled...although I'm thinking I might cry about it later.)

And yes, I did ask pulmonary doc to make the call. Since she doesn't know him, she was "reluctant" blah blah ...but said she would...which means her assistant will.

I hugged her assistant as I left and she gave me that "look" and I know she'll do the best she can.

I'm thinking if that doesn't work - I'll go sit in his office until he sees me or until the police come for me - as mentioned above.

If the police come - I'll do my damnest to make the news - so I can put out a local request for a doc that knows his @$$ from a hole - any hole at all - with reference to Lyme. This is just my working idea now.

Taking additional suggestions.

I'm so sorry you are going through this...still. I hope you get to see Dr. M..and things start to improve.

On the respiratory drs treadmill...I lasted about 4 minutes on a slow moving to brisk walk before they shut it off and told me I had to end it.

The doctor was quite rude, told me I was out of shape (I weigh 110, former dancer, still in danged good shape despite the lousy lyme.) He also had very rude remarks about LYME and LYME doctors, all those expensive antibiotics, etc.

BUT, he was the ONLY SPECIALIST, (2 neuros and 1 heart guy) to recognize something was wrong with me.

He said my air hunger, rise in bp and heart rate on exertion, was due to a neurological disorder,perhaps a toxic or metabolic insult.

So, I really appreciated putting up with his elitist attitude, to get his written diagnosis.

I would be happy to put in a good word for you . If the receptionist is the one I'm thinking of, we're pretty good "buds". I don't think she would black-ball you but you never know.

Dr. M's been overrun with patients since Dr. H.,in Houston, stopped practicing. Anyway, I'll e-mail you and see if I can help. A mind is a terrible thing to waste

and its comfy, and filled with good thoughts,

can I have it? I get first dibs.

Something you said stood out at me
"feel like Im being stabbed with a knife underneath my shoulder blades"

Do you have gallstones, by chance? I mean- not like you wish for them on top of the lyme, but I went through something quite similiar to that years ago, and lo and behold, at the lovely age of 24, I lost my gallbladder.

Or, it could be babesia. Its pretty common with that. Ok ok, I will quit trying to diagnosis you. It is fun once in a while though . Just joking.

If you need help finding a doctor let me know.

My # is listed in the seeking a doctor forum, I believe it is on the second page now, but I will bump it.

If you are from texas, you are in luck. I just updated my list to include a "new" LLMD.

Sorry to hear you are still feeling terrible

They always want to try something else besides what you know works, are taking, or have taken.

I have had severe daily headaches every day since I was 17, that's 31 years now, you do the math. I have been there done that and will not go there again.

I am now on daily pain meds and don't give a big fat sh&* whether I'm addicted or not. I'm not in bed, that's how I see it.

I believe that was my exact phrasology to the new assistant at my last visit.

If one more dr suggests biofeedcrap they are going to be surgically removing it from the nether regions.

By the way I have no trouble relaxing or whatever it is that machine is supposed to do.

They hooked me up to it once. they had me laying down. They turned it up and that annoying whine came on, so I realaxed and made the sound disappear, that's what youn are suppposed to do.

Well they kept turning it up and I kept making it go away, and eventually they turned it all the way up.

Then they asked me if was asleep, and I said no! They got really mad and said the machine must be broke.

Bull$%&*.

My point is I am no longer going to be a guinea pig for their whatever, and neither should you. You are not being unreasonable, after all this is your very life we are talking about.

I am also tired of having to stroke there stupid ego's and I am ESPECIALLY tired of being lied to. Lied to by almost every dr. I have gone to.

Usually it's about the test results.