Thanks in advance...

P.S.: My endo is at the Cleveland Clinic and if that info. exists it could end up being the start of more research to help.

I can't give you research data for your endo, but I can tell you that my ND...who has LD, and studies under a LLMD tells me that LD can cause hoorible problems with all hormones.

He wants me to do some test in the near future to measure brain hormone levels. Since I'm still in early stages of Rx though, we are watching to see what improvements the abx can make.

But you say there's hope?? I don't know of any research, but my LLMD does ALOT of hormone testing and according to his own figures, more than 90% of his patients have hormone deficiencies.

I'm on about 7 different hormone supplements and can say it's REALLY helped me. I was low on 18 hormones of the 24 that were tested. I would say the biggest factor is probably the growth hormone.

you can try doing a search here, but it seems the search feature isn't working....at least I can't get it to work!

She is also very petite and looks more like 12 than 18..Dr says they will need to test hormones after the life threatening things get straigtened out.

She also has juvenile diabetes which occured after lyme..No family history..So there needs to be some testing and studies done..

Also at some lyme conference a couple of years back that was geared to MD's I know there were some presentations on lyme and how it screws up the hormones. You might just want to search lymenet.

I also know that a certain W coast LLMD (not my doc) tests all his patients for hormonal imbalances which he thinks are a part of the disease.

There were lots of other posts that I found by searching, but don't have time to look at em all.

Do a search on "hormone"

and I appreciate your skepticism about someone at CCF being interested in the subject. As you all probably know, there are a large number of us that have hormone issues and all of the LLMDs that I know consider it to be standard to check all hormones when they consider a Lyme diagnosis.

On the other hand, there doesn't seem to be any published research to even show the correlation that we know exists between Lyme and the pit-hypo-adrenal axis. There isn't even really any research to show the thyroid problems.

In the past several years I've been diagnosed with hypogonadism, hypothyroidism, growth hormone deficiency, Hashimoto's Thyroiditis, and was even being looked at for Cushing's recently. The doc in Cleveland made the GHD diagnosis and quizzed me about what I thought might be causing the pituitary insufficiency. I explained that I'd had several head injuries and the Lyme infection. And then told him that my LLMD felt that I'd been infected with Lyme on more than one occasion, etc.

What was interesting was that the thyroid and hypogonadic diagnoses were made prior to my visit to CCF(Cleveland Clinic Foundation). I had all the labs to show the problem, etc. Yet, when I had all the tests run at CCF, the only thing that appeared was the GH deficiency. For some reason my pituitary and thyroid had decided to function again.

Even more interesting was that I had just done several month of treatment with doxy, which had me feeling much better. He sees the possiblity of a link, but can't pursue further research without some medical research to support his desire. He can't find any and neither can I. Was hoping someone here might know something I was missing.

I know I've seen some research somewhere that shows a correlation between Pituitary/Hypothalamic damage and Lyme disease. Someone has recorded and published the increased incidence of these problems in their patients. The problem I have is that I can't for the life of me remember where I saw it. (I must have Lyme...I suffer from CRS.)

If anyone can remember seeing anything along these lines, we might just be able to get an endo to take a look.

Thanks all!

The closest I could come to a formal publication is Bransfields Neuropsychiatric Assessment of LD He mentions the HPA axis in passing.

There are several publications and presentations about CFS/fibromyalgia that describe HPA axis suppression, and, in the same article, discuss LD as a cause of CFS. Search on ' "HPA axis", Borrelia ' and you'll find some good articles and abstracts.

That will actually be helpful. I can add that with some of the other treatment/diagnostic stuff as support. I have this thought that I should actually do some research myself. If I can get it together, I'm gonna' bounce some ideas off a few physicians I know. It might be nice to at least have some correlational eveidence of symptoms to go with Dx. Seems to me the CDC and medical community have missed a bunch of issues that go with this disease.

I recently ran into a Dr. that told me Lyme was NOT cause by a bacterial infection.

I am finding that many on lyme treatmenta re also on some sort of antidepressants that are likely to cause pituaty damage and the Cushings Disease. Plesae look up Dr. Anne Tracey Blake's research on SSRI, Prozac and it will explain many of the hormonal questions that you are seeking.

Antibiotics combined with all SSRI's and MOI will cause damage to the pituary gland, pancreas, heart, gallbladder and most organs in the body.

I think the reason why many have chronic lyme is due to also taking antidepressants with lyme.

Dr. Anne Tracy Blake also has a web site and a great book.

I can believe that about the SSRIs. I pretty much refuse to use them and agree that they are way over prescribed. At the same time, there a lot of people that are really helped by them.

Anyway, I still have the pituitary problems, but there are just so many things that can cause them. I've done a little research and there is some info. showing the correlation between pituitary insufficiency and FMS. Oh yeah..and a lot of info. linking FMS, CFS, and Lyme. Still, nothing on Lyme and pit. insufficiency as a stand alone. Kind of blows my mind, considering there seems to be such a strong contigent of such problems among the Lymies that I've seen posting here and abroad.

I know I wouldn't be able to do without them. Whenever I've tried reducing the dosage, I get depressed.

shadow....There is a growth hormone email "List" available. Someone there may have what you need. Several people on the list have Lyme.

Try these email addys to [email protected] or [email protected]

You could also post on www.growthhormonedeficiency.org for more information.