LymeNet Flash: Keets come out at night?

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»	LymeNet Flash » Questions and Discussion » Medical Questions » Keets come out at night?

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Topic: Keets come out at night?

Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310

posted

Does anyone find that they're symptoms flare when they wake up? I can feel a lttle better, take a nap, and wake up in a wicked haze, blurry vision, can barely add 2+2.

My sleep doc mentioned sleep inertia, when the body goes into sleep mode and has trouble getting out. My inertia drags on until the PM. What's up with this?

Posts: 1010 | From Mars | Registered: Feb 2004 | IP: Logged |

Areneli
Frequent Contributor (1K+ posts)
Member # 6740

posted

It seems that you rather have sleep apnea and require evaluation in a sleep lab.

Actually, there was a short study demonstrating that sleep apnea may be frequent co-disease with Lyme.

If oxygen chamber trully helps it may support the view that Bb doesn't like oxygen too much and perhaps causes sleep apnea on purpose to achive more favourable condition to grow.

Posts: 1538 | From Planet Earth | Registered: Jan 2005 | IP: Logged |

Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310

posted

Adrenel, actually, before I got my Lyme results, I thought OSA was my problem.

I've had 3 miserable sleep tests, and had 20 Hyponeas, but no apneas. My O2 sat never went below 92%

The poor quality of my sleep was so fragmented that the sleep doc was puzzled, since I didn't have OSA. LLMD said this is common with Lyme and metals.

Posts: 1010 | From Mars | Registered: Feb 2004 | IP: Logged |

Areneli
Frequent Contributor (1K+ posts)
Member # 6740

posted

It still may be prudent to treat you like sleep apnea for a while.

Posts: 1538 | From Planet Earth | Registered: Jan 2005 | IP: Logged |

henson2
Frequent Contributor (1K+ posts)
Member # 463

posted

Hi, Lymelighter!

Yes, I find this all the time.

A doc I talked to explained this to me. When you take a nap in the day that is longer than 30 or 40 mins, your brain starts going into deep sleep and your body thinks it's night.

Then when you go to bed that night, your body treats that as a nap!

He said if he (this is a healthy adult man) takes a nap more than 40 or 45 mins, he has a very hard time functioning cognitively.

Plus, I am sure that Lyme on top of this messes up our systems. Once the body is out of sync with when nighttime is supposed to be, then all sorts of hormonal changes happen, messing up appetite, brain waves, everything.

He told me that as much as I could, even w. the Lyme, to make my hours be as regular as I can, and not to take naps longer than 40 mins. Even though it is hard to get up, your brain will still be in "day" mode.

I also find I feel better after I've been up. Mornings are so hard. I feel better and more rested if I set quietly for a long period and do not sleep. I know there is a Lyme contribution to that, but I find real sense in what he says about the brain getting mixed up about day/night with the naps.

Hope this helps!

[This message has been edited by henson2 (edited 18 March 2005).]

[ 19. May 2007, 02:20 AM: Message edited by: henson2 ]

Posts: 1067 | From East Coast | Registered: Dec 2000 | IP: Logged |

Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310

posted

Hey Henson, welcome back from the 16th Century. Seems like you've been in school forever. Hope you have luck with the office of disability services. I got some help from that dept in undergrad. When are you treating me to the Herrell's Lyme Mint Chocolate Chip?

Yes, you're right, it feels like my brain goes into standby after a nap, and can't seem to readjust. Lyme probably slows the cognitive rebound to a crawl. I guess I'll also have to cut out the movies on Lifetime...putting me to sleep.

Posts: 1010 | From Mars | Registered: Feb 2004 | IP: Logged |

Areneli
Frequent Contributor (1K+ posts)
Member # 6740

posted

I do experience Lyme differently, but your problem may be also caused by accumulation of Bb biotoxin in the body.

I have experienced a dramatic improvement after cholestyramine, although others warn that not everybody see such an improvement.
It is perhaps worth trying in your case for 3-4 weeks (3x4g).
Make sure you take it many hours apart from other oral medications and always follow with fatty meal after taking it.

Posts: 1538 | From Planet Earth | Registered: Jan 2005 | IP: Logged |

sarabear
LymeNet Contributor
Member # 6530

posted

This is an interesting topic! I can't decide what to do because when I sleep well or take naps, I feel horrible, but I can barely stay awake through the day. I think I need a sleep test--never had one before. Thanks for the thoughts...

sara

Posts: 160 | From Frederick, Maryland | Registered: Nov 2004 | IP: Logged |

Lymelighter
Frequent Contributor (1K+ posts)
Member # 5310

posted

Adren, good call. I'm staking lots of Chlorella for my metals detox.

Posts: 1010 | From Mars | Registered: Feb 2004 | IP: Logged |

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