posted
Hi I have been contacted by a family member/doc who suggests I see Dr Steere.
I have done a search on him, but the search engine is not working.
I know we normally do not use doc names, but steere is known. hope this is ok.
Is he the doc who does not beleive in chronic pain? Is he worth seeing? I would appreciate ANY info on him. You are welcome to email me if you are not comfrotable posting about a doc.
posted
Well, I know this person. Will leave my reply for awhile......then edit just in case. Don't need a lawsuit over here.
Posts: 96222 | From Texas | Registered: Feb 2001
| IP: Logged |
posted
Once Dr.Burrascano found that some patients with chronic Lyme can be cured, but the treatment was very expensive, some other doctors decided to protect healthcare from Lyme patients who would bankrupt healthcare quickly by requesting such a treatment.
Thanks to these who corrupted themselves and started proclaiming false truth about Lyme disease the effort of healthcare presently is going towards protecting it from Lyme patients instead finding cheaper cure or treatment.
[This message has been edited by Lymen (edited 11 March 2005).]
posted
HI I understand anyones caution in responding to this.
I know this is an uncomfortable post.
I thank those who know me and will respond. Again, I went to the search, but it is not working.
I am afraid my relative doc is looking at Lyme thru the lens of a traditional doc, which could cause more problems than help, but I do NOT want to close any doors.
I paid $8.00 for mine at a lyme fundraiser. IT IS WORTH EVERY CENT!
If you are being sent in the "other direction" purposely then my guess is that they won't bother reading something so comprehensive...but it would be excellent for you to order and read. I have 3 copies; my pediatrician is going to borrow it and so is my regular doctor. They are both supportive of our lyme/co-infections and happy with our treatment/progress. But that's because they are open-minded...key word there.
Posts: 340 | From Harrisburg, PA | Registered: Jun 2003
| IP: Logged |
posted
Close any doors? More than a hundred posts and you are asking about Steere. Peculiar. This is why people are being cautious.
If you are genuine, why not use the ILADS guidelines, if for some reason, not understandable to me at this point, you want to try to change the mind of someone who thinks Steere is a good source on lyme.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
treepatrol
Honored Contributor (10K+ posts)
Member # 4117
posted
I have no problem responding to this question. What are you guys so worried about? We have a right to free speech in this country, especially when it comes to a person who is publically involved in a controversial issue. As a lyme patient, seeing Allen Steere would be like a jew visiting Dr. Mengele. He's an intellectually corrupt human being.
[This message has been edited by Aligondo Bruce (edited 11 March 2005).]
Areneli
Frequent Contributor (1K+ posts)
Member # 6740
posted
"I have no problem responding to this question. What are you guys so worried about? We have a right to free speech in this country, especially when it comes to a person who is publically involved in an issue. As a lyme patient, seeing Allen Steere would be like a jew visiting Dr. Mengele. He's a corrupt human being."
I can see your point
Posts: 1538 | From Planet Earth | Registered: Jan 2005
| IP: Logged |
For information on steere,et.al, please see sci.med.diseases.lyme When there, do theses steps: 1. Select 'advanced search' 2. In the field for 'author,' enter, the name, 'Kathleen' 3. In the field for group, enter sci.med.diseases.lyme 4. In field for 'Subject,' enter RICO
Ignore adhominem attacks, and view the facts.
You'll also find a copy of the RICO complaint w/rt lyme disease on the site for the Department of Justice, and the Food and Drug Admin.
quote:Originally posted by Aligondo Bruce: I have no problem responding to this question. What are you guys so worried about? We have a right to free speech in this country, especially when it comes to a person who is publically involved in an issue. As a lyme patient, seeing Allen Steere would be like a jew visiting Dr. Mengele. He's a corrupt human being.
Let me just refine this statement to "intellectually corrupt". Something I know I can prove in court. He'd get fried on the cross and he knows it.
posted
Dear BJG: Alan Steere is a major reason the medical science of lyme disease is frozen in time, is at least ten to fifteen years out of date, is not devoting anything like the resources to research that are urgently needed and why God only knows how many thousands of pateints cannot get proper diagnosis much less treatment. As a result they have to go through a living hell at the hands of doctors.
The political aspect of it is that for patients being sick with Lyme Disease is an unmitigated disaster both in terms of getting treatment for what is ultimately a fatal disease and in terms of having a totally devasted life. The doctors put you through hell, cost you a fortune and you are no better. Ducks like Steere with their combination of ignorance, arrogance and stupidity and many suspect in his case of having sold out to the insurance racket are the major reason we are in this mess today..
If you had a bleeding ulcer in your stomach or duodenum, would you go to a doctor who refused to acknowledge and indeed had never even heard of the fact that 90% percent of all such ulcers are caused by h. pylori? If your answer to that question is yes, then by all means go see Alan Steere. If however you want somebody who will diagnose your problem accurately, and even prescribe treatment that might work, the odds are you would be much better off going to somebody else. If there is such a thing as bad karma, after all the misery he has brought into the world, Dr. Steere is in big trouble already.
Hope this helps, Cheers. Thomas Parkman
Posts: 341 | From Columbia SC 29206 | Registered: Feb 2003
| IP: Logged |
quote:Originally posted by Thomas Parkman: Ducks like Steere with their combination of ignorance, arrogance and stupidity and many suspect in his case of having sold out to the insurance racket..
Does anyone know what is Steere's connection to the insurance companies?
So far I don't see a connection. But I do see a connection between him and the drug companies though.
And for sure the drug companies have an interest in keeping a lid on Lyme.
On the other hand, the insurance companies are reacting no differently to Lyme than they are to any other long-term costly disease.
They never wanna pay out.
And from what I can tell, Lyme is not that expensive compared to many other diseases such as cancer, ALZ, Parkinsons, MS, AIDS, etc.
The problem Lymies face is that it's doctors OUT-OF-NETWORK that prescribes drugs which the insurance companies can decide at their leasure at any point to no longer cover.
And this is no different than if a Parkinsons patient is prescribed drugs by an OUT-OF-NETWORK doctor. In that case too the insurance company may choose to stop paying out at any time.
I'm convinced that it is indeed in the insurance companies utmost financial interest to spread the "truth" about Lyme. Cause in the end they'll save billions of dollars due to the associated reduction, and eventual elimination, of misdiagnosed MS, ALZ, Parkinson, lupus, CFS, etc.
And it is this very same argument that is causing the drug companies to do everything in their power to keep a lid on Lyme. Cause they have every interest to keep the misdiagnosis going strong.
A Parkinsons patient, an MS patient, etc are wonderful revenue pigs to the drug companies who'll be selling drugs to these patients for the rest of their lives.
I admit I don't know where Steere and gang gets their research money from. I know they get some from the NIH. But I can imagine that drug companies also supply funding to Yale one way or the other, or indirectly. I'm also wondering who's on the board of directors of Yale medical school and who their connections are.
Does anyone have insight into these sorts of things?
posted
BJG, Tell your relative to read the Feb. Issue of the Infectious Disease Journal about Dr. Master's latest research. That is a duck journal and should prove something to him. I think it is in that issue if not it will be out shortly! Also like someone said look up Dr. Brian Fallon's new study whose results should be out this summer. Come on when are the ducks going to wake up!!! Also this is a free country still and I will say anything I want as long as I just say this is my opinion. Also there is enough research out there to support everything written here about all this that would keep attorneys busy for yrs. It is your life and if you want to risk it then go ahead but you have been warned!!!
Mule
Posts: 124 | From Mound City MO USA | Registered: Sep 2004
| IP: Logged |
GEDEN13
Frequent Contributor (1K+ posts)
Member # 4151
posted
sniff ,sniff?/ i have smelled this oder before.could it be someone want's to play? write me.i will steer you good.(right)....hug's....gary
posted
Bjg, Do you have big swollen knees? If you don't Dr Steere won't see you anyway. He believes that if you have had your 2-3 weeks of treatment you don't need more treatment unless you have big swollen knees!
I didn't have swollen knees so his cohorts doubted I had Lyme even though I already had a positive test. They managed to lose my test results and then made me pay for another test (also positive).
They said my knees looked fine and they had no idea why I was having problems with fatigue, confusion, neurological problems etc. I suggested the problems were due to Lyme and they though I was crazy. Apparently they also thought I was deaf since they yelled at me and told me that if my medication wasn't working I needed to stop taking it.
They suggested doing a spinal tap. I cancelled my next visit and found an LLMD who doesn't shout at me or insult me. He listens, he changed my meds, I'm getting better.
quote:Originally posted by BJG: Hey Thanks, you all confirmed what I thought I had heard/read.
Besides Dr B guidlines, is there another piece of info that a traditional doc would "get" and respect?
Thanks B
The ILADS Guidelines (ILADS.com) are "peer reviewed", which are those magic words that non-Lyme literant docs respond to favorably when asking if the information source is credible.
(The ILADS guidelines are similar to Burrascano's guidelines and Dr B did have a lot to do with the ILADS guidelines.)
The Lyme Disease Association also has the Lyme Disease handbook bu Marcus Cohn, summarizing pertinent, peer-reviewed literature on Lyme, supporting the approach of ILADS and other Lyme literate doctors who diagnose on the basis on clinical symptoms and provide open-ended treatment based on the patient and not on an arbitrary length of time, like 10 days.
Much of the peer-reviewed literature above runs counter to the peer-reviwed literature that Steere has written or others of his ilk cite.
The basic point to present to any doctor who is one-sided against open-ended treatment: There are two sides, and each are supportable with peer-reviewed literature. If you have read one that supports the ELISA as diagnostic and 10 days as sufficient, be balanced and read the peer-reviewed literature that views that approach as not just wrong by harmful.
So this is the choice and risk you make with regard to your patient:
If you go with the 10 day approach only, you will have to declare him/her cured, no matter what symtoms persist or worsen.
If, however, you go with the approach based on clinical judgment and open-ended treatment, you are willing to give an arsenal of antibiotics for as long as the patient's symptoms persists. You continue to treat until the the patient gets better and can function, which can be two months, or two years, or life.
If you were the patient and could not function anymore, which choice would you make for yourself? 10 days no matter how awful you still felt in the end, or treatment until you got better?
Posts: 548 | From Diagnosed 2003 | Registered: Jan 2003
| IP: Logged |
david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
HI
If you decide to go and see him,presumably for joint related problems. PLEASE ask him what ever happened to the original "lyme " kids in old Lyme Ct.
How are they doing after there initial short term treatment. Nobody seems to know where these people are or how they are/where doing. This is really odd since they are the "first" to diagnosed with the new disease and treated with the short term protocol (assuming no followup treatment). Getting the history here would surely bring a bit of clarity to this controversy.
Posts: 1184 | From north america | Registered: Feb 2003
| IP: Logged |
posted
An article was published about the early cases in Journal of Infectious Diseases (2001; 181:453-460). Said the overall health status of patient groups was good, talks about post Lyme syndrome. If anyone is really really interested, I will scan in an article about this in Spotlight on Lyme from 2001.
Or you could do a search for the abstract on pubmed. Maybe the full text article is now available free of charge. Could read about it from the horses mouth (or another part of the horse's anatomy).
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
quote:Originally posted by BJG: Hi I have been contacted by a family member/doc who suggests I see Dr Steere.
I have done a search on him, but the search engine is not working.
I know we normally do not use doc names, but steere is known. hope this is ok.
Is he the doc who does not beleive in chronic pain? Is he worth seeing? I would appreciate ANY info on him. You are welcome to email me if you are not comfrotable posting about a doc.
Posts: 749 | From New Hope, PA | Registered: May 2002
| IP: Logged |
david1097
Frequent Contributor (1K+ posts)
Member # 3662
posted
Thanks Lou but....
I wonder what happened to the ORIGINAL group, not some randomized, manipulated, unable to contact the really bad or dead ones group.
The problem with papers is that you can tilt the conclusions any way you want with some cleaver wording and study group selection criteria.
It is amazing what a single word in a 6 page paper can do. The "Pro's" who write this type of crap all the time are experts at this type of thing. I got so fed up with this type of science that I left the paper writting community...
posted
You are absolutely right. It turns out that I do have a copy of the full text article, but it is quite long and suffers from all the defects you mention.
So, instead of sending you the critique, I am posting it here. It is shorter than the original article, points out a lot of those defects, and might help some of the newbies understand what is going on with the publishing of lyme articles in scientific journals.
I don't suppose it is restricted to lyme, either. You, being in the field, would undoubtedly do a better critique, but as you can see, even a layperson can find defects, the lyme science is so sloppy by Steerites wishing to prove their point.
______________________________
FOLLOW UP: LYME, CONNECTICUT PATIENTS......10 TO 20 YEARS LATER
Lyme disease became a clinical entity in the United States as a result of investigations into a number of unusual arthritis cases among children in Lyme,Connecticut, in the 1970's. Now, an article in the Journal of Infectious Diseases (2001; 181: 453-60) describes the long-term impact of Lyme disease based on a follow-up of those patients 10 to 20 years later.
You will be pleased to learn that the overall current health status of each patient group was good. This is another in a series of articles telling us that Lyme disease isn't serious. If this kind of research had a theme song, it would be,"Don't worry, be happy!" "How can this be?" you ask. "lt doesn't describe what is happening to me or others I know." In Lyme disease support groups, patients have had eye, knee, and heart operations. Some members of support groups are in wheelchairs. Other members are still getting treated years later to fend off the worst symptoms. When treatment stops, the symptoms return. A man in his 40's has dementia. Some people are no longer able to work. However, the worst outcomes do not seem to get into print, and it is hard to avoid the conclusion that science can be very subjective.... depending on who is doing it.
The Lyme, Connecticut, follow-up was carried out by researchers at Tufts University and the New England Medical Center in Boston. They included Alien Steere along with Robert Kalish, Richard Kaplan, Elise Taylor, Lisa Jones-Woodward, and Kathryn Workman. Here is what they say:
"To determine the long-term impact of Lyme disease, we evaluated 84 randomly selected, original study patients from the Lyme, Connecticut, region who had erythema migrans, facial palsy, or Lyme arthritis 10-20 years ago and 30 uninfected control subjects. The patients in the 3 study groups and the control group did not differ significantly in current symptoms or neuropsychological test results. However, patients with facial palsy, who frequently had more widespread nervous system involvement, more often had residual facial or peripheral nerve deficits. Moreover, patients with facial palsy who did not receive antibiotics for acute neuroborreliosis more often now had joint pain and sleep difficulty and lower scores on the body pain index and standardized physical component sections of the Short-Form 36 Health Assessment Questionnaire than did antibiotic-treated patients with facial palsy. Thus, the overall current health status of each patient group was good, but sequelae were apparent primarily among patients with facial palsy who did not receive antibiotics for acute neuroborreliosis."
The research patients were selected from a pool of 582 people entered in the initial studies of Lyme disease at Yale from 1976 through 1983.This is a 14% sample of the original group. A larger number, 22%, were excluded because they had been lost to follow-up for reasons of death or moving away from the area. About half of the 152 patients contacted declined to participate, but about half of the decliners did agree to fill out a questionnaire. Most of the study patients, when first enrolled 10 to 20 years ago, were CDC positive, although not all of them were treated. Nearly all later obtained treatment, but some obviously had missed their window of opportunity because now they continue to have health problems. Does this sound like a good outcome to you....?
58% of the facial palsy group report memory problems
38% of the Lyme arthritis group now have chronic or episodic knee pain
23% of the facial palsy group now has residual deficits of facial nerve function, as determined by physical examination.
To evaluate and find meaning in this article requires a combination of statistician, experimental design expert, Lyme-literate physician or researcher, and logician. But even to a layperson reading it, several things leap out."Subtle" and "mild" are favored adjectives for symptoms described by these researchers. How could chronic knee pain be subtle? Is degenerative arthritis a mild condition? Also, the control group was small and was said not to differ in health problems from the Lyme patients - a conclusion that is hard to believe.
The control group they used was composed of friends or neighbors of the patients in this endemic area. One of these volunteers was found to be CDC positive! It seems possible that others in the control group may also have had undiagnosed Lyme. Without a reliable test, we will never know.One begins to wonder about the concept of control group. No information is given as to current treatment status. Nor are we told how long the patients were treated over those intervening years.The patients with continuing problems are said to have post-Lyme disease syndrome, not active disease. No proof of this is offered just the opinion.
The article states: ``The pathogenesis of post-Lyme disease syndrome is unclear. This syndrome is similar to fibromyalgia and CFS [chronic fatigue syndrome]. A higher lifetime prevalence of pre-morbid psychiatric illness or stressful emotional or physical events, including certain infectious illnesses, has been noted in patients who subsequently develop fibromyalgia or CFS. Perhaps diffuse or prolonged CNS [central nervous system] infection with B. burgdorferi in susceptible people triggers immunologic or neurohormonal processes that perpetuate this post-infectious syndrome. However, we do not know whether this is a direct effect of CNS infection or an indirect effect of a particularly stressful event. People who do not have this underlying susceptibility, those who are treated promptly with antibiotics or children in general may be less likely to develop subsequent fatigue, pain, or psychological distress."
These are fighting words to people suffering from such ailments, and they raise the blood pressure of Lyme patients receiving "psychological" explanations from doctors who don't take their illnesses seriously. Apparently, pop-psychology is more appealing than germ theory to some workers in science and medicine.
The researchers have lumped together people who got early treatment, late treatment, and no treatment, and compared them to a suspect control group. This conglomeration in the whole is then used to demonstrate a good outcome. Furthermore, they don't specify when active infection stops and post-Lyme syndrome begins. When, one wishes to know, do people who get no treatment or late treatment arrive at the post-Lyme condition? Does any amount of treatment at any point in time, whether it removes symptoms or not, transfer a patient automatically to the post-Lyme disease category?
The whole concept of post-Lyme disease is ridiculously fuzzy and unaccompanied by any objective proof. lt is interesting to note that most of their patients with "post-Lyme disease syndrome" did not fulfill the complete criteria for chronic fatigue syndrome or fibromyalgia.
Another aspect of this study that attracts attention is the current antibody status of these patients:
28% of the EM group are still IgG positive
45% of the facial palsy group are still IgG positive
63% of the arthritis group is still IgG positive.
The study states that current seropositivity is correlated with lack of antibiotic treatment early in the illness, but does not predict current symptoms.
The article concludes with a comparison of other studies of this type, which are said to be consistent in reporting symptoms of post-Lyme disease in antibiotic-treated patients, particularly if treatment was delayed after the onset of symptoms. The emphasis in all is on the post-infectious nature of the symptoms and the "good" outcomes, in which control group symptoms were not statistically different.
Dr. Nancy Shadick and others carried out one of these studies on Nantucket Island. The journal article, published in 1999, states that,"Because persons with previous Lyme disease exhibited no sequelae on physical examination and neurocognitive tests a mean of six years after infection, musculoskeletal and neurocognitive outcomes seem to be favorable. However long-term impairment of functional status can occur." Yes, you read that right. It is definitely contradictory. Upon reading the entire article, one finds other peculiarities: persons who did not have Centers for Disease Control (CDC) positive tests were enrolled as controls in this endemic area (a category which would include a lot of Lyme patients);some patients were still being treated; 37% reported a previous relapse; 36% reported continuing symptoms despite previous treatment-early neurologic dissemination correlated with persistent symptoms and with longer duration before treatment was received. Yet, these people are described as having had "previous" Lyme disease, not current disease.
The references cited in all these studies are predictably heavy on Steere articles and reference each other to such an extent that it appears to be a coordinated effort. Could these studies be repeated by other people and arrive at quite different conclusions? It seems likely. The simplest, most commonsense explanation for persisting symptoms is persisting infection. Like syphilis, if left untreated in early stages, late stage Lyme may be treatable but difficult to cure. Why conjure up a new syndrome instead? Science should be as complicated as necessary but not more complicated.
The greatest irony in the article that describes the Lyme, Connecticut, follow-up is a final discussion about sources of bias. It does not include any bias that comes from the assumption of the post-infectious nature of persisting Lyme disease symptoms. Also, treatment practices in the 70's and early 80's are compared with those of today, and the authors state that,"...some patients remained untreated for years, which would be rare today,"and"...antibiotic treatment of those patients was often less than is recommended today."
Many readers will vigorously question both conclusions. Patients who are not CDC positive on tests are still being denied treatment. In some states, there are no doctors who will treat or report Lyme disease cases. The on-going persecution of doctors is guaranteed to put more patients into the delayed treatment or no treatment category. In addition, antibiotic treatment for the early Lyme, Connecticut, cases, when given, was most often for 10 to 14 days. The new IDSA (Infectious Diseases Society of America) guidelines (with Dr. Steere as a co-author) now recommend 14 to 21 days for early cases or 14 to 28 days in cases of acute neurological disease or arthritis. Even treatment for late neurological disease is only recommended for 28 days. In other words, treatment by the Steere group has really not changed much.
This kind of research will make you skeptical of science. If such articles keep getting printed in important journals, how accurate is the other material they print? Comparing the results of this study with the reality of Lyme disease experienced in "chronic" cases may make you think that there must be a parallel universe. Maybe, if we could all go there, we would all have good outcomes with minimal treatment.
(From Spotlight on Lyme newsletter, May/June 2001)
[This message has been edited by lou (edited 14 March 2005).]
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
Are you there David?
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
liz28
Unregistered
posted
I just started searching for a new doctor after seeing just ILADS doctors for four years. Below please find my subjective, non-medical professional response.
The situation for Lyme patients is not the same as it was, although I have never visited Dr. Steere. Although I'm still getting started in the search, I've been shocked at how much more understanding doctors have become. There aren't many like this, but the situation is no longer hopeless. Even more important, the camps are not so black and white anymore.
Here's what I would do if I were starting out again.
Call Igenex labs in Palo Alto, California, see if there's a way to get low cost testing on your own, without a doctor.
Call the Lyme Foundation, ILADS, and Columbia University's chronic Lyme clinic, and ask for recommendations. Call local Lyme doctors, and instead of asking if they do all of Dr. B's protocol, ask if they will treat Lyme and the co-infections. If they say yes, they may be more sympathetic than you think.
Try and get different doctors to help you with different aspects of your treatment, instead of relying on just one person. For example, I now have a primary care physician who won't treat Lyme, but will write referrals for anywhere I want to go. I am blessed with a neurologist (also in my insurance network!) who can't treat Lyme, but will say that I absolutely do not have MS or ALS. In two weeks, I will visit a doctor who used to be very conservative, but now says that if you come in with co-infections, he'll treat them.
Most important, remember that there is a LOT of money involved in this. An LLMD can cost up to $750 a visit. Once you pay that, you'll be much less likely to keep shopping around. You increase your chances of being taken seriously and getting the right treatment if you do tons of research first, and know exactly which symptoms you have, and what the strongest treatment is. I've been shocked to discover that my Lyme and co-infections respond better to some new, strong drugs on the market, than to a combination of weaker ones.
In other words, the biggest mistake you can make is confusing a doctor with a parent figure, and looking for someone who will "save" you or "believe" you as opposed to "treat" you.
posted
one person told me that when he saw that guy's face he shaved his buffalo's shale-caked butt, and painted it white.
Posts: 2708 | Registered: Feb 2005
| IP: Logged |
If the search tool had been functioning, at the time I first posted my question, there would have been no post.
I feel sad that I brought him up, because I have seen how much pain he has caused all of us.
I hope this thread goes away.
No longer any need to respond.
I now know the truth.
Thanks, Peace, BJG
Posts: 468 | From IL | Registered: Oct 2003
| IP: Logged |
Lishs mom
Frequent Contributor (1K+ posts)
Member # 2344
posted
This is a post I made on another board....Maybe this can answer indirectly some questions you may have...
Im having a terrible time understanding this man...he jumps from platform to platform to support his financial well being from what I can tell....
Some of you were around in the days when Steeres research was actually good. It told about the problems with lyme disease, and how devestating it could become...then BOOM, we were hit with the Vaccine, the perfect way to get rid of lyme. They pushed the vaccine, using Steeres research.... (cant say he was or wasnt involved)
Then...the vaccine failed. Caused many people to come down with lyme, and other problems...through a plea from the public, and some hearings it was removed from the market..."due to low sales", but in truth there were many documented law suits in progression, and more to come.....
Suddenly Lyme diagnosis dropped band 31 and 34 from their testing..funny thing, both were part of the vaccine..but since I NEVER had the vaccine, why cant they use them when testing me...or anyone else on the West Coast?....because Lyme is rare...
Steere continued to say lyme is rare except in places such as the New England area.... Steere continued to work with the IDSA and the insurance companies to prove that "lyme is easily cured" or "after 14 days of ceftriaxone, all lyme is killed"....
Well about three years ago...in its beginning stage, patent was filed regarding a cure using the OspA as a under the tongue lozenge to create immune system to recognize lyme disease....it was to go into animal testing at that time for two years, then after animal testing would go into clinical trial testing......
Didnt Sood state, using research by Steere, Datwaller et all, according to the CDC article that only Lyme.gov sites were ACCURATE and that LDA, ILADS, and IGeNeX were INACCURATE sites in part because they say that there is a 'chronic form of lyme' and this is according to Steere, Datwaller, Wormser et al " the IDSA practice guidelines do not include treatment options for chronic lyme disease because persistent infection has not been demonstrated, instead recurrent arthritis or chronic encephalitis could be termed post lyme disease, thus chornice lyme disease is a term that should no longer be used"...... http://www.cdc.gov/ncidod/dvbid/lyme/resources/LD_Internet.pdf (page 2 of four right hand column first paragraph)
found another contradiction...oh my....
Steere says in a letter to Annals of Internal Medicince*:
"the weight of evidence is against the idea that chronic post-Lyme disease syndrome or "chronic Lyme disease" results from active infection with B. burgdorferi."
Yet on his website he states: "clinical studies regarding the treatment of antibiotic-resistant Lyme arthritis with disease modifying anti-rheumatic drugs are being done."
Which is it??? antibiotic resistant lyme arthritis would imply a persistent infection??? yet
posted
BJG, you are not the only one affected by this man. All of us are. Newbies keep coming to us, and many are still being told the bumsteere is THE expert. The need for accurate information never goes away, which is why old threads resurface and the same questions keep getting repeated. This is a public board where anyone can get help from threads, not just the original posters. Unfortunately, a lot of good stuff has been pruned because it is several years old and there is an upper limit on how much can be saved. For this reason, some folks go back and pull up old threads that they found useful. Putting a recent date on an old post saves it. Not just talking about this one, but any others that might have continuing relevance.
Posts: 8430 | From Not available | Registered: Oct 2000
| IP: Logged |
posted
YOu are kidding about seeing the Steere Duck right?....
-------------------- ~Things may happen in my life time to change who I am but I refuse to let them reduce me...~ Posts: 968 | From private | Registered: Jan 2005
| IP: Logged |
Foggy
Frequent Contributor (1K+ posts)
Member # 1584
posted
For those of use who were sent packing from the NEMC directly to the mental health dept., this leaves a VERY bad taste in our mouths.
That being said, making progress and testing "CDC +" after abx treatment does provide some solace.
Posts: 2451 | From Lyme Central | Registered: Aug 2001
| IP: Logged |
The Lyme Disease Network is a non-profit organization funded by individual donations. If you would like to support the Network and the LymeNet system of Web services, please send your donations to:
The
Lyme Disease Network of New Jersey 907 Pebble Creek Court,
Pennington,
NJ08534USA http://www.lymenet.org/