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valymemom
Frequent Contributor (1K+ posts)
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My 22 year old son has been ill for 5 years and now is being treated for babesiosis. You have helped me gather info and investigate lyme sites and supplements. Thank you. He has no interest in knowing about lyme and coinfections. He keeps his illness from his friends and is able to do so little with them......he had to drop out of college. I am going to the Reston conference but he has no interest.....is this typical....not to want to investigate and know the disease.
Posts: 1240 | From Centreville,VA | Registered: Mar 2005  |  IP: Logged | Report this post to a Moderator
HEATHERKISS
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I'm so sorry about your son. He probably just wants to get better at this point.

You would have to be more specific about his demeaner for anyone to know if he seems normal.

Sometimes when I'm having a bad day I don't have the mental energy to learn or do anything.

I have a 20 something neice who is sick and all she does is complain. She still drinks alcohol and goes to bars and does not eat healthy.

It's wonderful you found Lymenet. It has helped me too.


Posts: 1974 | From ABERDEEN, NJ 07747 | Registered: Jan 2005  |  IP: Logged | Report this post to a Moderator
sarabear
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Well, I figured I might be able to provide some insight, since I am a 22-year-old with lyme and babesia, and I have been ill for 5 years. I can tell you from my own experience that I am extremely interested in learning about this disease and my chances of improving.

Granted, I go through periods where I can't mentally handle it, but I get through them, and I go back to the daily grind of reading and posting on lymenet.

Has your son ever had interest in learning what has been happening with his health? Does he have the type of personality to be inquisive about his body and mind? Does he like to learn? Does he just feel that others will deal with it for him?

I guess everyone handles the situation differently, but I personally cannot understand how one would not want to be informed about their own chances for a better quality of life?

Maybe I could talk to him? Just a thought...

Guess he probably wouldn't want to do that, huh.

Sara


Posts: 160 | From Frederick, Maryland | Registered: Nov 2004  |  IP: Logged | Report this post to a Moderator
henson2
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Hi,

I have a male relative a bit older than your son but he has to be macho about illness all the time, does not want to face it even when he's obviously sick, has to pretend it does not exist, insists on covering it up.

I won't make any gender stereotypes. I do think everyone handles it differently, and it may be too overwhelming for a young guy to look at chronic illness.

Incidentally, I belong to an internet group for people with life threatening allergies (such as to peanuts), and a frequent complaint there is from mothers whose teenage and 20-something sons scare their moms by not taking it seriously. There are Moms who have a heck of a time just getting their sons even to carry their life-saving Epi-pens.

I also tend to hide my Lyme with friends if I can, just so I don't keep appearing like "the sick one." (Even though I am). I think we all go thru different stages of being able to take in information about it, and having to be in denial.

I am glad that you were able to find treatment for him!

Sending you good wishes

[This message has been edited by henson2 (edited 22 March 2005).]


Posts: 1067 | From East Coast | Registered: Dec 2000  |  IP: Logged | Report this post to a Moderator
treepatrol
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WELCOME To LYMENET


Here's more goodys! A typical response to newcomers.

Hi and WELCOME! Get a LLMD or at least Dr that is willing to learn about lyme. Borrelia Burgdorferi is a clinical diagnosis, based on symptoms and on your response to treatment. Good Luck, bumpy road ahead.

Post for a LLMD in Seeking a Doctor. Ps remember I am not a Dr, just a fellow sufferer.

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[This message has been edited by treepatrol (edited 30 March 2005).]


Posts: 10564 | From PA Where the Creeks are Red | Registered: Jun 2003  |  IP: Logged | Report this post to a Moderator
bg
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Yes, isn't this site wonderful!

You've received 2 offers to correspond with your son from folks his age.

You've received treepatrol's newbie links continued to be added to.

He's in DENIAL as we all have been. In time he will accept, and hopefully then want to learn about his illness & what he CAN do that is within his control....just my own personal experience, and I'm 56 tomorrow!

Betty G, Iowa


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Aniek
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You are asking a group of people who took the initiative to find this website. I don't know if we really are the best sample. From knowing others with chronic illnesses, I think many people just rely on their doctor for information on their illness.

Your son may also be trying to not be reminded he is sick. I was 27 when I first had really acute symptoms, and I did my best to not live a "sick" life.

When I was diagnosed with fibromyalgia, at 28, I began to live up as much as I could. I would stay out to 4 a.m., hang out with strangers I met at bars, basically do what I could to forget I was sick (except I never did drugs). I kept a lot inside at that time.


Posts: 4711 | From Washington, DC | Registered: Mar 2004  |  IP: Logged | Report this post to a Moderator
   

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