I have read on the board before that some Lyme sufferers have positive EBV tests, although they don't have any recollection of having an experience with mono.

I sure don't!

Active infection would be indicated by a high titre.

i had an Inf. Disease doc try to tell me taht I have chronic EBV - without a high titre. Fired him promptly.

I don't think it has any relation to Lyme thought probably is a factor for Chronic fatigue sufferers - the ones that don't actually have Lyme.

He treated me for 2 weeks with famvir.

So fatigue has lasted from then to now with 1-2 years later the fibromyalgia severe pain came as well as the EXTREME sensitivity to lights/glare/reflections and noise/sound.

Plus irritable bowel/bladder, TMJ, migraines, painful periods, & the rest of my long list of symptoms came.

At least he was smart enough to suspect lyme in the very beginning. Two months later I told him it's lyme. I've got 40 of these symptoms from Dr B's write-up.

Pam

I still have no dx of lyme, but I had mono about a year and a half ago - during thanksgiving. Never did figure out how I got it.

Hmmmmm.....since then have had strange, subtle, unexplainable symptoms (that I can relate to Lyme, now that I know what I know about Lyme)

Just to name a few over the years....

painful heavy mensus, paralysis (that lasted for a few hours upon wakening, this happened 2 times over about 2 years time),

stiff neck, painful achey joints, night sweats, panic attacks, sinus infections,

sudden severe onset of fatigue (once I slept almost 2 weeks straight, up each day for a bowl of soup and potty, then back to the couch, lost 10lbs in 2 weeks, which I couldn't afford, only weighed 108, went down to 98lbs).

Insomnia, anxiety, heart palpitations, rashes, migrains, neck & shoulder pain, brainfog, swollen ankles, feet, hands, muscle & joint cramps (charley horses), sciatic nerve flareups,

hyperactive bladder, vision problems, hair loss (alopecia, but it grew back)

Hypothyroid dx...short term memory problems, forgetfulness, getting lost (once I went to the grocery store...1 mile away, ended up in my parents driveway, 15 miles away). Left arm weakness (came and went)

I think I just kept getting reinfected til my body crashed last summer and my body's immune system said 'Do I have your attention now? I just can't keep up any more, I need outside help!'.

-laserred-