posted
hello....has anyone taken synthroid for the weight gain the have gotten from your thyroid messing up due to lyme? How much did you take and how long till you saw a difference ...my body temp is always low but i have terrible sweats all day long while working///your experiences will help me lots...thats...
Posts: 17 | Registered: Feb 2005
| IP: Logged |
One LLMD has mentioned that in lyme, theres a faulty activation of T4, and T3 is low.
While I'm not sure if sweating can be attributed to a thyroid problem, or thyroid medication, theres another tick-borne infection called Babesiosis that will also cause sweating.
posted
Just wanted you to know that apparently synthroid isn't the best remedy for hypothyroidism from Lyme. Some recommend Armour Thryoid, a natural supplement from pigs, which has both T4 and T3. Others say this is too much T3 and it should be individually compounded. Still others, who use the term "Wilson's Syndrome" suggest only T3. Noone recommends synthroid, from what I have read, except the endocrinologists who won't accept your hypothryoidism or your Lyme in the first place, becasue they are unwilling to think outside the box.
You might want to do a search on this site, and also with Google or Yahoo. I just ordered a bunch of books to help me help my daughter. She actually had low thryodie labs (T4) and her endocrinologist STILL won't treat her, saying it's "just the Lyme."
posted
I was diagnosed with hypothyroidism 10 years ago and was put on levoxyl .075. I too have lyme, but was diagnosed almost 2 years ago. I didn't have thyroid symptoms, just bloodwork after my son showed I have it. I gained weight, but I was diagnosed 6 mos after my son was born, so I never really knew because of the weight I gained with pregnancy. My body temp is always 97.?(a thyroid symptom and it seems alot of lyme patients have low temp). I think I have lyme since 1988 when I had weird symptoms and was diagnosed with "epstein barr". All my bloodwork was screwed up and no one thought of lyme because I lived in a city and I never knew of lyme in 1988 till a family member got it in the 90's. No doctors thought of it either. If I would have gotten diagnosed earlier like many on this site, I probably wouldn't be on IV, heart meds, mind meds...that I'm on today due to the lyme. I got diagnosed with hypothyroidism in 1994, lyme in 2003. I know they're somehow connected or which caused which and when - I which I knew how except it's autoimmune. I didn't have the sweats, hands and feet always cold. Lyme has me with irregular heartbeat, hypoperfusion in brain that causes confusion,...the list goes on. Never tried the armour, just the synthroid (levoxyl.) Hope you get some relief soon.
Cigi
Posts: 320 | From Upstate, NY USA | Registered: Dec 2004
| IP: Logged |
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
I have an elevated Throid auto antibody, but normal T levels. I took several months of Levoxyl and had no reduction in symptoms. LLMD thinks Lyme triggered the Thyroid ab.
Thyroid and Lyme symptoms can overlap so it's hard to tell what's causing what until they're treated.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
| IP: Logged |
Aniek
Frequent Contributor (1K+ posts)
Member # 5374
posted
The amount of synthroid, or other thyroid meds, should be based on your T3 and T4 levels. You can't judge based on other people's doses.
Posts: 4711 | From Washington, DC | Registered: Mar 2004
| IP: Logged |
posted
Hello Lyddie.....you mentioned Wilsons Syndrome......after doing blood work my dr told me that he felt along with my lyme that is what i had...he has me on a ton of suppliments.......plus i take mepron, zith and flagyl.....with dyflucan once a week....,my overall pain and weakness is getting much better but the weight gain is drivng me crazy......no excersize seems to help...i see that you mentioned Armour Thyroid.....do you think i should ask him about this since he has me on synthroid? Can i buy Armour thyroid in a suppliment store???????????????? thanks for your email...laurie........................................................................................................ince it is a "natural product" i assume it is safe to try///// by Lyddie: Just wanted you to know that apparently synthroid isn't the best remedy for hypothyroidism from Lyme. Some recommend Armour Thryoid, a natural supplement from pigs, which has both T4 and T3. Others say this is too much T3 and it should be individually compounded. Still others, who use the term "Wilson's Syndrome" suggest only T3. Noone recommends synthroid, from what I have read, except the endocrinologists who won't accept your hypothryoidism or your Lyme in the first place, becasue they are unwilling to think outside the box.
You might want to do a search on this site, and also with Google or Yahoo. I just ordered a bunch of books to help me help my daughter. She actually had low thryodie labs (T4) and her endocrinologist STILL won't treat her, saying it's "just the Lyme."[/QUOTE]
posted
Just got in and it's late, so I might not be too coherent...If you got to the Armour Thyroid site, there is a list of doctors that prescribe it there. Look on the Wilson's Syndrome site also. I also bought a book by Dr. Blanchard, another by Mary Shomon, with resources for help. Finally, and maybe the best, Mary Shomon has a website which also has MD listings. I'm so out of it right now, but if I find it tomorrow I'll let you know. I basically just "googled" or did yahoo for "hypothyroidism".
IP: Logged |
Carol in PA
Frequent Contributor (5K+ posts)
Member # 5338
posted
Dr. Jacob Teitelbaum has some good info about treating thyroid with Armour.
posted
This is only my opinion... I was dx'd Hypo...but if your thyroid is not working properly it can mess with you bodies internal thermostat.
I'm on both Synthroid (T4) 125mg and Cytomel (T3) 25mg. My body temp average ranges from 95 -97.5. But I still have the 'night time sweats', and during the day, the slightest thing can trigger it.
My guess, it's Lyme or a co-infection that is causing this.
And thyroid is a confusing thing to regulate, I fit the symptoms from both Hypo and Hyper, but the doc dx'd from the TSH lab readings, which was way to high.
Which isn't the best way to go, a person should have both the T4 and T3 tested. But my GP isn't the most knowlegable when it comes to thyroid, EITHER!
Hope this helps, -laserred-
Posts: 493 | From MidWest NorthWoods | Registered: Jan 2005
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/
UBBFriend: Email this page to someone!
Printer-friendly view of this topic