posted
My doctor wants to do a second round of IV rocephin. I had trouble with the mid-line last time, so this time he wants to place a port or central line. This scares me. Can't they become infected easily? Any replies will help. Thank you
Posts: 48 | From New Hampshrie | Registered: Jan 2005
| IP: Logged |
arg82
Frequent Contributor (1K+ posts)
Member # 161
posted
Hi,
I have a port and I love it. Well, as much as you can love a foreign object in your body. It's been a lot easier for me to handle (and get in) than the PICC I had a few years ago and, I've been off IV stuff since October so it's just there under the skin and only needs monthly flushing and I can shower and swim normally.
If you take good care of a central line or port, they are no more liable to get infeced than a PICC. And, since a port is completely under the skin and gets accessed with a needle, it can be less likely to get infected as long as everything is kept sterile when the needle is being put in.
Here's a post where I put up a lot of information about ports, including some good pictures.
And here's a post with some info about all the different kinds of IV lines.
I hope this helps you. And if you have any questions that those posts don't answer, I'm happy to answer them.
Posts: 2184 | From Rochester, MA | Registered: Oct 2000
| IP: Logged |
liz28
Unregistered
posted
I found certain oral abx to be more effective than rocephin, especially when used in combination. Granted, I have co-infections. But even so, minocycline, omnicef, ketek, levaquin, and even ceftin and doxycycline have proved more useful.
I've had two picc lines, one for seven months. During the second round of rocephin, I was also on flagyl, zith, plaquenil, and ceftin at the same time, and they didn't work beyond a certain point. The abx listed above showed immediate results.
So it might be worth your while to check out other options, even over an interval of a week or two, before having a traumatic procedure that will make you 100% dependent on one doctor.
I have a port, was put in Sept. '04 for Rocephin. Looks like Annie gave you tons of great info! I had soreness for 2 weeks, then some discomfort for the next 2 weeks until the pocket tightened up around the port so it wouldn't move around.
That huber needle can look vicious but I use a numbing cream, Emla, prescribed by the dr. I am one who hates needles! But this is easy as long as the nurse accessing you knows what they are doing. Since I expect to be on IV for a year or more, I do think the port is the way to go. It doesn't fall, it's a closed system so it's actually less likely to get infected as long as accessing and infusions are sterile. It does feel strange at first, but I am now amazingly used to it
FYI ... I have Lyme, Rocky Mountain, lots of co-infections and viruses. After taking Doxy for a long time I was switched to Ketek, along with tons of other meds. Doxy did clear up myco strep. If you do the port dig out all your button up shirts This makes it easy to open the top to do the IV.
I have a nurse daily, rather than doing infusions myself because I also have pulmonary AVMs, which means I can't get air bubbles ... ha, ha, cute trick if you can do it Without the complications of the AVMs, I think I could do the infusion with my eyes shut now
Best of Luck
quote:Originally posted by IBelieve: My doctor wants to do a second round of IV rocephin. I had trouble with the mid-line last time, so this time he wants to place a port or central line. This scares me. Can't they become infected easily? Any replies will help. Thank you
------------------ Ramona
Posts: 7 | From Dulles, VA US | Registered: Mar 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/