I have had this symptom alot. Years ago it was like hypersensitvity and then after awile it was burning and red and would come and go.

It's not nice. I don't know what you can do for it except treatment and it is something that is off/on for me and I can get it when I herx.

I have the "under the skin" burning nerve pain. I spark too.

I had a steroid shot in my knee before it all started (before I had any symptoms, actually) and I wonder if that didn't awaken the "dormant" lyme in me.

When I had knee surgery, I was given an antibiotic, and my burning pain intensified so much that it would have been fine with me if I had died. Now, I wonder if that wasn't a "herx" reaction to the antibiotic.

I'm going to New York next week to talk with some lyme docs there. I hope to ask them these questions....

I burn all over y body. Cold triggers as well as touch. I have not worn shoe in 3 yrs. Fuuny way to go to work.

What I do have is embarrassing to put on due to being overly "used" meaning holes. Mostly I wear the clothes inside out to avoid the seams from rubbing on me.

Can any of you feel the slightest texture which triggers severe pain.

I look forward to the warm weather so light clothes can be worn, however, then the slightest breeze hurts. What to do?

I would appreciate any input at all. I do B12 injections and take Bcomplex.

Tina, if you get any answers from the NY drs. can you please post or e-mail me?

What I do have is embarrassing to put on due to being overly "used" meaning holes. Mostly I wear the clothes inside out to avoid the seams from rubbing on me.

Can any of you feel the slightest texture which triggers severe pain.

I look forward to the warm weather so light clothes can be worn, however, then the slightest breeze hurts. What to do?

I would appreciate any input at all. I do B12 injections and take Bcomplex.

Tina, if you get any answers from the NY drs. can you please post or e-mail me?

What I do have is embarrassing to put on due to being overly "used" meaning holes. Mostly I wear the clothes inside out to avoid the seams from rubbing on me.

Can any of you feel the slightest texture which triggers severe pain.

I look forward to the warm weather so light clothes can be worn, however, then the slightest breeze hurts. What to do?

I would appreciate any input at all. I do B12 injections and take Bcomplex.

Tina, if you get any answers from the NY drs. can you please post or e-mail me?

What I do have is embarrassing to put on due to being overly "used" meaning holes. Mostly I wear the clothes inside out to avoid the seams from rubbing on me.

Can any of you feel the slightest texture which triggers severe pain.

I look forward to the warm weather so light clothes can be worn, however, then the slightest breeze hurts. What to do?

I would appreciate any input at all. I do B12 injections and take Bcomplex.

Tina, if you get any answers from the NY drs. can you please post or e-mail me?

What I do have is embarrassing to put on due to being overly "used" meaning holes. Mostly I wear the clothes inside out to avoid the seams from rubbing on me.

Can any of you feel the slightest texture which triggers severe pain.

I look forward to the warm weather so light clothes can be worn, however, then the slightest breeze hurts. What to do?

I would appreciate any input at all. I do B12 injections and take Bcomplex.

Tina, if you get any answers from the NY drs. can you please post or e-mail me?

Just curious if any of you have difficulty finding soft clothes you can tolerate against your skin. It is a major problem here.

I wear my soft things inside out to avoid the seams from touching me and triggering the severe pain.

I look forward to the warm weather so light clothes can be worn, however, then the slightest breeze on bare skin is horrible.

I would appreciate any input at all to ease the pain and try to deal with this better.

Tina, if you get any answers from the NY drs. could you please post or e-mail me?
I wish you the best of luck in NY.

Thanks for any info. and so sorry to hear all of you suffer with this.

quote:

---

Originally posted by Nal:
No actually skin burning pain was one of my very first symptoms. I hate it! I still get it from time to time but not as bad as I used to.

Nancy

---

There is a lot of info about B12 on www.braintalk.org. Go to the peripheral neuropathy section. I think you'll find info on B12 in the "useful websites" section at the top of the forum.

If not, post a question, and Rose will answer it.

She has found that oral methylcobalamin is absorbed very well.

My B12 levels are fine...always been above 600; and my homocysteine and MMA levels are normal, so B12 doesn't seem to be an issue for me.

You are correct that taking B12, should not hurt someone who has normal serum levels.

Sounds like you have a good doctor! Where in Colorado do you live? I'm in AZ...

In fact the pain you described is most likely Dejerine Roussy syndrome except that ducks cannot make the connection between Lyme and this painful condition. I am quite sure that if you test people with Dejerine Roussy for Lyme many, if not all would come up positive.

I don't know if any of you got through any intensive Flagyl treatment. Taking this drug will make your pain even worse as more toxins will be released on these very sensitive sensory centers but eventually you will get better.

I do what I preach. I did get somehow better, but yeasts attack had slowed me down with treatment. B12 probably wouldn't hurt but the most important thing is to remove the cysts from thalamus. This will cause A LOT OF PAIN, but there is a light at the end of the tunnel.

Don't loose you hope

Dejerine Roussy syndrome is treated not with painkillers but rather with antidepressants, if you want to try symptomatic relief. These may screw up your vision, and that is why I stay away from them as much as I can. But who knows, maybe you will get lucky and your vision will stay OK.

I need to understand and remember somewhere reading that certain antibiotics cause LB to go into cysts form.

Having neuro. problems as main syptoms I wonder if possibly there could be cysts in the thalamus.

I never heard of Dejerine Roussy syndrome before.

Also is flagyl the only antibiotic that will kill these off?

I suffer horribly from this daily and really can't deal with it much longer. I need to do something.

I remember a dr. telling me he wouldn't put me on flagyl because it would kill me..don't know how he meant that though.

Still you will suffer, I promise. But perhaps it will be worthy.

Best wishes on you road to painless life.

I don't know if any LLMD makes this connection. I have come up with it on my own. I will bet $1000 that I am right here.

I dont think it was the flagyl, just the pro-biotics as others have described.

I got up to 5 flagyls a day 250mg each.
No major herxes just minor pains,, but some depression out of nowhere. I belive this is a neuro herx.

As far as suffering the pain is unbearable everyday.

I can't recalla painfree day for a very long time.

quote:

---

Originally posted by klcst:
Nancy-
The right dosage level of Nerontin will help. ...
My Neuropathy is much better since I received B12 shots. Your body can only absorb so much of the oral vitamins. In extreme cases like ours shots are required for better absorption.
Tell your doctor you want to try 1cc of B12 weekly for a few weeks and see how you do.
Lisa

---

Hi,
I tried neurontin. It made me suicidal. Along with a host of other side effects, dizziness, vertigo, stupidity... I increased dosage up to about 1600mg/day trying to get relief but it didn't help. Nor did similar drugs.
If you take it be very careful. The suicidal thing can sneak up on you. I'm not normally like that but when you've been feeling bad for a long time it seems "normal" to be suicidal. But once I stopped, then took it again later on it was pretty clear it was the drug not me.

quote:

---

Originally posted by ibrakeforticks:
For people with the skin hypersensitivity/pain, do you have heat or cold intolerance as well?

---

I don't have much experience in differences between antidepressants but I am sure that your family physician will have a lot of experience in it.

Cymbalta is the new SSRI that has the potential to decrease nerve pain.

I take Amytriptoline at bedtime.
At a low dose it can reduce nerve pain. At a high dose it is used for depression.

My LLMD believes the pain is from nuerotoxins, so it is important to detox your body.

Cold makes the burning worse.
I take MANY warm baths with Epson salts and HP.

It is difficult to find soft clothes and clothes with no tags.
Everything burns my body.
Sheets, socks, clothes, touch etc.
WHAT A PAIN!!!!!!!!!!

I have read where too much B12 can actaully cause burning. Is that true??

Flagyl increased the pain for me.
The only FOR SURE thing I have ever taken, which includes MANY suppliments and antibiotics is Rifampin. My LLMD uses it for my mainstay med.

Is burning a Bart symptom??

quote:

---

Originally posted by BJG:
Hi

It is difficult to find soft clothes and clothes with no tags.
Everything burns my body.
Sheets, socks, clothes, touch etc.
WHAT A PAIN!!!!!!!!!!

Hi BJG

This is a major problem for me also. I cut all the tags out.

I find many clothes people have purchased for me have plastic in the seams, don't know why. If the material is soft and able to tolerate wear them inside out.

Start a new fashion trend as per my kids.
I would love to wear a pair of Jeans again.

This really is a serious problem which is difficult to understand if you don't have it

And yes the cold does make everything worse.

Just wondering is tightening of the muscles part of this too.

It feels like the muscles in my neck are chocking me and continues through the rest of my body and face.

It is really scary.

A dr told me it was a combination of muscle spasms and nerve damage.

Never been tested for Bart.

Thanks

Is burning a Bart symptom??

THanks
Good luck
BJG

---

quote:

---

Originally posted by Areneli:
"Arneli do you still believe that the cysts are active if they are living?"

I don't understand what you are asking. Please explain.

---

Nancy and Foggy, What antibiotics are you taking?

Is the burning skin from Bart or Babs?

I keep getting mixed messages in my research. It sounds like BArt, but Bart causes headaches. I do not have headaches.
My skin burning is accompanied with twitching and the sense that my body is an electrical circuit gone haywire.

The twitching and electrical stuff has been helped with Magnesium. {thank you Marnie}

Do you all have the twitching also?

Tickitout, you are welcome to email me, as any of you are. Maybe we could all email one another.

I wish all of us that burn, could connect somehow and help one another out.

Although we know this is Lyme, the burning is not the most common symtom.

I definately notice that my skin is much, much more sensitive when the weather is cold! The burning pain is down a lot but before the b-12 it would get really, really bad. Wearing clothes?? What a nightmare! Laying down in bed-awful!!

I really haven't found too many drugs that can be helpful for this but thats because I have terrible reactions to nearly every anti deppresant out there. 1 that works for some may not work for others.

I have been told that applying pure peppermint oil to the skin (you can add it to your lotion) can help some. The drug stores carry a lotion--I think its called Sorgan lotion (sorry if I misspelled it) and it does help some too.

quote:

---

Originally posted by Areneli:
Right, it is toxin leaking from cysts

---

Hi, I am so confused about the cysts form and if they cause many problems I have.

Also what the best antibiotic is to erradicate them. Can you please send me a link with this info. so I can try to understand it?

Thanks so much to all for any response.